Wednesday, July 27, 2011

Cranston Local 1363 Extends Support Beyond Rhode Island Statewide Fill the Boot Day

The Cranston Fire Department Local 1363 will hold their own Fill the Boot drive over Labor Day weekend, in addition to participating in the Rhode Island Statewide Fill the Boot day on Saturday, July 30, 2011, to benefit the Muscular Dystrophy Association (MDA).

All six Cranston stations will collect donations for the fight against neuromuscular disease on Saturday, September 3 and Sunday, September 4, 2011. Their six locations include 131 Park Avenue, 301 Pontiac Avenue, 1384 Cranston Street, 160 Sockanosset Cross Road,1041 Oaklawn Avenue, and 1155 Scituate Avenue.

Last year, Cranston Local 1363 raised $7,700 through their fill the boot efforts.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA combats neuromuscular diseases though programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education.

For more information, please contact Jane Young at (401) 732-1910 or jmyoung@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.

Brooklyn Business Leaders Get Locked Up for MDA

More than 100 business and civic leaders from throughout the Downtown Brooklyn area will be “arrested” and put “behind bars” for the Muscular Dystrophy Association’s (MDA) Telethon Executive Lock-Up sponsored by Morton’s The Steakhouse on Tuesday, August 16, 2011 from 3 to 5 p.m.

Accused of having big hearts and being heavily armed with kindness, the “jailbirds” volunteer to be part of MDA’s Lock-Up in order to raise “bail” by encouraging friends, family, co-workers and business contacts to make contributions to MDA that will directly benefit families in Long Island and the Tri-borough area living with progressive muscle diseases.

Each MDA jailbird’s “bail” is set at $1,000, which will allow him/her to be released for good behavior. The event will take place at Morton’s The Steakhouse, located at 339 Adams Street Brooklyn, NY 11201.

The Brooklyn Lock-Up has been designated a Telethon Lock-Up Event. Any donation of $500-$999 will be awarded a Silver Star and any donation of $1,000 or more will be given a Gold Star. These “stars” will be featured on the live broadcast of the MDA local Labor Day Telethon broadcasted by WWOR My 9 on Sunday, September 4, 2011 from 6 p.m. to midnight.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.

For more information on this event, please contact Miriam Tedesco at (516) 358-1012 or mtedesco@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.

Tuesday, July 26, 2011



MDA family Vyoma Raman and CT Fire Fighters recorded several Public Service Announcements with the midday host of 105.9 Renee DiNino at Clear Channel in Hartford. Listen for them on The River 105.9, WWYZ 92.5 FM, ESPN Radio 1410 AM, WKSS 95.7 FM, 101.3 FM, WELI 960 AM, and WAVZ 1300 AM.

Rhode Island Fire Fighters Kick Off Statewide Fill the Boot Campaign on 7/29 to Benefit the Muscular Dystrophy Associaiton

The International Association of Fire Fighters (IAFF) in Rhode Island will join the fight against neuromuscular disease by holding a statewide Fill the Boot drive for the Muscular Dystrophy Association (MDA) on Saturday, July 30, 2011.

A media kick off event will be held on Friday, July 29, 2011 at the Warwick Local 2748 Fire House, located at 111 Veterans Memorial Drive, Warwick, R.I. 02886. The event will begin at 11 a.m.

Local 2748 is the highest fundraising local in R.I. Representatives from participating fire departments will also be in attendance at the kick off event.

The following day, fire fighters across the state will be collecting donations for MDA at various locations in Rhode Island. Some of the fire departments involved include Cranston Local 1363, Pawtucket Local 1261, Providence Local 799, Smithfield Local 2050, Johnston Local 1950, North Smithfield Local 3984, and Warwick Local 2748. All proceeds will benefit MDA’s services, research programs, and support groups that benefit individuals and families in the local area.

This is the IAFF’s 57th year dedicating their time and efforts to MDA. Since 1954, they have raised over $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event, please contact Jane Young at (401) 732-1910 or jmyoung@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.

Monday, July 25, 2011

Connecticut Youngsters With Muscular Dystrophy and Community Volunteers Attend MDA Camp

They are extraordinary people doing extraordinary things. And they run the gamut of everyday people.

From wide-eyed, first-year volunteers to big-hearted professional fire fighters, to expert nurses and doctors, they all come together for one cause: the joy, laughter and dreams of the almost 40 children who annually enjoy Muscular Dystrophy Association’s Summer Camp in Hebron, Conn.

Summer Camp will be held at Easter Seals Camp Hemlocks, located at 85 Jones Street, Hebron, Conn., 06248, from August 7 to August 12, 2011. VIP day will be held on August 9th to recognize volunteers and sponsors who make the week-long session of camp possible.

Since MDA’s first camp in 1955, thousands of volunteers from throughout the country have annually helped children with neuromuscular diseases enjoy extraordinary weeks at MDA camp. It’s no different at East Seals Camp Hemlocks in 2011.

Baseball? Got it. Soccer? Yes. Water games? Check. Arts & Crafts? Indeed. This year, every day will be a holiday for campers, as they celebrate July 4th, Halloween, St. Patrick’s Day, among others. Camp dances, karaoke, swimming, and scavenger hunts round out the activities campers enjoy during their week at MDA camp.

“MDA summer camp is the week that our kids think about year-round,’’ said Stephen Fredericksen MDA Executive Director. “For one week out of the year, they get to be in an environment where having a neuromuscular disease is the norm, not the exception. They have the chance to experience barrier-free activities and make friendships and memories that last a lifetime.’’

The campers are featured guests in what is a loving and inspirational playground known as MDA camp. Stories are plentiful among the long-standing counselors, medical personnel and the children, who truly are the stars of each weeklong camp session. They will inspire you. They will amuse and amaze you with their stories of summer camp experiences.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive healthcare and support services, advocacy and education. See the award-winning MDA “Make A Muscle, Make A Difference” PSA.

In addition to funding more than 330 research teams worldwide, MDA maintains a national network of some 200 hospital-affiliated clinics; orchestrates hundreds of support groups for families affected by neuromuscular diseases; facilitates extraordinary local summer camp opportunities for thousands youngsters fighting progressive muscle diseases. Known globally for the MDA Labor Day Telethon, the Association is the first nonprofit to receive a Lifetime Achievement Award from the American Medical Association “for significant and lasting contributions to the health and welfare of humanity.”

In the Connecticut area, people with muscle diseases can receive excellent medical and health care services through the MDA clinics at Baystate Medical Center, MDA’s Adult Clinic at Yale School of Medicine, MDA’s Pediatric Clinic at Yale Pediatric Center, Hospital for Special Care, and St. Charles Hospital.

For more information, please contact Regional Public Affairs Coordinator Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org or Jennifer Dain, Health Care Service Coordinator, at (203) 248-6500 or jdain@mdausa.org.

Tuesday, July 19, 2011

Newark Fire Fighters Kick Off Fill the Boot Drive

The Newark Fire Department will kick off their fill the boot drive on August 20, 2011 at the Bergen Street Festival to raise funds for the Muscular Dystrophy Association (MDA) and help send children in N.J. to MDA Summer Camp.

Newark fire fighters will collect donations for MDA at various locations throughout the greater Newark area from Monday, August 22 to Friday, August 26, 2011. The fill the boot drive will take place during the morning and afternoons in two shifts and during community events in Newark. Specific times and locations will follow.

In case of inclimate weather, the Newark Fire Department will fill the boot from Tuesday, August 30 to Friday, September 2, 2011.

All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. Funds help send children fighting against neuromuscular disease to MDA Summer Camp.

MDA N.Y. Summer Camp, located in Spring Valley, N.Y., is a place offering a wide range of activities specially designed for young people who have limited mobility or use wheelchairs with neuromuscular disease. Camp programs are conducted in a relaxed atmosphere that gives campers an opportunity to develop lifelong friendships, share interests and build self-confidence.

The International Association of Fire Fighters (IAFF) is MDA’s largest national sponsor. Last year, Locals throughout the United States raised over $27.6 million to help individuals affected by neuromuscular disease. Since 1954, IAFF members have donated more than $450 million to MDA. Since 2005, the Newark Fire Department has raised over $50,000 to benefit MDA.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information on this event, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org or Vanessa Malfitano at (201) 843-4452 or vmalfitano@mdausa.org.

New Haven Telethon Executive Lock Up

Local business leaders will be heading to “jail” on Thursday, August 18, 2011 from 11 a.m. to 2:30 p.m. at Leon’s Restaurant in order to raise their “bail” for the Muscular Dystrophy Association (MDA).

Community business leaders will be arrested at their place of business and transported to Leon’s Restaurant, located at 500 Long Wharf Drive, New Haven, Conn 06511, to serve their time at the local MDA Lock-Up. The “jailbirds” will be served complimentary “jail” food, while they each attempt to raise at least $2,400 in bail money.

Last year, local “jailbirds” raised over $36,000 in bail money, all of which went towards the fights against neuromuscular disease. This year the local MDA has set a goal to raise $50,000 at the event.

Steve MacLaughlin, Meteorologist for WTNH, will be the Master of Ceremonies at the event. He hosted the Labor Day Telethon for Muscular Dystrophy at WPHL in Philadelphia and KXAS in North Texas. MacLaughlin remains active with MDA throughout the year.

The “jailbirds” are asked to spend a minimum of one hour, but encouraged to stay longer. There will be contests and prizes throughout the hour.

This is the second time the New Haven Lock-Up has been designated a Telethon Lock-Up Event. Any donation of $250-$499 will be awarded a Silver Star and any donation of $500 or more will be given a Gold Star. These “stars” will be featured on the live broadcast of the MDA local Labor Day Telethon broadcasted by FOX 61 on Sunday, September 4, and Monday, September 5, 2011.

MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.

For more information on this event or to register as a “jailbird” (or help fundraise for one), please contact Stephen Fredericksen at (203) 248-6500 or sfredericksen@mdausa.org, Chasity Bothman at (203)248-6500 or cbothman@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.