James Lacerenza, a 24 year-old resident of Stamford, Conn., helps make a difference for children fighting neuromuscular disease with a grant from the Pepsi Refresh Project, which funds ideas that refresh and improve the community worldwide.
Lacerenza placed eighth out of fifteen in the $10,000 tier of the Pepsi competition. The grant will benefit MDA’s New York Summer Camp program, where children with neuromuscular disease can enjoy outdoor activities adapted to meet their needs.
It costs $800 for one child to attend camp. The Association covers this cost, so the family does not incur any expenses. The grant will allow 11 children to attend MDA Summer Camp for free.
The Pepsi Refresh Project selects winners based on the number of votes a given idea receives. Contestants use social media websites, Pepsi products, and other promotional tactics to gain votes. This is Lacerenza’s fourth time competing in the Pepsi Refresh Project.
“We had tremendous help from MDA friends and supporters at the International Association of Firefighters, The Arizona Diamondbacks, World Wrestling Entertainment, Kohl's, Garden Catering - the list of people is endless,” said Lacerenza.
Over the years, Lacerenza has raised $107,833 for MDA Summer Camp through various fundraisers and support from the public. His efforts have allowed approximately 130 children attend camp free of charge.
In 1999, Lacerenza began volunteering with MDA in the Hawthorne, N.Y. District Office. He is the founder of the ConnectiKids Summer Camp Fund, an organization dedicated to sending children with neuromuscular disease to MDA Summer Camp in New York.
Today, Lacerenza fundraises for the Association, volunteers annually at the local MDA Labor Day Telethon and organizes the Shamrocks Against Dystrophy campaign in his local area.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org or Meredith Buono-Sauro at (914) 345-5062 or msauro@mdausa.org.
This blog covers news from the district offices in Providence, Hartford, New Haven, Maywood, Tinton Falls, Hawthorne and Western Long Island
Wednesday, October 26, 2011
Wednesday, October 12, 2011
N.J. Business Leaders Raise "Bail" for Westfield Lock-Up
The Muscular Dystrophy Association (MDA) will send local business leaders to “jail” on Tuesday, October 25, 2011 at The Jolly Trolley in Westfield, N.J. from 11 a.m. to 2 p.m. to raise “bail” for MDA.
MDA will “lock-up” community business leaders and arrest them at their place of business. Transportation will be provided by local police departments to The Jolly Trolley, located at 411 North Ave E, Westfield, NJ 07090.
Each “jailbird” will raise $1,600 in the weeks leading up to the event, then visit the “jailhouse” to turn in their bail, enjoy MDA’s version of “gourmet bread and water” otherwise known as lunch, and have the opportunity to network with colleagues and friends. The $1,600 bail benefits funding for MDA’s week-long overnight camp, in Spring Valley, N.Y., for children ages 6-17, served by The Association. MDA aims to raise at least $50,000 from the event.
Business leaders from Westfield, Fanwood, Plainfield, South Plainfield, Clark, Cranford, and Kenilworth are invited to participate.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event or to register as a “jailbird”, please contact Erin Dresnick at (201) 843-4452 or edresnick@mdausa.org.
MDA will “lock-up” community business leaders and arrest them at their place of business. Transportation will be provided by local police departments to The Jolly Trolley, located at 411 North Ave E, Westfield, NJ 07090.
Each “jailbird” will raise $1,600 in the weeks leading up to the event, then visit the “jailhouse” to turn in their bail, enjoy MDA’s version of “gourmet bread and water” otherwise known as lunch, and have the opportunity to network with colleagues and friends. The $1,600 bail benefits funding for MDA’s week-long overnight camp, in Spring Valley, N.Y., for children ages 6-17, served by The Association. MDA aims to raise at least $50,000 from the event.
Business leaders from Westfield, Fanwood, Plainfield, South Plainfield, Clark, Cranford, and Kenilworth are invited to participate.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event or to register as a “jailbird”, please contact Erin Dresnick at (201) 843-4452 or edresnick@mdausa.org.
CT Business Leaders Get "Locked Up" in West Hartford
The Muscular Dystrophy Association (MDA) will send local business leaders to “jail” on Tuesday, October 25, 2011 at Rizzuto’s Wood-Fired Kitchen & Bar from 11 a.m. to 3 p.m. to raise “bail” for MDA.
MDA will “lock-up” community business leaders and arrest them at their place of business. They will be transported by “undercover officers” to Rizzuto’s Kitchen & Bar, located at 111 Memorial Road, West Hartford, CT 06107.
Rizzuto’s Kitchen & Bar will serve the “jailbirds” complimentary “jail” food, while each attempts to raise at least $2,400 in bail money by contacting friends, family members and business colleagues for donations to MDA. Money raised will support MDA Summer Camp by paying for sponsorships and cabins to house children. It costs $800 for one child to be sent to camp. Jailbirds that reach their “bail” goal will send three children to camp with all expenses paid.
Participants will be asked to serve time at Rizzuto’s in one-hour increments, starting at 11 a.m. and the last hour beginning at 2 p.m. The “jailbirds” are encouraged to spend more time “locked up” if desired. There will be contests and prizes each hour. Jailbirds will have their mug shot taken and interact with other business and community leaders attending the event in support of MDA’s mission. They will also have the opportunity to meet an individual or family served by the Association.
A wide variety of businesses will send jailbirds to go behind bars for MDA, including Private Capital Group, University of Hartford, Sovereign Bank, West Hartford Public Schools, American School for the Deaf, Connecticut Bank & Trust, and more.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. Locally, the Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org. To learn more about MDA or to sign up as a “jailbird”, contact Ellen Kellie at (860)633-4466 or ekellie@mdausa.org.
MDA will “lock-up” community business leaders and arrest them at their place of business. They will be transported by “undercover officers” to Rizzuto’s Kitchen & Bar, located at 111 Memorial Road, West Hartford, CT 06107.
Rizzuto’s Kitchen & Bar will serve the “jailbirds” complimentary “jail” food, while each attempts to raise at least $2,400 in bail money by contacting friends, family members and business colleagues for donations to MDA. Money raised will support MDA Summer Camp by paying for sponsorships and cabins to house children. It costs $800 for one child to be sent to camp. Jailbirds that reach their “bail” goal will send three children to camp with all expenses paid.
Participants will be asked to serve time at Rizzuto’s in one-hour increments, starting at 11 a.m. and the last hour beginning at 2 p.m. The “jailbirds” are encouraged to spend more time “locked up” if desired. There will be contests and prizes each hour. Jailbirds will have their mug shot taken and interact with other business and community leaders attending the event in support of MDA’s mission. They will also have the opportunity to meet an individual or family served by the Association.
A wide variety of businesses will send jailbirds to go behind bars for MDA, including Private Capital Group, University of Hartford, Sovereign Bank, West Hartford Public Schools, American School for the Deaf, Connecticut Bank & Trust, and more.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. Locally, the Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org. To learn more about MDA or to sign up as a “jailbird”, contact Ellen Kellie at (860)633-4466 or ekellie@mdausa.org.
Wednesday, September 21, 2011
TSI Harley-Davidson Holds 14th Annual Black and Blue Ball
TSI Harley-Davidson will hold their 14th annual Black and Blue Ball in South Windsor, Conn. on Friday, October 14, 2011 to benefit the Muscular Dystrophy Association (MDA).
The benefit will be held at Maneeley’s Banquet Facility, located on 65 Rye Street, South Windsor, Conn, starting at 6 p.m. The night will start with a cocktail reception and hor d’oeurvres. Guests can bid at the live, silent camp auction. An award ceremony and honoree recognition will follow. Entertainment will be provided and hosted by Fox 61 and WCCC.
The Black and Blue Ball has raised in excess of $500,000 over the past nine years. In 2010, the Ball raised more than $50,000. This year, corporate and individual tables are available. Responses for attendance are requested by September 30, 2011.
Money raised will support MDA Summer Camp, by paying for sponsorships and cabins to house children. The various levels of sponsorship range from summer camp sponsor, which costs $800 for one child to be sent to camp for free, up to a title sponsor, costing $5,000 to support MDA. This level includes two tables for ten with preferred seating, complimentary drink package, business advertisement, a plaque presentation, and recognition to the public.
The event’s name originates from MDA’s longstanding relationship with Harley-Davidson. Early participants arrived in “black” leather and “blue” denim. Today, the Black and Blue Ball is a highlight among the area’s social events, drawing individuals and companies from across Connecticut and western Massachusetts together on the road to a cure for neuromuscular disease.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org or Christine Urciuoli at (860) 633-4466 or curciuoli@mdausa.org.
The benefit will be held at Maneeley’s Banquet Facility, located on 65 Rye Street, South Windsor, Conn, starting at 6 p.m. The night will start with a cocktail reception and hor d’oeurvres. Guests can bid at the live, silent camp auction. An award ceremony and honoree recognition will follow. Entertainment will be provided and hosted by Fox 61 and WCCC.
The Black and Blue Ball has raised in excess of $500,000 over the past nine years. In 2010, the Ball raised more than $50,000. This year, corporate and individual tables are available. Responses for attendance are requested by September 30, 2011.
Money raised will support MDA Summer Camp, by paying for sponsorships and cabins to house children. The various levels of sponsorship range from summer camp sponsor, which costs $800 for one child to be sent to camp for free, up to a title sponsor, costing $5,000 to support MDA. This level includes two tables for ten with preferred seating, complimentary drink package, business advertisement, a plaque presentation, and recognition to the public.
The event’s name originates from MDA’s longstanding relationship with Harley-Davidson. Early participants arrived in “black” leather and “blue” denim. Today, the Black and Blue Ball is a highlight among the area’s social events, drawing individuals and companies from across Connecticut and western Massachusetts together on the road to a cure for neuromuscular disease.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org or Christine Urciuoli at (860) 633-4466 or curciuoli@mdausa.org.
Friday, August 12, 2011
Kelly's Kone Konnection in Connecticut Names 2 Flavors in Honor of MDA
Kelly Stone of Kelly’s Kone Konnection generously named two ice cream flavors for MDA to help promote the 2011 MDA Labor Day Telethon. This is the fourth consecutive year that Kelly’s Kone Konnection has named flavors to help MDA’s mission.
Members of the local Hamden, Conn. community can now enjoy the special edition flavors “Make a Mocha Chip Muscle” and “MDA Raising More Cookie Dough” during the month of August at Kelly’s Kone Konnection, located at 2583 Whitney Ave. in Hamden, Conn.
Kelly’s Kone Konnection’s support in helping MDA promote the Telethon will increase viewership in the Hamden area, which will in turn help local families and individuals affected by neuromuscular disease.
The 2011 MDA Labor Day Telethon will broadcast during Labor Day Weekend on Sept. 4 from the Mohegan Sun Casino on Fox61 WTIC. Contributions to the Telethon will help fund diagnostic and follow-up care for people with muscular dystrophy, assistance with the purchase and repair of wheelchairs and leg braces, physical, occupational and respiratory therapy consultations, assistance with the purchase of communication devices, medical and scientific conferences and much more. Other services include support groups and MDA’s Annual Summer Camp for children with neuromuscular diseases.
MDA is a voluntary health agency dedicated to helping more than one million Americans affected by neuromuscular disorders through programs of worldwide research, comprehensive services, and far reaching professional and public health education.
Once again, on behalf of MDA and the families that we serve, thank you Kelly’s Kone Konnection for helping the fight against neuromuscular disease.
Members of the local Hamden, Conn. community can now enjoy the special edition flavors “Make a Mocha Chip Muscle” and “MDA Raising More Cookie Dough” during the month of August at Kelly’s Kone Konnection, located at 2583 Whitney Ave. in Hamden, Conn.
Kelly’s Kone Konnection’s support in helping MDA promote the Telethon will increase viewership in the Hamden area, which will in turn help local families and individuals affected by neuromuscular disease.
The 2011 MDA Labor Day Telethon will broadcast during Labor Day Weekend on Sept. 4 from the Mohegan Sun Casino on Fox61 WTIC. Contributions to the Telethon will help fund diagnostic and follow-up care for people with muscular dystrophy, assistance with the purchase and repair of wheelchairs and leg braces, physical, occupational and respiratory therapy consultations, assistance with the purchase of communication devices, medical and scientific conferences and much more. Other services include support groups and MDA’s Annual Summer Camp for children with neuromuscular diseases.
MDA is a voluntary health agency dedicated to helping more than one million Americans affected by neuromuscular disorders through programs of worldwide research, comprehensive services, and far reaching professional and public health education.
Once again, on behalf of MDA and the families that we serve, thank you Kelly’s Kone Konnection for helping the fight against neuromuscular disease.
A&P Family of Supermarkets Gets "Locked Up" on the Hudson
A&P Family of Supermarkets, among other local businesses, will support the Muscular Dystrophy Association (MDA) by getting locked up on Tuesday, September 20, 2011 at the Wicked Wolf Tavern in Hoboken, N.J. to raise “bail” for MDA.
John Bincoletto of A&P Family of Supermarkets in Hoboken is a repeat offender for the 2011 Lock Up on the Hudson. In 2010, he raised $2,300 and will be participating again this year. A&P Family of Supermarkets has also supported MDA in the Shamrock Against Dystrophy program. The Hoboken location raised over $9,500.
Bincoletto and fellow community business leaders will be arrested at their place of business and transported by local police departments to the Wicked Wolf Tavern, located at 120 Sinatra Drive, Hoboken, N.J. 07030, to serve their time at the local MDA Lock-Up from 11 a.m. to 2 p.m.
Each Jailbird will raise $1,600 in the weeks leading up to the event and then will visit the “jailhouse” to turn in their bail, enjoy MDA’s version of “gourmet bread and water” otherwise known as lunch, and have the opportunity to network with colleagues and friends. The $1,600 bail goes toward funding MDA’s week-long overnight camp, in Spring Valley, N.Y., for children ages 6-17, served by The Association. MDA aims to raise at least $50,000 from the event.
Visit https://www.joinmda.org/lockuponthehudson2011 to receive more information or to participate in the Lock Up.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event or to register as a “jailbird”, please contact Vanessa Malfitano at (201) 843-4452 or vmalfitano@mdausa.org, Jessica Powers of Wicked Wolf Tavern at jpowers@wickedwolfhoboken.com, or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
John Bincoletto of A&P Family of Supermarkets in Hoboken is a repeat offender for the 2011 Lock Up on the Hudson. In 2010, he raised $2,300 and will be participating again this year. A&P Family of Supermarkets has also supported MDA in the Shamrock Against Dystrophy program. The Hoboken location raised over $9,500.
Bincoletto and fellow community business leaders will be arrested at their place of business and transported by local police departments to the Wicked Wolf Tavern, located at 120 Sinatra Drive, Hoboken, N.J. 07030, to serve their time at the local MDA Lock-Up from 11 a.m. to 2 p.m.
Each Jailbird will raise $1,600 in the weeks leading up to the event and then will visit the “jailhouse” to turn in their bail, enjoy MDA’s version of “gourmet bread and water” otherwise known as lunch, and have the opportunity to network with colleagues and friends. The $1,600 bail goes toward funding MDA’s week-long overnight camp, in Spring Valley, N.Y., for children ages 6-17, served by The Association. MDA aims to raise at least $50,000 from the event.
Visit https://www.joinmda.org/lockuponthehudson2011 to receive more information or to participate in the Lock Up.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event or to register as a “jailbird”, please contact Vanessa Malfitano at (201) 843-4452 or vmalfitano@mdausa.org, Jessica Powers of Wicked Wolf Tavern at jpowers@wickedwolfhoboken.com, or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
Waterbury Fire Department Holds Annual Softball Tournament
The Waterbury Fire Department Local 1339 will host their annual Softball Tournament on Saturday, August 20 and Sunday, August 21, 2011 to benefit the Muscular Dystrophy Association (MDA).
The tournament features 13 men’s teams on Saturday and 13 Co-Ed teams on Sunday. The event will be held at Buck’s Hill Park, located at 88 Montoe Road in Waterbury, from 8 a.m. to 10 p.m. each day.
Registration will occur until a week prior to the event for $275 per team. Trophies will be awarded for first through fourth place teams, along with other prizes. Plaques will be given to all that participate.
The tournament will benefit the Waterbury Fire Department’s Fill the Boot campaign for MDA. In 2010, the tournament raised about $6,500 to benefit Waterbury’s efforts for MDA.
Fill the Boot drives collect donations for the fight against neuromuscular disease nationwide. All proceeds benefit MDA’s services, research programs, and support groups that benefit individuals and families in the local area.
The Waterbury Fire Department kicked off their fill effort this past weekend at the Brass City Mall and Stop & Shop Plaza. They will continue filling Fridays and Saturdays throughout August.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
To register your team for the softball tournament, please contact Stan Stasaitis at 203-206-5189. For more information on this event, please contact Stephen Fredericksen at (203) 248-6500 or sfredericksen@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
The tournament features 13 men’s teams on Saturday and 13 Co-Ed teams on Sunday. The event will be held at Buck’s Hill Park, located at 88 Montoe Road in Waterbury, from 8 a.m. to 10 p.m. each day.
Registration will occur until a week prior to the event for $275 per team. Trophies will be awarded for first through fourth place teams, along with other prizes. Plaques will be given to all that participate.
The tournament will benefit the Waterbury Fire Department’s Fill the Boot campaign for MDA. In 2010, the tournament raised about $6,500 to benefit Waterbury’s efforts for MDA.
Fill the Boot drives collect donations for the fight against neuromuscular disease nationwide. All proceeds benefit MDA’s services, research programs, and support groups that benefit individuals and families in the local area.
The Waterbury Fire Department kicked off their fill effort this past weekend at the Brass City Mall and Stop & Shop Plaza. They will continue filling Fridays and Saturdays throughout August.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
To register your team for the softball tournament, please contact Stan Stasaitis at 203-206-5189. For more information on this event, please contact Stephen Fredericksen at (203) 248-6500 or sfredericksen@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
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