Showing posts with label mda camp. Show all posts
Showing posts with label mda camp. Show all posts

Wednesday, October 26, 2011

Local Connecticut Resident Receives ‘Pepsi Refresh’ Grant to Benefit the Muscular Dystrophy Association

James Lacerenza, a 24 year-old resident of Stamford, Conn., helps make a difference for children fighting neuromuscular disease with a grant from the Pepsi Refresh Project, which funds ideas that refresh and improve the community worldwide.

Lacerenza placed eighth out of fifteen in the $10,000 tier of the Pepsi competition. The grant will benefit MDA’s New York Summer Camp program, where children with neuromuscular disease can enjoy outdoor activities adapted to meet their needs.

It costs $800 for one child to attend camp. The Association covers this cost, so the family does not incur any expenses. The grant will allow 11 children to attend MDA Summer Camp for free.

The Pepsi Refresh Project selects winners based on the number of votes a given idea receives. Contestants use social media websites, Pepsi products, and other promotional tactics to gain votes. This is Lacerenza’s fourth time competing in the Pepsi Refresh Project.

“We had tremendous help from MDA friends and supporters at the International Association of Firefighters, The Arizona Diamondbacks, World Wrestling Entertainment, Kohl's, Garden Catering - the list of people is endless,” said Lacerenza.

Over the years, Lacerenza has raised $107,833 for MDA Summer Camp through various fundraisers and support from the public. His efforts have allowed approximately 130 children attend camp free of charge.

In 1999, Lacerenza began volunteering with MDA in the Hawthorne, N.Y. District Office. He is the founder of the ConnectiKids Summer Camp Fund, an organization dedicated to sending children with neuromuscular disease to MDA Summer Camp in New York.

Today, Lacerenza fundraises for the Association, volunteers annually at the local MDA Labor Day Telethon and organizes the Shamrocks Against Dystrophy campaign in his local area.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.

For more information, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org or Meredith Buono-Sauro at (914) 345-5062 or msauro@mdausa.org.

Wednesday, October 12, 2011

N.J. Business Leaders Raise "Bail" for Westfield Lock-Up

The Muscular Dystrophy Association (MDA) will send local business leaders to “jail” on Tuesday, October 25, 2011 at The Jolly Trolley in Westfield, N.J. from 11 a.m. to 2 p.m. to raise “bail” for MDA.

MDA will “lock-up” community business leaders and arrest them at their place of business. Transportation will be provided by local police departments to The Jolly Trolley, located at 411 North Ave E, Westfield, NJ 07090.

Each “jailbird” will raise $1,600 in the weeks leading up to the event, then visit the “jailhouse” to turn in their bail, enjoy MDA’s version of “gourmet bread and water” otherwise known as lunch, and have the opportunity to network with colleagues and friends. The $1,600 bail benefits funding for MDA’s week-long overnight camp, in Spring Valley, N.Y., for children ages 6-17, served by The Association. MDA aims to raise at least $50,000 from the event.

Business leaders from Westfield, Fanwood, Plainfield, South Plainfield, Clark, Cranford, and Kenilworth are invited to participate.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.

For more information on this event or to register as a “jailbird”, please contact Erin Dresnick at (201) 843-4452 or edresnick@mdausa.org.

CT Business Leaders Get "Locked Up" in West Hartford

The Muscular Dystrophy Association (MDA) will send local business leaders to “jail” on Tuesday, October 25, 2011 at Rizzuto’s Wood-Fired Kitchen & Bar from 11 a.m. to 3 p.m. to raise “bail” for MDA.

MDA will “lock-up” community business leaders and arrest them at their place of business. They will be transported by “undercover officers” to Rizzuto’s Kitchen & Bar, located at 111 Memorial Road, West Hartford, CT 06107.

Rizzuto’s Kitchen & Bar will serve the “jailbirds” complimentary “jail” food, while each attempts to raise at least $2,400 in bail money by contacting friends, family members and business colleagues for donations to MDA. Money raised will support MDA Summer Camp by paying for sponsorships and cabins to house children. It costs $800 for one child to be sent to camp. Jailbirds that reach their “bail” goal will send three children to camp with all expenses paid.

Participants will be asked to serve time at Rizzuto’s in one-hour increments, starting at 11 a.m. and the last hour beginning at 2 p.m. The “jailbirds” are encouraged to spend more time “locked up” if desired. There will be contests and prizes each hour. Jailbirds will have their mug shot taken and interact with other business and community leaders attending the event in support of MDA’s mission. They will also have the opportunity to meet an individual or family served by the Association.

A wide variety of businesses will send jailbirds to go behind bars for MDA, including Private Capital Group, University of Hartford, Sovereign Bank, West Hartford Public Schools, American School for the Deaf, Connecticut Bank & Trust, and more.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. Locally, the Association also provides comprehensive health care and support services, advocacy and education.

For more information on this event, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org. To learn more about MDA or to sign up as a “jailbird”, contact Ellen Kellie at (860)633-4466 or ekellie@mdausa.org.

Wednesday, August 3, 2011

Connecticut Summer Camp 8/7 - 8/12

Starting Sunday, August 7 to Friday, August 12, 2011, the Muscular Dystrophy Association will host its annual summer camp for children with neuromuscular diseases in Hebron, Connecticut at East Seals Camp Hemlocks. Camp Hemlocks serves campers throughout the entire state, including Hartford, New Haven, Litchfield, New London, Tolland, and Fairfield counties, and parts of Rhode Island and Massachusetts. This year for campers, every day is a holiday, where each day celebrates something different. Holidays include St. Patrick's Day, Halloween, July 4th and more.

Since MDA’s first camp in 1955, thousands of volunteers from throughout the country have annually helped children with neuromuscular diseases enjoy extraordinary weeks at MDA camp. It’s no different at East Seals Camp Hemlocks in 2011.

Baseball? Got it. Soccer? Yes. Water games? Check. Arts & Crafts? Indeed. This year, every day will be a holiday for campers, as they celebrate July 4th, Halloween, St. Patrick’s Day, among others. Camp dances, karaoke, swimming, and scavenger hunts round out the activities campers enjoy during their week at MDA camp.

“MDA summer camp is the week that our kids think about year-round,’’ said Stephen Fredericksen MDA Executive Director. “For one week out of the year, they get to be in an environment where having a neuromuscular disease is the norm, not the exception. They have the chance to experience barrier-free activities and make friendships and memories that last a lifetime.’’

The campers are featured guests in what is a loving and inspirational playground known as MDA camp. Stories are plentiful among the long-standing counselors, medical personnel and the children, who truly are the stars of each week long camp session. They will inspire you. They will amuse and amaze you with their stories of summer camp experiences.

MDA Summer Camp will hold a VIP/Media day on Tuesday, August 9, 2011. This day offers incredible visuals and fun moments involving many notable business and community leaders. MDA can arrange for the media to hold meaningful interviews with children, parents and volunteers before, during or after summer sessions.

Information on VIP Day:
WHO: Some 40 area children with muscular dystrophy and related diseases, plus scores of volunteer counselors and business and civic leaders visiting the Muscular Dystrophy Association summer camp.

WHAT: VIP/Media Day -- A magical day during an extraordinary week of fun-filled activities, exuberance and freedom from the restraints of “no, you can’t do that!” for local youngsters with mobility challenges caused by progressive neuromuscular disorders.
Get exceptional B-roll footage and interview some remarkable children, or exceptional Hebron community volunteers serving as counselors, nurses and physicians, some using their own vacation time to make it so. Hear why local MDA sponsors are involved year-round, and why many people contribute to MDA to help send kids to camp at an average cost of $800 per camper.

WHEN: Tuesday, August 9, 2011 at 11:30AM

WHERE: East Seals Camp Hemlocks
85 Jones Street
Hebron, CT 06248
(860) 228-9496

CONTACT: Valerie D’Angiolini, Regional Public Affairs Coordinator, at (203) 288-3500, vdangiolini@mdausa.org or Jennifer Dain, Health Care Service Coordinator, at (203) 248-6500 or jdain@mdausa.org.

Monday, July 25, 2011

Connecticut Youngsters With Muscular Dystrophy and Community Volunteers Attend MDA Camp

They are extraordinary people doing extraordinary things. And they run the gamut of everyday people.

From wide-eyed, first-year volunteers to big-hearted professional fire fighters, to expert nurses and doctors, they all come together for one cause: the joy, laughter and dreams of the almost 40 children who annually enjoy Muscular Dystrophy Association’s Summer Camp in Hebron, Conn.

Summer Camp will be held at Easter Seals Camp Hemlocks, located at 85 Jones Street, Hebron, Conn., 06248, from August 7 to August 12, 2011. VIP day will be held on August 9th to recognize volunteers and sponsors who make the week-long session of camp possible.

Since MDA’s first camp in 1955, thousands of volunteers from throughout the country have annually helped children with neuromuscular diseases enjoy extraordinary weeks at MDA camp. It’s no different at East Seals Camp Hemlocks in 2011.

Baseball? Got it. Soccer? Yes. Water games? Check. Arts & Crafts? Indeed. This year, every day will be a holiday for campers, as they celebrate July 4th, Halloween, St. Patrick’s Day, among others. Camp dances, karaoke, swimming, and scavenger hunts round out the activities campers enjoy during their week at MDA camp.

“MDA summer camp is the week that our kids think about year-round,’’ said Stephen Fredericksen MDA Executive Director. “For one week out of the year, they get to be in an environment where having a neuromuscular disease is the norm, not the exception. They have the chance to experience barrier-free activities and make friendships and memories that last a lifetime.’’

The campers are featured guests in what is a loving and inspirational playground known as MDA camp. Stories are plentiful among the long-standing counselors, medical personnel and the children, who truly are the stars of each weeklong camp session. They will inspire you. They will amuse and amaze you with their stories of summer camp experiences.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive healthcare and support services, advocacy and education. See the award-winning MDA “Make A Muscle, Make A Difference” PSA.

In addition to funding more than 330 research teams worldwide, MDA maintains a national network of some 200 hospital-affiliated clinics; orchestrates hundreds of support groups for families affected by neuromuscular diseases; facilitates extraordinary local summer camp opportunities for thousands youngsters fighting progressive muscle diseases. Known globally for the MDA Labor Day Telethon, the Association is the first nonprofit to receive a Lifetime Achievement Award from the American Medical Association “for significant and lasting contributions to the health and welfare of humanity.”

In the Connecticut area, people with muscle diseases can receive excellent medical and health care services through the MDA clinics at Baystate Medical Center, MDA’s Adult Clinic at Yale School of Medicine, MDA’s Pediatric Clinic at Yale Pediatric Center, Hospital for Special Care, and St. Charles Hospital.

For more information, please contact Regional Public Affairs Coordinator Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org or Jennifer Dain, Health Care Service Coordinator, at (203) 248-6500 or jdain@mdausa.org.

Tuesday, July 19, 2011

Newark Fire Fighters Kick Off Fill the Boot Drive

The Newark Fire Department will kick off their fill the boot drive on August 20, 2011 at the Bergen Street Festival to raise funds for the Muscular Dystrophy Association (MDA) and help send children in N.J. to MDA Summer Camp.

Newark fire fighters will collect donations for MDA at various locations throughout the greater Newark area from Monday, August 22 to Friday, August 26, 2011. The fill the boot drive will take place during the morning and afternoons in two shifts and during community events in Newark. Specific times and locations will follow.

In case of inclimate weather, the Newark Fire Department will fill the boot from Tuesday, August 30 to Friday, September 2, 2011.

All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. Funds help send children fighting against neuromuscular disease to MDA Summer Camp.

MDA N.Y. Summer Camp, located in Spring Valley, N.Y., is a place offering a wide range of activities specially designed for young people who have limited mobility or use wheelchairs with neuromuscular disease. Camp programs are conducted in a relaxed atmosphere that gives campers an opportunity to develop lifelong friendships, share interests and build self-confidence.

The International Association of Fire Fighters (IAFF) is MDA’s largest national sponsor. Last year, Locals throughout the United States raised over $27.6 million to help individuals affected by neuromuscular disease. Since 1954, IAFF members have donated more than $450 million to MDA. Since 2005, the Newark Fire Department has raised over $50,000 to benefit MDA.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information on this event, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org or Vanessa Malfitano at (201) 843-4452 or vmalfitano@mdausa.org.

Tuesday, June 28, 2011

Male Summer Camp Volunteers Needed

The Muscular Dystrophy Association (MDA) is searching for an additional 25 men to fill their camp counselor roster at MDA Summer Camp in Spring Valley, N.Y.

Volunteers must be interested in helping children enjoy a fun-filled, carefree week at MDA Summer Camp. Locally, MDA Summer Camp takes place August 20-26, 2011 at Vision Center on Blindness.

“MDA summer camp is a special week of the year when children with muscle diseases can enjoy themselves in a true peer group where they are able to participate in a full range outdoor activities adapted to their abilities,” MDA Camp Director, Gloria English said. “Besides being great fun, camp helps youngsters grow and develop emotionally and socially— it’s truly the highlight of the year, for both campers and volunteers.” Volunteering at MDA Summer Camp is a rewarding and life-changing experience. The friendships formed and the memories created will last forever.

English explains, “Every camper is matched with their own volunteer counselor for the week. Fortunately, some men from the area have signed up, but we still need 25 more to complete our camp roster. With over 50 boys with muscle disease expected to attend MDA Summer Camp this August, there is a great need for more male volunteers to be their camp counselors for this very special week.”

Applicants must be at least 18 years old, US Citizens and able to lift and care for a young person between the ages of six and 17. A volunteer counselor will have the opportunity to become a close companion to a camper and help them with daily activities such at eating, bathing and dressing. Counselors will also assist campers with recreational activities such as adapted sports, fishing, swimming and arts and crafts.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and far-reaching professional and public health education.

To obtain a volunteer application or learn about other ways to support MDA’s summer camp program, call your local MDA office at (914) 345-5062. Additional information about volunteering at MDA summer camp is available online at www.mda.org/clinics/camp. For more information, contact Gloria English at (914) 345-5062 or genglish@mdausa.org.

Tuesday, August 17, 2010

Local Support Sends Youth to MDA Summer Camp

SPRING VALLEY, N.Y., August 17, 2010- Over 70 youth from cities throughout N.Y., N.J., and Conn. will be attending the Muscular Dystrophy Association’s (MDA) annual summer camp for kids at Visions Center on Blindness in Spring Valley, N.Y. from August 21 until August 28, 2010.

MDA’s camp programs offer the unique experience for young people with neuromuscular diseases to participate in a variety of events created to develop friendships, share interests and build self confidence. The camp consists of a week long session featuring typical camp activities adapted for youths between the ages of six and 17 with one of the over 40 neuromuscular diseases. The $800 camper fee is covered entirely by generous support from local corporations, groups and individuals who raise funds to support MDA and so no cost is incurred by the family.

This year, campers will enjoy a myriad of activities throughout the week including swimming, fishing, adaptive sports, scavenger hunts and arts and crafts. The annual VIP Day will take place on Wednesday, August 25. On VIP Day, prospective campers, media and sponsors can visit the camp. Counselors, campers and their families will enjoy a day of food, fun and activities and will get to mingle with other volunteers and sponsors, as well as local fire fighters. Campers will enjoy a Whiffle Ball tournament, arts and crafts, balloon making, face painting, a pipe and drum band, and other fun activities.

“MDA summer camp is the best week of the year when children with neuromuscular disease can enjoy themselves in true peer groups and can participate in full range outdoor activities adapted to their abilities,” MDA Camp Director Gloria English said. “Besides being great fun, camp helps youngsters grow and develop emotionally and socially-it’s truly the highlight of the year, for both campers and volunteers.”

MDA is a voluntary health agency dedicated to helping more than one million Americans affected by neuromuscular disorders through programs of worldwide research, comprehensive services, and far reaching professional and public health education.

For more information about this event please contact Gloria English at (914) 345-5062 or at genglish@mdausa.org.

Wednesday, June 30, 2010

Local Support Sends Youth to MDA Summer Camp


NEW HAVEN, Conn., June 30, 2010- Over 30 youth from cities throughout Conn. will be attending the Muscular Dystrophy Association’s (MDA) annual summer camp for kids at Camp Hemlocks in Hebron, Conn from July 11 until July 16.

MDA's camp programs offer the unique experience for young people with neuromuscular diseases to participate in a variety of events created to develop friendships, share interests and build self confidence. The camp consists of a week long session featuring typical camp activities adapted for youths between the ages of six and 17 with one of the over 40 neuromuscular diseases. The camper fee is covered entirely by generous support from local corporations, groups and individuals who raise funds to support MDA no cost is incurred by the family.

This year, campers will enjoy a myriad of activities throughout the week including archery, swimming, fishing, a climbing wall, and arts and crafts. Highlights of the week include a Magic Show, donated by a R.I. MDA family, a Harley Bike Show, sponsored by Harley Davidson’s New London HOG chapter, a scavenger hunt, movie night, carnival games and motorcycle rides.

The annual VIP Day will take place on Wednesday, July 14. On VIP Day, parents, prospective campers, media and sponsors can visit the camp. There is also a camp-wide carnival with special activities and a number of booths run by sponsors. Michael John of Long Island Sound will host a DJ booth where campers can learn how to DJ. There will also be a photography booth, hosted by Robert Jones of Robert Jones LLC, and a Nintendo Wii booth, hosted by the Hospital for Special Care. Campers will have the opportunity to explore an antique fire truck, provided by Bob Carlson and the Wallingford Fire Department. Campers can also participate in a team Wheelchair Derby Relay Race, sponsored by Joseph Michalak of Genzyme Therapeutics and Elizabeth Vernon of Athena Diagnostics. VIP Day will conclude with a Silent Auction event where campers use their “MDA Dollars” to bid on auction items. Campers can collect “MDA Dollars” from sponsors during VIP day festivities.

“MDA summer camp is a special week of the year when children with muscular dystrophy can enjoy themselves in true peer group and can participate in full range outdoor activities adapted to their abilities,” MDA Camp Director Jennifer Dain said. “Besides being great fun, camp helps youngsters grow and develop emotionally and socially-it’s truly the highlight of the year, for both campers and volunteers.”

Camp Hemlocks has been a longtime host of the MDA summer camp. Camp Hemlocks is located on 160 acres in Hebron, Conn. (just 25 minutes from Hartford). The camp overlooks Jones Pond and borders the Salmon River Forest.
MDA is a voluntary health agency dedicated to helping more than one million Americans affected by neuromuscular disorders through programs of worldwide research, comprehensive services, and far reaching professional and public health education.

For more information about this event please contact Jennifer Dain at (203) 248-6500 or jdain@mdausa.org.



Wednesday, June 16, 2010

MDA Seeks Volunteers for 2010 Summer Camp




WESTCHESTER, N.Y. - The Muscular Dystrophy Association (MDA) is searching for people who are looking for a rewarding and memorable experience this summer to join their summer camp. Volunteer counselors are needed to assist young people with neuromuscular diseases and help them enjoy a fun-filled week at MDA summer camp, which will take place from Aug. 21, 2010 to Aug. 28, 2010 at Visions Camp in Spring Valley, N.Y. With less than 100 days until camp begins we need volunteers to sign up now!

Applicants must be at least 18 years old and able to lift and care for a young person between the ages of six and 17. As a volunteer counselor, one will have the opportunity to become a close companion to a camper affected by neuromuscular disease and help them with daily activities such at eating, bathing and dressing. Counselors will also assist campers with recreational activities such as arts and crafts, swimming, and adapted sports.

“MDA summer camp is a special week of the year when children with neuromuscular disease can enjoy themselves in true peer group and can participate in full range outdoor activities adapted to their abilities,” MDA Camp Director, Gloria English said. “Besides being great fun, camp helps youngsters grow and develop emotionally and socially— it’s truly the highlight of the year, for both campers and volunteers.”

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and far-reaching professional and public health education.

Volunteering as a counselor at MDA summer camp is a rewarding and life-changing experience. The friendships formed and the memories created will last forever. To obtain a volunteer application or learn about other ways to support MDA’s summer camp program, call your local MDA office at (800) 572-1717. Additional information about volunteering at MDA summer camp is available online at www.mda.org/clinics/camp. For more information, contact Gloria English at (914) 345-5062 or genglish@mdausa.org.

2nd Annual "A Day At The Races" To Benefit MDA

Elmont, N.Y., June 3, 2010 – Several area businesses and organizations will join together for the second annual “A Day at the Races” event at the Belmont Race Track in Elmont, N.Y. on June 18, 2010 from 3 p.m. until 7 p.m. to raise funds for the 2010 Muscular Dystrophy Association (MDA) Summer Camp program.

The event will recognize participating businesses and organizations for raising money to send children to MDA Summer Camp at a cocktail party and awards ceremony with a silent auction. MDA’s Summer Camp, located in Spring Valley, N.Y., provides children who are living with a neuromuscular disease a one-week sleepover camp where they can make memories that will last a lifetime.

It costs $800 for one child to attend the camp and sponsorships for this event range from $1,600 to $10,000. A $10,000 sponsor will have the opportunity to name a race and have their picture taken in the winner’s circle. Last year, the event raised $50,000, which helped send over 60 children to camp. This year, MDA has set a goal to raise at least $80,000. It is through fundraising events such as this, and the generous efforts of participants, that MDA is able to send children from the N.Y. metro area to Summer Camp for free.

Companies and individuals who are participating in this event include Speed Wire, Inc., Corbel Communications, Paul Monzon, Brian Campbell, FJC Security, Tariq Kahn of UFOLI, Rollin Greens Bar, Jim Juruc of 7-Eleven, Tack Room Bar, Steiner Sports, Cino Bagels, National Association of Letter Carriers Branch 2062, National Association of Letter Carriers Branch 41, ERA Top Service Realty, and ERA Caputo Realty.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. medical and support services, and far-reaching professional and public health education.

For more information on this event please contact Brooke Eder at (203) 288-3500 or beder@mdausa.org or Stacie Haut at (516) 358-1012 or shaut@mdausa.org