James Lacerenza, a 24 year-old resident of Stamford, Conn., helps make a difference for children fighting neuromuscular disease with a grant from the Pepsi Refresh Project, which funds ideas that refresh and improve the community worldwide.
Lacerenza placed eighth out of fifteen in the $10,000 tier of the Pepsi competition. The grant will benefit MDA’s New York Summer Camp program, where children with neuromuscular disease can enjoy outdoor activities adapted to meet their needs.
It costs $800 for one child to attend camp. The Association covers this cost, so the family does not incur any expenses. The grant will allow 11 children to attend MDA Summer Camp for free.
The Pepsi Refresh Project selects winners based on the number of votes a given idea receives. Contestants use social media websites, Pepsi products, and other promotional tactics to gain votes. This is Lacerenza’s fourth time competing in the Pepsi Refresh Project.
“We had tremendous help from MDA friends and supporters at the International Association of Firefighters, The Arizona Diamondbacks, World Wrestling Entertainment, Kohl's, Garden Catering - the list of people is endless,” said Lacerenza.
Over the years, Lacerenza has raised $107,833 for MDA Summer Camp through various fundraisers and support from the public. His efforts have allowed approximately 130 children attend camp free of charge.
In 1999, Lacerenza began volunteering with MDA in the Hawthorne, N.Y. District Office. He is the founder of the ConnectiKids Summer Camp Fund, an organization dedicated to sending children with neuromuscular disease to MDA Summer Camp in New York.
Today, Lacerenza fundraises for the Association, volunteers annually at the local MDA Labor Day Telethon and organizes the Shamrocks Against Dystrophy campaign in his local area.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org or Meredith Buono-Sauro at (914) 345-5062 or msauro@mdausa.org.
This blog covers news from the district offices in Providence, Hartford, New Haven, Maywood, Tinton Falls, Hawthorne and Western Long Island
Wednesday, October 26, 2011
Wednesday, October 12, 2011
N.J. Business Leaders Raise "Bail" for Westfield Lock-Up
The Muscular Dystrophy Association (MDA) will send local business leaders to “jail” on Tuesday, October 25, 2011 at The Jolly Trolley in Westfield, N.J. from 11 a.m. to 2 p.m. to raise “bail” for MDA.
MDA will “lock-up” community business leaders and arrest them at their place of business. Transportation will be provided by local police departments to The Jolly Trolley, located at 411 North Ave E, Westfield, NJ 07090.
Each “jailbird” will raise $1,600 in the weeks leading up to the event, then visit the “jailhouse” to turn in their bail, enjoy MDA’s version of “gourmet bread and water” otherwise known as lunch, and have the opportunity to network with colleagues and friends. The $1,600 bail benefits funding for MDA’s week-long overnight camp, in Spring Valley, N.Y., for children ages 6-17, served by The Association. MDA aims to raise at least $50,000 from the event.
Business leaders from Westfield, Fanwood, Plainfield, South Plainfield, Clark, Cranford, and Kenilworth are invited to participate.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event or to register as a “jailbird”, please contact Erin Dresnick at (201) 843-4452 or edresnick@mdausa.org.
MDA will “lock-up” community business leaders and arrest them at their place of business. Transportation will be provided by local police departments to The Jolly Trolley, located at 411 North Ave E, Westfield, NJ 07090.
Each “jailbird” will raise $1,600 in the weeks leading up to the event, then visit the “jailhouse” to turn in their bail, enjoy MDA’s version of “gourmet bread and water” otherwise known as lunch, and have the opportunity to network with colleagues and friends. The $1,600 bail benefits funding for MDA’s week-long overnight camp, in Spring Valley, N.Y., for children ages 6-17, served by The Association. MDA aims to raise at least $50,000 from the event.
Business leaders from Westfield, Fanwood, Plainfield, South Plainfield, Clark, Cranford, and Kenilworth are invited to participate.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event or to register as a “jailbird”, please contact Erin Dresnick at (201) 843-4452 or edresnick@mdausa.org.
CT Business Leaders Get "Locked Up" in West Hartford
The Muscular Dystrophy Association (MDA) will send local business leaders to “jail” on Tuesday, October 25, 2011 at Rizzuto’s Wood-Fired Kitchen & Bar from 11 a.m. to 3 p.m. to raise “bail” for MDA.
MDA will “lock-up” community business leaders and arrest them at their place of business. They will be transported by “undercover officers” to Rizzuto’s Kitchen & Bar, located at 111 Memorial Road, West Hartford, CT 06107.
Rizzuto’s Kitchen & Bar will serve the “jailbirds” complimentary “jail” food, while each attempts to raise at least $2,400 in bail money by contacting friends, family members and business colleagues for donations to MDA. Money raised will support MDA Summer Camp by paying for sponsorships and cabins to house children. It costs $800 for one child to be sent to camp. Jailbirds that reach their “bail” goal will send three children to camp with all expenses paid.
Participants will be asked to serve time at Rizzuto’s in one-hour increments, starting at 11 a.m. and the last hour beginning at 2 p.m. The “jailbirds” are encouraged to spend more time “locked up” if desired. There will be contests and prizes each hour. Jailbirds will have their mug shot taken and interact with other business and community leaders attending the event in support of MDA’s mission. They will also have the opportunity to meet an individual or family served by the Association.
A wide variety of businesses will send jailbirds to go behind bars for MDA, including Private Capital Group, University of Hartford, Sovereign Bank, West Hartford Public Schools, American School for the Deaf, Connecticut Bank & Trust, and more.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. Locally, the Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org. To learn more about MDA or to sign up as a “jailbird”, contact Ellen Kellie at (860)633-4466 or ekellie@mdausa.org.
MDA will “lock-up” community business leaders and arrest them at their place of business. They will be transported by “undercover officers” to Rizzuto’s Kitchen & Bar, located at 111 Memorial Road, West Hartford, CT 06107.
Rizzuto’s Kitchen & Bar will serve the “jailbirds” complimentary “jail” food, while each attempts to raise at least $2,400 in bail money by contacting friends, family members and business colleagues for donations to MDA. Money raised will support MDA Summer Camp by paying for sponsorships and cabins to house children. It costs $800 for one child to be sent to camp. Jailbirds that reach their “bail” goal will send three children to camp with all expenses paid.
Participants will be asked to serve time at Rizzuto’s in one-hour increments, starting at 11 a.m. and the last hour beginning at 2 p.m. The “jailbirds” are encouraged to spend more time “locked up” if desired. There will be contests and prizes each hour. Jailbirds will have their mug shot taken and interact with other business and community leaders attending the event in support of MDA’s mission. They will also have the opportunity to meet an individual or family served by the Association.
A wide variety of businesses will send jailbirds to go behind bars for MDA, including Private Capital Group, University of Hartford, Sovereign Bank, West Hartford Public Schools, American School for the Deaf, Connecticut Bank & Trust, and more.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. Locally, the Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org. To learn more about MDA or to sign up as a “jailbird”, contact Ellen Kellie at (860)633-4466 or ekellie@mdausa.org.
Wednesday, September 21, 2011
TSI Harley-Davidson Holds 14th Annual Black and Blue Ball
TSI Harley-Davidson will hold their 14th annual Black and Blue Ball in South Windsor, Conn. on Friday, October 14, 2011 to benefit the Muscular Dystrophy Association (MDA).
The benefit will be held at Maneeley’s Banquet Facility, located on 65 Rye Street, South Windsor, Conn, starting at 6 p.m. The night will start with a cocktail reception and hor d’oeurvres. Guests can bid at the live, silent camp auction. An award ceremony and honoree recognition will follow. Entertainment will be provided and hosted by Fox 61 and WCCC.
The Black and Blue Ball has raised in excess of $500,000 over the past nine years. In 2010, the Ball raised more than $50,000. This year, corporate and individual tables are available. Responses for attendance are requested by September 30, 2011.
Money raised will support MDA Summer Camp, by paying for sponsorships and cabins to house children. The various levels of sponsorship range from summer camp sponsor, which costs $800 for one child to be sent to camp for free, up to a title sponsor, costing $5,000 to support MDA. This level includes two tables for ten with preferred seating, complimentary drink package, business advertisement, a plaque presentation, and recognition to the public.
The event’s name originates from MDA’s longstanding relationship with Harley-Davidson. Early participants arrived in “black” leather and “blue” denim. Today, the Black and Blue Ball is a highlight among the area’s social events, drawing individuals and companies from across Connecticut and western Massachusetts together on the road to a cure for neuromuscular disease.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org or Christine Urciuoli at (860) 633-4466 or curciuoli@mdausa.org.
The benefit will be held at Maneeley’s Banquet Facility, located on 65 Rye Street, South Windsor, Conn, starting at 6 p.m. The night will start with a cocktail reception and hor d’oeurvres. Guests can bid at the live, silent camp auction. An award ceremony and honoree recognition will follow. Entertainment will be provided and hosted by Fox 61 and WCCC.
The Black and Blue Ball has raised in excess of $500,000 over the past nine years. In 2010, the Ball raised more than $50,000. This year, corporate and individual tables are available. Responses for attendance are requested by September 30, 2011.
Money raised will support MDA Summer Camp, by paying for sponsorships and cabins to house children. The various levels of sponsorship range from summer camp sponsor, which costs $800 for one child to be sent to camp for free, up to a title sponsor, costing $5,000 to support MDA. This level includes two tables for ten with preferred seating, complimentary drink package, business advertisement, a plaque presentation, and recognition to the public.
The event’s name originates from MDA’s longstanding relationship with Harley-Davidson. Early participants arrived in “black” leather and “blue” denim. Today, the Black and Blue Ball is a highlight among the area’s social events, drawing individuals and companies from across Connecticut and western Massachusetts together on the road to a cure for neuromuscular disease.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org or Christine Urciuoli at (860) 633-4466 or curciuoli@mdausa.org.
Friday, August 12, 2011
Kelly's Kone Konnection in Connecticut Names 2 Flavors in Honor of MDA
Kelly Stone of Kelly’s Kone Konnection generously named two ice cream flavors for MDA to help promote the 2011 MDA Labor Day Telethon. This is the fourth consecutive year that Kelly’s Kone Konnection has named flavors to help MDA’s mission.
Members of the local Hamden, Conn. community can now enjoy the special edition flavors “Make a Mocha Chip Muscle” and “MDA Raising More Cookie Dough” during the month of August at Kelly’s Kone Konnection, located at 2583 Whitney Ave. in Hamden, Conn.
Kelly’s Kone Konnection’s support in helping MDA promote the Telethon will increase viewership in the Hamden area, which will in turn help local families and individuals affected by neuromuscular disease.
The 2011 MDA Labor Day Telethon will broadcast during Labor Day Weekend on Sept. 4 from the Mohegan Sun Casino on Fox61 WTIC. Contributions to the Telethon will help fund diagnostic and follow-up care for people with muscular dystrophy, assistance with the purchase and repair of wheelchairs and leg braces, physical, occupational and respiratory therapy consultations, assistance with the purchase of communication devices, medical and scientific conferences and much more. Other services include support groups and MDA’s Annual Summer Camp for children with neuromuscular diseases.
MDA is a voluntary health agency dedicated to helping more than one million Americans affected by neuromuscular disorders through programs of worldwide research, comprehensive services, and far reaching professional and public health education.
Once again, on behalf of MDA and the families that we serve, thank you Kelly’s Kone Konnection for helping the fight against neuromuscular disease.
Members of the local Hamden, Conn. community can now enjoy the special edition flavors “Make a Mocha Chip Muscle” and “MDA Raising More Cookie Dough” during the month of August at Kelly’s Kone Konnection, located at 2583 Whitney Ave. in Hamden, Conn.
Kelly’s Kone Konnection’s support in helping MDA promote the Telethon will increase viewership in the Hamden area, which will in turn help local families and individuals affected by neuromuscular disease.
The 2011 MDA Labor Day Telethon will broadcast during Labor Day Weekend on Sept. 4 from the Mohegan Sun Casino on Fox61 WTIC. Contributions to the Telethon will help fund diagnostic and follow-up care for people with muscular dystrophy, assistance with the purchase and repair of wheelchairs and leg braces, physical, occupational and respiratory therapy consultations, assistance with the purchase of communication devices, medical and scientific conferences and much more. Other services include support groups and MDA’s Annual Summer Camp for children with neuromuscular diseases.
MDA is a voluntary health agency dedicated to helping more than one million Americans affected by neuromuscular disorders through programs of worldwide research, comprehensive services, and far reaching professional and public health education.
Once again, on behalf of MDA and the families that we serve, thank you Kelly’s Kone Konnection for helping the fight against neuromuscular disease.
A&P Family of Supermarkets Gets "Locked Up" on the Hudson
A&P Family of Supermarkets, among other local businesses, will support the Muscular Dystrophy Association (MDA) by getting locked up on Tuesday, September 20, 2011 at the Wicked Wolf Tavern in Hoboken, N.J. to raise “bail” for MDA.
John Bincoletto of A&P Family of Supermarkets in Hoboken is a repeat offender for the 2011 Lock Up on the Hudson. In 2010, he raised $2,300 and will be participating again this year. A&P Family of Supermarkets has also supported MDA in the Shamrock Against Dystrophy program. The Hoboken location raised over $9,500.
Bincoletto and fellow community business leaders will be arrested at their place of business and transported by local police departments to the Wicked Wolf Tavern, located at 120 Sinatra Drive, Hoboken, N.J. 07030, to serve their time at the local MDA Lock-Up from 11 a.m. to 2 p.m.
Each Jailbird will raise $1,600 in the weeks leading up to the event and then will visit the “jailhouse” to turn in their bail, enjoy MDA’s version of “gourmet bread and water” otherwise known as lunch, and have the opportunity to network with colleagues and friends. The $1,600 bail goes toward funding MDA’s week-long overnight camp, in Spring Valley, N.Y., for children ages 6-17, served by The Association. MDA aims to raise at least $50,000 from the event.
Visit https://www.joinmda.org/lockuponthehudson2011 to receive more information or to participate in the Lock Up.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event or to register as a “jailbird”, please contact Vanessa Malfitano at (201) 843-4452 or vmalfitano@mdausa.org, Jessica Powers of Wicked Wolf Tavern at jpowers@wickedwolfhoboken.com, or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
John Bincoletto of A&P Family of Supermarkets in Hoboken is a repeat offender for the 2011 Lock Up on the Hudson. In 2010, he raised $2,300 and will be participating again this year. A&P Family of Supermarkets has also supported MDA in the Shamrock Against Dystrophy program. The Hoboken location raised over $9,500.
Bincoletto and fellow community business leaders will be arrested at their place of business and transported by local police departments to the Wicked Wolf Tavern, located at 120 Sinatra Drive, Hoboken, N.J. 07030, to serve their time at the local MDA Lock-Up from 11 a.m. to 2 p.m.
Each Jailbird will raise $1,600 in the weeks leading up to the event and then will visit the “jailhouse” to turn in their bail, enjoy MDA’s version of “gourmet bread and water” otherwise known as lunch, and have the opportunity to network with colleagues and friends. The $1,600 bail goes toward funding MDA’s week-long overnight camp, in Spring Valley, N.Y., for children ages 6-17, served by The Association. MDA aims to raise at least $50,000 from the event.
Visit https://www.joinmda.org/lockuponthehudson2011 to receive more information or to participate in the Lock Up.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event or to register as a “jailbird”, please contact Vanessa Malfitano at (201) 843-4452 or vmalfitano@mdausa.org, Jessica Powers of Wicked Wolf Tavern at jpowers@wickedwolfhoboken.com, or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
Waterbury Fire Department Holds Annual Softball Tournament
The Waterbury Fire Department Local 1339 will host their annual Softball Tournament on Saturday, August 20 and Sunday, August 21, 2011 to benefit the Muscular Dystrophy Association (MDA).
The tournament features 13 men’s teams on Saturday and 13 Co-Ed teams on Sunday. The event will be held at Buck’s Hill Park, located at 88 Montoe Road in Waterbury, from 8 a.m. to 10 p.m. each day.
Registration will occur until a week prior to the event for $275 per team. Trophies will be awarded for first through fourth place teams, along with other prizes. Plaques will be given to all that participate.
The tournament will benefit the Waterbury Fire Department’s Fill the Boot campaign for MDA. In 2010, the tournament raised about $6,500 to benefit Waterbury’s efforts for MDA.
Fill the Boot drives collect donations for the fight against neuromuscular disease nationwide. All proceeds benefit MDA’s services, research programs, and support groups that benefit individuals and families in the local area.
The Waterbury Fire Department kicked off their fill effort this past weekend at the Brass City Mall and Stop & Shop Plaza. They will continue filling Fridays and Saturdays throughout August.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
To register your team for the softball tournament, please contact Stan Stasaitis at 203-206-5189. For more information on this event, please contact Stephen Fredericksen at (203) 248-6500 or sfredericksen@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
The tournament features 13 men’s teams on Saturday and 13 Co-Ed teams on Sunday. The event will be held at Buck’s Hill Park, located at 88 Montoe Road in Waterbury, from 8 a.m. to 10 p.m. each day.
Registration will occur until a week prior to the event for $275 per team. Trophies will be awarded for first through fourth place teams, along with other prizes. Plaques will be given to all that participate.
The tournament will benefit the Waterbury Fire Department’s Fill the Boot campaign for MDA. In 2010, the tournament raised about $6,500 to benefit Waterbury’s efforts for MDA.
Fill the Boot drives collect donations for the fight against neuromuscular disease nationwide. All proceeds benefit MDA’s services, research programs, and support groups that benefit individuals and families in the local area.
The Waterbury Fire Department kicked off their fill effort this past weekend at the Brass City Mall and Stop & Shop Plaza. They will continue filling Fridays and Saturdays throughout August.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
To register your team for the softball tournament, please contact Stan Stasaitis at 203-206-5189. For more information on this event, please contact Stephen Fredericksen at (203) 248-6500 or sfredericksen@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
Thursday, August 11, 2011
Southbury Training School Local S15 Fills the Boot This Weekend
The Southbury Training School Local S15 will be filling the boot for the Muscular Dystrophy Association (MDA) from Thursday, August 11 to Saturday, August 13, 2011 in Southbury, Conn.
Local S15 will collect donations for the fight against neuromuscular disease at the Southbury Training School, located at 1461 S Britain Rd, Southbury, Conn., 06488, from 2 to 4 p.m. on Thursday and 6 to 9 a.m. and 2 to 4 p.m. on Friday.
On Saturday, August 13, members will fill the boot at the K-Mart Plaza, located at 100 Main Street North, from 8:30 to 11 a.m. Funds raised go to the Association to support summer camp, research, and programs within the community.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event, please contact Stephen Fredericksen at (203) 248-6500 or sfredericksen@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
Local S15 will collect donations for the fight against neuromuscular disease at the Southbury Training School, located at 1461 S Britain Rd, Southbury, Conn., 06488, from 2 to 4 p.m. on Thursday and 6 to 9 a.m. and 2 to 4 p.m. on Friday.
On Saturday, August 13, members will fill the boot at the K-Mart Plaza, located at 100 Main Street North, from 8:30 to 11 a.m. Funds raised go to the Association to support summer camp, research, and programs within the community.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event, please contact Stephen Fredericksen at (203) 248-6500 or sfredericksen@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
Monday, August 8, 2011
East Longmeadow Local 2426 Fills the Boot for MDA
The East Longmeadow Fire Department Local 2426 will fill the boot for the Muscular Dystrophy Association (MDA) on Saturday, August 13 and Sunday, August 14, 2011 from 9 a.m. to 3 p.m.
Fire fighters will volunteer their time to collect donations for the fight against neuromuscular disease at the Rotary in East Longmeadow, Mass.
In 2010, the East Longmeadow Fire Department raised $10,000 for the Association. Over the past eight years, they have raised approximately $65,000 to benefit MDA.
All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. Funds help send children fighting against neuromuscular disease to MDA Summer Camp.
Local 2426 is a member of The International Association of Fire Fighters (IAFF), which is MDA’s largest national sponsor. Last year, locals throughout the United States raised over $27.6 million to help individuals affected by neuromuscular disease. Since 1954, IAFF members have donated more than $450 million to MDA.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event, please contact Dan Marquis at (860) 633-4466 or dmarquis@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
Fire fighters will volunteer their time to collect donations for the fight against neuromuscular disease at the Rotary in East Longmeadow, Mass.
In 2010, the East Longmeadow Fire Department raised $10,000 for the Association. Over the past eight years, they have raised approximately $65,000 to benefit MDA.
All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. Funds help send children fighting against neuromuscular disease to MDA Summer Camp.
Local 2426 is a member of The International Association of Fire Fighters (IAFF), which is MDA’s largest national sponsor. Last year, locals throughout the United States raised over $27.6 million to help individuals affected by neuromuscular disease. Since 1954, IAFF members have donated more than $450 million to MDA.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event, please contact Dan Marquis at (860) 633-4466 or dmarquis@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
Friday, August 5, 2011
MDA Honors Monroe Resident with Top Achievement Award for Connecticut
The Muscular Dystrophy Association has named Paul Breslawski of Monroe the recipient of its 2011 Robert Ross Personal Achievement Award for Connecticut.
Breslawski, 22, was selected for MDA’s highest achievement award in Connecticut due to his outstanding academic achievements and his dedication and commitment to serving as a role model for others with disabilities.
Breslawski is affected by Duchenne muscular dystrophy, which causes severe muscle weakness and atrophy. He uses a power chair for mobility and has had a cardiac defibrillator implanted to help his heart beat normally.
In May, Breslawski graduated from Sacred Heart University summa cum laude with a degree in political science. He has a strong interest in government and politics, served as an intern in the office of Congressman Jim Himes in Bridgeport in 2009. He also worked on the campaign for Governor Dan Malloy in 2010.
Other notable honors Breslawski received upon graduation include the Gold Medal of Excellence in Political Science and third place in the Writing Across the Curriculum contest for a research paper on Chief Justice Harlan F. Stone in his Constitutional Law course.
Breslawski plans to attend either graduate school to become a social studies teacher, or law school. He credits his family, friends and faith in God with helping him to maintain a positive attitude and keep going, no matter what his muscle disease may throw at him. In addition to politics, Breslawski enjoys video games and rock music.
“It gives me great joy to announce that Paul Breslawski is Connecticut’s Robert Ross MDA Personal Achievement Award recipient for 2011,” said MDA President & CEO Gerald C. Weinberg. “He is a wonderful example of the kind of leadership that people with disabilities contribute to their communities every day.”
About the award
Breslawski was selected as Connecticut’s state award recipient after having been selected for a local award by MDA’s Westchester Area Chapter.
One person will be selected from among all the state honorees around the country and named MDA’s national 2012 Robert Ross Personal Achievement Award recipient.
The award is named in memory of Robert Ross, MDA’s longtime chief executive who died in 2006. Ross created the Personal Achievement Award program in 1992 to recognize the exemplary accomplishments and community service of people who have any of the 40-plus neuromuscular diseases for which MDA seeks treatments and cures.
MDA’s 2011 national award recipient is Thomas Hale Arrington III of Chesapeake, Va. Mr. Arrington is a clean-energy entrepreneur who founded Atlantic Wind Energy, a company that promotes the use of renewable energy. He currently is president of Tidewater Biodiesel, a company that plans to produce fuel from waste vegetable oil. Arrington, 48, has facioscapulohumeral muscular dystrophy.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For residents with muscular dystrophy and related diseases in the Monroe area, MDA maintains a clinic at White Plains Hospital and Medical Center in White Plains, N.Y.
The 46th annual MDA Labor Day Telethon will air Sunday, Sept. 4 from 6 p.m. to midnight on FOX61 in the Monroe area.
Breslawski, 22, was selected for MDA’s highest achievement award in Connecticut due to his outstanding academic achievements and his dedication and commitment to serving as a role model for others with disabilities.
Breslawski is affected by Duchenne muscular dystrophy, which causes severe muscle weakness and atrophy. He uses a power chair for mobility and has had a cardiac defibrillator implanted to help his heart beat normally.
In May, Breslawski graduated from Sacred Heart University summa cum laude with a degree in political science. He has a strong interest in government and politics, served as an intern in the office of Congressman Jim Himes in Bridgeport in 2009. He also worked on the campaign for Governor Dan Malloy in 2010.
Other notable honors Breslawski received upon graduation include the Gold Medal of Excellence in Political Science and third place in the Writing Across the Curriculum contest for a research paper on Chief Justice Harlan F. Stone in his Constitutional Law course.
Breslawski plans to attend either graduate school to become a social studies teacher, or law school. He credits his family, friends and faith in God with helping him to maintain a positive attitude and keep going, no matter what his muscle disease may throw at him. In addition to politics, Breslawski enjoys video games and rock music.
“It gives me great joy to announce that Paul Breslawski is Connecticut’s Robert Ross MDA Personal Achievement Award recipient for 2011,” said MDA President & CEO Gerald C. Weinberg. “He is a wonderful example of the kind of leadership that people with disabilities contribute to their communities every day.”
About the award
Breslawski was selected as Connecticut’s state award recipient after having been selected for a local award by MDA’s Westchester Area Chapter.
One person will be selected from among all the state honorees around the country and named MDA’s national 2012 Robert Ross Personal Achievement Award recipient.
The award is named in memory of Robert Ross, MDA’s longtime chief executive who died in 2006. Ross created the Personal Achievement Award program in 1992 to recognize the exemplary accomplishments and community service of people who have any of the 40-plus neuromuscular diseases for which MDA seeks treatments and cures.
MDA’s 2011 national award recipient is Thomas Hale Arrington III of Chesapeake, Va. Mr. Arrington is a clean-energy entrepreneur who founded Atlantic Wind Energy, a company that promotes the use of renewable energy. He currently is president of Tidewater Biodiesel, a company that plans to produce fuel from waste vegetable oil. Arrington, 48, has facioscapulohumeral muscular dystrophy.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For residents with muscular dystrophy and related diseases in the Monroe area, MDA maintains a clinic at White Plains Hospital and Medical Center in White Plains, N.Y.
The 46th annual MDA Labor Day Telethon will air Sunday, Sept. 4 from 6 p.m. to midnight on FOX61 in the Monroe area.
MDA Honors Hope Valley Resident with Top Achievement Award for Rhode Island
The Muscular Dystrophy Association has named Shane Bourque of Hope Valley the recipient of its 2011 Robert Ross Personal Achievement Award for Rhode Island.
Bourque, 19, was selected for MDA’s highest achievement award in Rhode Island for his courageous spirit and outstanding community service in behalf of people with disabilities.
Bourque has Becker muscular dystrophy, which causes muscle weakness and atrophy. He recently finished his first year at Rhode Island College, majoring in journalism and broadcasting. Since receiving his diagnosis at the age of 7, Bourque and his family have been very active in a wide variety of MDA events.
In addition to serving two terms (2004 and 2005) as MDA’s Goodwill Ambassador for Rhode Island, Bourque has been involved with the local broadcast of the MDA Labor Day Telethon, and he and his family were featured nationally during the 2003 Telethon in Los Angeles. Over the years, he has been actively involved in many MDA fundraising events including Shamrock sales and Muscle Walks. He also created a piece of artwork which he donated to the MDA Art Collection.
“It gives me great joy to announce that Shane Bourque is Rhode Island’s Robert Ross MDA Personal Achievement Award recipient for 2011,” said MDA President & CEO Gerald C. Weinberg. “He is a wonderful example of the kind of leadership that people with disabilities contribute to their communities every day.”
Bourque was selected as Rhode Island’s state award recipient after having been selected for a local award by MDA’s Greater Rhode Island Chapter.
One person will be selected from among all the state honorees around the country and named MDA’s national 2012 Robert Ross Personal Achievement Award recipient.
The award is named in memory of Robert Ross, MDA’s longtime chief executive who died in 2006. Ross created the Personal Achievement Award program in 1992 to recognize the exemplary accomplishments and community service of people who have any of the 40-plus neuromuscular diseases for which MDA seeks treatments and cures.
MDA’s 2011 national award recipient is Thomas Hale Arrington III of Chesapeake, Va. Mr. Arrington is a clean-energy entrepreneur who founded Atlantic Wind Energy, a company that promotes the use of renewable energy. He currently is president of Tidewater Biodiesel, a company that plans to produce fuel from waste vegetable oil. Arrington, 48, has facioscapulohumeral muscular dystrophy.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For residents with muscular dystrophy and related diseases in Rhode Island, MDA maintains a clinic at Rhode Island Hospital in Providence.
The 46th annual MDA Labor Day Telethon will air Sunday, Sept. 4 on from 6 p.m. to midnight on WLNE-ABC 6 in Rhode Island.
Wednesday, August 3, 2011
Connecticut Summer Camp 8/7 - 8/12
Starting Sunday, August 7 to Friday, August 12, 2011, the Muscular Dystrophy Association will host its annual summer camp for children with neuromuscular diseases in Hebron, Connecticut at East Seals Camp Hemlocks. Camp Hemlocks serves campers throughout the entire state, including Hartford, New Haven, Litchfield, New London, Tolland, and Fairfield counties, and parts of Rhode Island and Massachusetts. This year for campers, every day is a holiday, where each day celebrates something different. Holidays include St. Patrick's Day, Halloween, July 4th and more.
Since MDA’s first camp in 1955, thousands of volunteers from throughout the country have annually helped children with neuromuscular diseases enjoy extraordinary weeks at MDA camp. It’s no different at East Seals Camp Hemlocks in 2011.
Baseball? Got it. Soccer? Yes. Water games? Check. Arts & Crafts? Indeed. This year, every day will be a holiday for campers, as they celebrate July 4th, Halloween, St. Patrick’s Day, among others. Camp dances, karaoke, swimming, and scavenger hunts round out the activities campers enjoy during their week at MDA camp.
“MDA summer camp is the week that our kids think about year-round,’’ said Stephen Fredericksen MDA Executive Director. “For one week out of the year, they get to be in an environment where having a neuromuscular disease is the norm, not the exception. They have the chance to experience barrier-free activities and make friendships and memories that last a lifetime.’’
The campers are featured guests in what is a loving and inspirational playground known as MDA camp. Stories are plentiful among the long-standing counselors, medical personnel and the children, who truly are the stars of each week long camp session. They will inspire you. They will amuse and amaze you with their stories of summer camp experiences.
MDA Summer Camp will hold a VIP/Media day on Tuesday, August 9, 2011. This day offers incredible visuals and fun moments involving many notable business and community leaders. MDA can arrange for the media to hold meaningful interviews with children, parents and volunteers before, during or after summer sessions.
Information on VIP Day:
WHO: Some 40 area children with muscular dystrophy and related diseases, plus scores of volunteer counselors and business and civic leaders visiting the Muscular Dystrophy Association summer camp.
WHAT: VIP/Media Day -- A magical day during an extraordinary week of fun-filled activities, exuberance and freedom from the restraints of “no, you can’t do that!” for local youngsters with mobility challenges caused by progressive neuromuscular disorders.
Get exceptional B-roll footage and interview some remarkable children, or exceptional Hebron community volunteers serving as counselors, nurses and physicians, some using their own vacation time to make it so. Hear why local MDA sponsors are involved year-round, and why many people contribute to MDA to help send kids to camp at an average cost of $800 per camper.
WHEN: Tuesday, August 9, 2011 at 11:30AM
WHERE: East Seals Camp Hemlocks
85 Jones Street
Hebron, CT 06248
(860) 228-9496
CONTACT: Valerie D’Angiolini, Regional Public Affairs Coordinator, at (203) 288-3500, vdangiolini@mdausa.org or Jennifer Dain, Health Care Service Coordinator, at (203) 248-6500 or jdain@mdausa.org.
Since MDA’s first camp in 1955, thousands of volunteers from throughout the country have annually helped children with neuromuscular diseases enjoy extraordinary weeks at MDA camp. It’s no different at East Seals Camp Hemlocks in 2011.
Baseball? Got it. Soccer? Yes. Water games? Check. Arts & Crafts? Indeed. This year, every day will be a holiday for campers, as they celebrate July 4th, Halloween, St. Patrick’s Day, among others. Camp dances, karaoke, swimming, and scavenger hunts round out the activities campers enjoy during their week at MDA camp.
“MDA summer camp is the week that our kids think about year-round,’’ said Stephen Fredericksen MDA Executive Director. “For one week out of the year, they get to be in an environment where having a neuromuscular disease is the norm, not the exception. They have the chance to experience barrier-free activities and make friendships and memories that last a lifetime.’’
The campers are featured guests in what is a loving and inspirational playground known as MDA camp. Stories are plentiful among the long-standing counselors, medical personnel and the children, who truly are the stars of each week long camp session. They will inspire you. They will amuse and amaze you with their stories of summer camp experiences.
MDA Summer Camp will hold a VIP/Media day on Tuesday, August 9, 2011. This day offers incredible visuals and fun moments involving many notable business and community leaders. MDA can arrange for the media to hold meaningful interviews with children, parents and volunteers before, during or after summer sessions.
Information on VIP Day:
WHO: Some 40 area children with muscular dystrophy and related diseases, plus scores of volunteer counselors and business and civic leaders visiting the Muscular Dystrophy Association summer camp.
WHAT: VIP/Media Day -- A magical day during an extraordinary week of fun-filled activities, exuberance and freedom from the restraints of “no, you can’t do that!” for local youngsters with mobility challenges caused by progressive neuromuscular disorders.
Get exceptional B-roll footage and interview some remarkable children, or exceptional Hebron community volunteers serving as counselors, nurses and physicians, some using their own vacation time to make it so. Hear why local MDA sponsors are involved year-round, and why many people contribute to MDA to help send kids to camp at an average cost of $800 per camper.
WHEN: Tuesday, August 9, 2011 at 11:30AM
WHERE: East Seals Camp Hemlocks
85 Jones Street
Hebron, CT 06248
(860) 228-9496
CONTACT: Valerie D’Angiolini, Regional Public Affairs Coordinator, at (203) 288-3500, vdangiolini@mdausa.org or Jennifer Dain, Health Care Service Coordinator, at (203) 248-6500 or jdain@mdausa.org.
Monday, August 1, 2011
Providence Holds Telethon Executive Lock Up
Local business leaders will be heading to “jail” on Wednesday, August 3, 2011 from noon to 3 p.m. at McFadden’s Restaurant in order to raise their “bail” for the Muscular Dystrophy Association (MDA).
Community business leaders will be arrested at their place of business and transported to McFadden’s, located at 52 Pine St., Providence, R.I. 02903, to serve their time at the local MDA Lock-Up. The “jailbirds” will be served complimentary “jail” food, while they each attempt to raise at least $2,000 in bail money.
Local “jailbirds” will raise bail money, all of which benefits the fight against neuromuscular disease. This year the local MDA set a goal to raise $40,000 at the event.
During the Lock Up, challenges will be set and prizes will be awarded. Prizes have been donated by Alayne White Spa, Auntie Anne’s Pretzels, Dave & Buster’s, Newport Playhouse & Cabaret, Scrumptions, Newport Playhouse and Cabaret, Eastside Marketplace, and more.
To date, the top three jailbirds have each raised over $1,000. The highest fundraising “jailbirds” include Gina Clapprood of Manpower with $1,390, Bob Fay of Freedom National Bank with $1,064, and Debbie Kenny of Burns & Cotter with $1,030
The Providence Lock Up has been designated a Telethon Lock-Up Event. “Jailbirds” can sell two Gold Telethon Stars for $500 each and sell four Silver Telethon Stars for $250 each. The company or individual will be announced on the live local broadcast of the MDA Labor Day telethon as a Gold/Silver Star Sponsor. The MDA Labor Day Telethon will air locally on ABC6 on Sunday, September 4, 2011 from 6 p.m. to midnight. A Telethon Star purchase is a tax-deductible with a bonus on-air credit showing their goodwill to the community.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event or to register as a “jailbird”, please contact Jane Young at (401) 732-1910 or jmyoung@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
Community business leaders will be arrested at their place of business and transported to McFadden’s, located at 52 Pine St., Providence, R.I. 02903, to serve their time at the local MDA Lock-Up. The “jailbirds” will be served complimentary “jail” food, while they each attempt to raise at least $2,000 in bail money.
Local “jailbirds” will raise bail money, all of which benefits the fight against neuromuscular disease. This year the local MDA set a goal to raise $40,000 at the event.
During the Lock Up, challenges will be set and prizes will be awarded. Prizes have been donated by Alayne White Spa, Auntie Anne’s Pretzels, Dave & Buster’s, Newport Playhouse & Cabaret, Scrumptions, Newport Playhouse and Cabaret, Eastside Marketplace, and more.
To date, the top three jailbirds have each raised over $1,000. The highest fundraising “jailbirds” include Gina Clapprood of Manpower with $1,390, Bob Fay of Freedom National Bank with $1,064, and Debbie Kenny of Burns & Cotter with $1,030
The Providence Lock Up has been designated a Telethon Lock-Up Event. “Jailbirds” can sell two Gold Telethon Stars for $500 each and sell four Silver Telethon Stars for $250 each. The company or individual will be announced on the live local broadcast of the MDA Labor Day telethon as a Gold/Silver Star Sponsor. The MDA Labor Day Telethon will air locally on ABC6 on Sunday, September 4, 2011 from 6 p.m. to midnight. A Telethon Star purchase is a tax-deductible with a bonus on-air credit showing their goodwill to the community.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event or to register as a “jailbird”, please contact Jane Young at (401) 732-1910 or jmyoung@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
Rockland County Business Leaders Get "Locked Up" for MDA
Local N.Y. business leaders will be heading to “jail” on Wednesday, August 3, 2011 from 10 a.m. to 3 p.m. at The Nyack Seaport to raise their “bail” for the Muscular Dystrophy Association (MDA).
Community business leaders will be arrested at their place of business and transported to The Nyack Seaport, located at 21 Burd Street in Nyack NY 10960, to serve their time at the local MDA Lock-Up. Sponsors from Driven Eco, Leros, Majesty Limo Service, On-Time Transport Inc., and Twins Mobility Limousine Services will transport “jailbirds” to the Lock Up.
The “jailbirds” will be served complimentary “jail” food, while they each attempt to raise at least $2,400 in bail money.
Last year, local “jailbirds” raised $85,000 to benefit the fight against neuromuscular disease. This year the local MDA has set a goal to raise $100,000 at the event.
MDA appreciates the support from the accounting sponsor, M&T Bank.
Three-time Emmy Award Winning Sports Broadcast Journalist Colin Cosell from MSG Varsity will be the Master of Ceremonies at the event. The entertainment Sponsor is Philip C. Roventini
MDA will be giving a Lifetime Offender award to Philip Roventini, a 10 year jailbird. He has raised over $12,000 for MDA through his experience as a jailbird for various Lock Up programs. He is self employed at Philip Roventini CPA.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event or to register as a “jailbird”, please contact Meredith Buono-Sauro at (914) 345-5062 or msauro@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org. Please contact The Nyack Seaport at www.nyackseaport.com. 845-353-3200.
Community business leaders will be arrested at their place of business and transported to The Nyack Seaport, located at 21 Burd Street in Nyack NY 10960, to serve their time at the local MDA Lock-Up. Sponsors from Driven Eco, Leros, Majesty Limo Service, On-Time Transport Inc., and Twins Mobility Limousine Services will transport “jailbirds” to the Lock Up.
The “jailbirds” will be served complimentary “jail” food, while they each attempt to raise at least $2,400 in bail money.
Last year, local “jailbirds” raised $85,000 to benefit the fight against neuromuscular disease. This year the local MDA has set a goal to raise $100,000 at the event.
MDA appreciates the support from the accounting sponsor, M&T Bank.
Three-time Emmy Award Winning Sports Broadcast Journalist Colin Cosell from MSG Varsity will be the Master of Ceremonies at the event. The entertainment Sponsor is Philip C. Roventini
MDA will be giving a Lifetime Offender award to Philip Roventini, a 10 year jailbird. He has raised over $12,000 for MDA through his experience as a jailbird for various Lock Up programs. He is self employed at Philip Roventini CPA.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event or to register as a “jailbird”, please contact Meredith Buono-Sauro at (914) 345-5062 or msauro@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org. Please contact The Nyack Seaport at www.nyackseaport.com. 845-353-3200.
Wednesday, July 27, 2011
Cranston Local 1363 Extends Support Beyond Rhode Island Statewide Fill the Boot Day
The Cranston Fire Department Local 1363 will hold their own Fill the Boot drive over Labor Day weekend, in addition to participating in the Rhode Island Statewide Fill the Boot day on Saturday, July 30, 2011, to benefit the Muscular Dystrophy Association (MDA).
All six Cranston stations will collect donations for the fight against neuromuscular disease on Saturday, September 3 and Sunday, September 4, 2011. Their six locations include 131 Park Avenue, 301 Pontiac Avenue, 1384 Cranston Street, 160 Sockanosset Cross Road,1041 Oaklawn Avenue, and 1155 Scituate Avenue.
Last year, Cranston Local 1363 raised $7,700 through their fill the boot efforts.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA combats neuromuscular diseases though programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education.
For more information, please contact Jane Young at (401) 732-1910 or jmyoung@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
All six Cranston stations will collect donations for the fight against neuromuscular disease on Saturday, September 3 and Sunday, September 4, 2011. Their six locations include 131 Park Avenue, 301 Pontiac Avenue, 1384 Cranston Street, 160 Sockanosset Cross Road,1041 Oaklawn Avenue, and 1155 Scituate Avenue.
Last year, Cranston Local 1363 raised $7,700 through their fill the boot efforts.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA combats neuromuscular diseases though programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education.
For more information, please contact Jane Young at (401) 732-1910 or jmyoung@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
Brooklyn Business Leaders Get Locked Up for MDA
More than 100 business and civic leaders from throughout the Downtown Brooklyn area will be “arrested” and put “behind bars” for the Muscular Dystrophy Association’s (MDA) Telethon Executive Lock-Up sponsored by Morton’s The Steakhouse on Tuesday, August 16, 2011 from 3 to 5 p.m.
Accused of having big hearts and being heavily armed with kindness, the “jailbirds” volunteer to be part of MDA’s Lock-Up in order to raise “bail” by encouraging friends, family, co-workers and business contacts to make contributions to MDA that will directly benefit families in Long Island and the Tri-borough area living with progressive muscle diseases.
Each MDA jailbird’s “bail” is set at $1,000, which will allow him/her to be released for good behavior. The event will take place at Morton’s The Steakhouse, located at 339 Adams Street Brooklyn, NY 11201.
The Brooklyn Lock-Up has been designated a Telethon Lock-Up Event. Any donation of $500-$999 will be awarded a Silver Star and any donation of $1,000 or more will be given a Gold Star. These “stars” will be featured on the live broadcast of the MDA local Labor Day Telethon broadcasted by WWOR My 9 on Sunday, September 4, 2011 from 6 p.m. to midnight.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event, please contact Miriam Tedesco at (516) 358-1012 or mtedesco@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
Accused of having big hearts and being heavily armed with kindness, the “jailbirds” volunteer to be part of MDA’s Lock-Up in order to raise “bail” by encouraging friends, family, co-workers and business contacts to make contributions to MDA that will directly benefit families in Long Island and the Tri-borough area living with progressive muscle diseases.
Each MDA jailbird’s “bail” is set at $1,000, which will allow him/her to be released for good behavior. The event will take place at Morton’s The Steakhouse, located at 339 Adams Street Brooklyn, NY 11201.
The Brooklyn Lock-Up has been designated a Telethon Lock-Up Event. Any donation of $500-$999 will be awarded a Silver Star and any donation of $1,000 or more will be given a Gold Star. These “stars” will be featured on the live broadcast of the MDA local Labor Day Telethon broadcasted by WWOR My 9 on Sunday, September 4, 2011 from 6 p.m. to midnight.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event, please contact Miriam Tedesco at (516) 358-1012 or mtedesco@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
Tuesday, July 26, 2011
Rhode Island Fire Fighters Kick Off Statewide Fill the Boot Campaign on 7/29 to Benefit the Muscular Dystrophy Associaiton
The International Association of Fire Fighters (IAFF) in Rhode Island will join the fight against neuromuscular disease by holding a statewide Fill the Boot drive for the Muscular Dystrophy Association (MDA) on Saturday, July 30, 2011.
A media kick off event will be held on Friday, July 29, 2011 at the Warwick Local 2748 Fire House, located at 111 Veterans Memorial Drive, Warwick, R.I. 02886. The event will begin at 11 a.m.
Local 2748 is the highest fundraising local in R.I. Representatives from participating fire departments will also be in attendance at the kick off event.
The following day, fire fighters across the state will be collecting donations for MDA at various locations in Rhode Island. Some of the fire departments involved include Cranston Local 1363, Pawtucket Local 1261, Providence Local 799, Smithfield Local 2050, Johnston Local 1950, North Smithfield Local 3984, and Warwick Local 2748. All proceeds will benefit MDA’s services, research programs, and support groups that benefit individuals and families in the local area.
This is the IAFF’s 57th year dedicating their time and efforts to MDA. Since 1954, they have raised over $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.
For more information about this event, please contact Jane Young at (401) 732-1910 or jmyoung@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
A media kick off event will be held on Friday, July 29, 2011 at the Warwick Local 2748 Fire House, located at 111 Veterans Memorial Drive, Warwick, R.I. 02886. The event will begin at 11 a.m.
Local 2748 is the highest fundraising local in R.I. Representatives from participating fire departments will also be in attendance at the kick off event.
The following day, fire fighters across the state will be collecting donations for MDA at various locations in Rhode Island. Some of the fire departments involved include Cranston Local 1363, Pawtucket Local 1261, Providence Local 799, Smithfield Local 2050, Johnston Local 1950, North Smithfield Local 3984, and Warwick Local 2748. All proceeds will benefit MDA’s services, research programs, and support groups that benefit individuals and families in the local area.
This is the IAFF’s 57th year dedicating their time and efforts to MDA. Since 1954, they have raised over $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.
For more information about this event, please contact Jane Young at (401) 732-1910 or jmyoung@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
Monday, July 25, 2011
Connecticut Youngsters With Muscular Dystrophy and Community Volunteers Attend MDA Camp
They are extraordinary people doing extraordinary things. And they run the gamut of everyday people.
From wide-eyed, first-year volunteers to big-hearted professional fire fighters, to expert nurses and doctors, they all come together for one cause: the joy, laughter and dreams of the almost 40 children who annually enjoy Muscular Dystrophy Association’s Summer Camp in Hebron, Conn.
Summer Camp will be held at Easter Seals Camp Hemlocks, located at 85 Jones Street, Hebron, Conn., 06248, from August 7 to August 12, 2011. VIP day will be held on August 9th to recognize volunteers and sponsors who make the week-long session of camp possible.
Since MDA’s first camp in 1955, thousands of volunteers from throughout the country have annually helped children with neuromuscular diseases enjoy extraordinary weeks at MDA camp. It’s no different at East Seals Camp Hemlocks in 2011.
Baseball? Got it. Soccer? Yes. Water games? Check. Arts & Crafts? Indeed. This year, every day will be a holiday for campers, as they celebrate July 4th, Halloween, St. Patrick’s Day, among others. Camp dances, karaoke, swimming, and scavenger hunts round out the activities campers enjoy during their week at MDA camp.
“MDA summer camp is the week that our kids think about year-round,’’ said Stephen Fredericksen MDA Executive Director. “For one week out of the year, they get to be in an environment where having a neuromuscular disease is the norm, not the exception. They have the chance to experience barrier-free activities and make friendships and memories that last a lifetime.’’
The campers are featured guests in what is a loving and inspirational playground known as MDA camp. Stories are plentiful among the long-standing counselors, medical personnel and the children, who truly are the stars of each weeklong camp session. They will inspire you. They will amuse and amaze you with their stories of summer camp experiences.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive healthcare and support services, advocacy and education. See the award-winning MDA “Make A Muscle, Make A Difference” PSA.
In addition to funding more than 330 research teams worldwide, MDA maintains a national network of some 200 hospital-affiliated clinics; orchestrates hundreds of support groups for families affected by neuromuscular diseases; facilitates extraordinary local summer camp opportunities for thousands youngsters fighting progressive muscle diseases. Known globally for the MDA Labor Day Telethon, the Association is the first nonprofit to receive a Lifetime Achievement Award from the American Medical Association “for significant and lasting contributions to the health and welfare of humanity.”
In the Connecticut area, people with muscle diseases can receive excellent medical and health care services through the MDA clinics at Baystate Medical Center, MDA’s Adult Clinic at Yale School of Medicine, MDA’s Pediatric Clinic at Yale Pediatric Center, Hospital for Special Care, and St. Charles Hospital.
For more information, please contact Regional Public Affairs Coordinator Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org or Jennifer Dain, Health Care Service Coordinator, at (203) 248-6500 or jdain@mdausa.org.
From wide-eyed, first-year volunteers to big-hearted professional fire fighters, to expert nurses and doctors, they all come together for one cause: the joy, laughter and dreams of the almost 40 children who annually enjoy Muscular Dystrophy Association’s Summer Camp in Hebron, Conn.
Summer Camp will be held at Easter Seals Camp Hemlocks, located at 85 Jones Street, Hebron, Conn., 06248, from August 7 to August 12, 2011. VIP day will be held on August 9th to recognize volunteers and sponsors who make the week-long session of camp possible.
Since MDA’s first camp in 1955, thousands of volunteers from throughout the country have annually helped children with neuromuscular diseases enjoy extraordinary weeks at MDA camp. It’s no different at East Seals Camp Hemlocks in 2011.
Baseball? Got it. Soccer? Yes. Water games? Check. Arts & Crafts? Indeed. This year, every day will be a holiday for campers, as they celebrate July 4th, Halloween, St. Patrick’s Day, among others. Camp dances, karaoke, swimming, and scavenger hunts round out the activities campers enjoy during their week at MDA camp.
“MDA summer camp is the week that our kids think about year-round,’’ said Stephen Fredericksen MDA Executive Director. “For one week out of the year, they get to be in an environment where having a neuromuscular disease is the norm, not the exception. They have the chance to experience barrier-free activities and make friendships and memories that last a lifetime.’’
The campers are featured guests in what is a loving and inspirational playground known as MDA camp. Stories are plentiful among the long-standing counselors, medical personnel and the children, who truly are the stars of each weeklong camp session. They will inspire you. They will amuse and amaze you with their stories of summer camp experiences.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive healthcare and support services, advocacy and education. See the award-winning MDA “Make A Muscle, Make A Difference” PSA.
In addition to funding more than 330 research teams worldwide, MDA maintains a national network of some 200 hospital-affiliated clinics; orchestrates hundreds of support groups for families affected by neuromuscular diseases; facilitates extraordinary local summer camp opportunities for thousands youngsters fighting progressive muscle diseases. Known globally for the MDA Labor Day Telethon, the Association is the first nonprofit to receive a Lifetime Achievement Award from the American Medical Association “for significant and lasting contributions to the health and welfare of humanity.”
In the Connecticut area, people with muscle diseases can receive excellent medical and health care services through the MDA clinics at Baystate Medical Center, MDA’s Adult Clinic at Yale School of Medicine, MDA’s Pediatric Clinic at Yale Pediatric Center, Hospital for Special Care, and St. Charles Hospital.
For more information, please contact Regional Public Affairs Coordinator Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org or Jennifer Dain, Health Care Service Coordinator, at (203) 248-6500 or jdain@mdausa.org.
Tuesday, July 19, 2011
Newark Fire Fighters Kick Off Fill the Boot Drive
The Newark Fire Department will kick off their fill the boot drive on August 20, 2011 at the Bergen Street Festival to raise funds for the Muscular Dystrophy Association (MDA) and help send children in N.J. to MDA Summer Camp.
Newark fire fighters will collect donations for MDA at various locations throughout the greater Newark area from Monday, August 22 to Friday, August 26, 2011. The fill the boot drive will take place during the morning and afternoons in two shifts and during community events in Newark. Specific times and locations will follow.
In case of inclimate weather, the Newark Fire Department will fill the boot from Tuesday, August 30 to Friday, September 2, 2011.
All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. Funds help send children fighting against neuromuscular disease to MDA Summer Camp.
MDA N.Y. Summer Camp, located in Spring Valley, N.Y., is a place offering a wide range of activities specially designed for young people who have limited mobility or use wheelchairs with neuromuscular disease. Camp programs are conducted in a relaxed atmosphere that gives campers an opportunity to develop lifelong friendships, share interests and build self-confidence.
The International Association of Fire Fighters (IAFF) is MDA’s largest national sponsor. Last year, Locals throughout the United States raised over $27.6 million to help individuals affected by neuromuscular disease. Since 1954, IAFF members have donated more than $450 million to MDA. Since 2005, the Newark Fire Department has raised over $50,000 to benefit MDA.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.
For more information on this event, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org or Vanessa Malfitano at (201) 843-4452 or vmalfitano@mdausa.org.
Newark fire fighters will collect donations for MDA at various locations throughout the greater Newark area from Monday, August 22 to Friday, August 26, 2011. The fill the boot drive will take place during the morning and afternoons in two shifts and during community events in Newark. Specific times and locations will follow.
In case of inclimate weather, the Newark Fire Department will fill the boot from Tuesday, August 30 to Friday, September 2, 2011.
All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. Funds help send children fighting against neuromuscular disease to MDA Summer Camp.
MDA N.Y. Summer Camp, located in Spring Valley, N.Y., is a place offering a wide range of activities specially designed for young people who have limited mobility or use wheelchairs with neuromuscular disease. Camp programs are conducted in a relaxed atmosphere that gives campers an opportunity to develop lifelong friendships, share interests and build self-confidence.
The International Association of Fire Fighters (IAFF) is MDA’s largest national sponsor. Last year, Locals throughout the United States raised over $27.6 million to help individuals affected by neuromuscular disease. Since 1954, IAFF members have donated more than $450 million to MDA. Since 2005, the Newark Fire Department has raised over $50,000 to benefit MDA.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.
For more information on this event, please contact Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org or Vanessa Malfitano at (201) 843-4452 or vmalfitano@mdausa.org.
New Haven Telethon Executive Lock Up
Local business leaders will be heading to “jail” on Thursday, August 18, 2011 from 11 a.m. to 2:30 p.m. at Leon’s Restaurant in order to raise their “bail” for the Muscular Dystrophy Association (MDA).
Community business leaders will be arrested at their place of business and transported to Leon’s Restaurant, located at 500 Long Wharf Drive, New Haven, Conn 06511, to serve their time at the local MDA Lock-Up. The “jailbirds” will be served complimentary “jail” food, while they each attempt to raise at least $2,400 in bail money.
Last year, local “jailbirds” raised over $36,000 in bail money, all of which went towards the fights against neuromuscular disease. This year the local MDA has set a goal to raise $50,000 at the event.
Steve MacLaughlin, Meteorologist for WTNH, will be the Master of Ceremonies at the event. He hosted the Labor Day Telethon for Muscular Dystrophy at WPHL in Philadelphia and KXAS in North Texas. MacLaughlin remains active with MDA throughout the year.
The “jailbirds” are asked to spend a minimum of one hour, but encouraged to stay longer. There will be contests and prizes throughout the hour.
This is the second time the New Haven Lock-Up has been designated a Telethon Lock-Up Event. Any donation of $250-$499 will be awarded a Silver Star and any donation of $500 or more will be given a Gold Star. These “stars” will be featured on the live broadcast of the MDA local Labor Day Telethon broadcasted by FOX 61 on Sunday, September 4, and Monday, September 5, 2011.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event or to register as a “jailbird” (or help fundraise for one), please contact Stephen Fredericksen at (203) 248-6500 or sfredericksen@mdausa.org, Chasity Bothman at (203)248-6500 or cbothman@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
Community business leaders will be arrested at their place of business and transported to Leon’s Restaurant, located at 500 Long Wharf Drive, New Haven, Conn 06511, to serve their time at the local MDA Lock-Up. The “jailbirds” will be served complimentary “jail” food, while they each attempt to raise at least $2,400 in bail money.
Last year, local “jailbirds” raised over $36,000 in bail money, all of which went towards the fights against neuromuscular disease. This year the local MDA has set a goal to raise $50,000 at the event.
Steve MacLaughlin, Meteorologist for WTNH, will be the Master of Ceremonies at the event. He hosted the Labor Day Telethon for Muscular Dystrophy at WPHL in Philadelphia and KXAS in North Texas. MacLaughlin remains active with MDA throughout the year.
The “jailbirds” are asked to spend a minimum of one hour, but encouraged to stay longer. There will be contests and prizes throughout the hour.
This is the second time the New Haven Lock-Up has been designated a Telethon Lock-Up Event. Any donation of $250-$499 will be awarded a Silver Star and any donation of $500 or more will be given a Gold Star. These “stars” will be featured on the live broadcast of the MDA local Labor Day Telethon broadcasted by FOX 61 on Sunday, September 4, and Monday, September 5, 2011.
MDA is the nonprofit healthy agency dedicated to curing muscular dystrophy, ALS and related disease by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
For more information on this event or to register as a “jailbird” (or help fundraise for one), please contact Stephen Fredericksen at (203) 248-6500 or sfredericksen@mdausa.org, Chasity Bothman at (203)248-6500 or cbothman@mdausa.org or Valerie D’Angiolini at (203) 288-3500 or vdangiolini@mdausa.org.
Tuesday, June 28, 2011
Male Summer Camp Volunteers Needed
The Muscular Dystrophy Association (MDA) is searching for an additional 25 men to fill their camp counselor roster at MDA Summer Camp in Spring Valley, N.Y.
Volunteers must be interested in helping children enjoy a fun-filled, carefree week at MDA Summer Camp. Locally, MDA Summer Camp takes place August 20-26, 2011 at Vision Center on Blindness.
“MDA summer camp is a special week of the year when children with muscle diseases can enjoy themselves in a true peer group where they are able to participate in a full range outdoor activities adapted to their abilities,” MDA Camp Director, Gloria English said. “Besides being great fun, camp helps youngsters grow and develop emotionally and socially— it’s truly the highlight of the year, for both campers and volunteers.” Volunteering at MDA Summer Camp is a rewarding and life-changing experience. The friendships formed and the memories created will last forever.
English explains, “Every camper is matched with their own volunteer counselor for the week. Fortunately, some men from the area have signed up, but we still need 25 more to complete our camp roster. With over 50 boys with muscle disease expected to attend MDA Summer Camp this August, there is a great need for more male volunteers to be their camp counselors for this very special week.”
Applicants must be at least 18 years old, US Citizens and able to lift and care for a young person between the ages of six and 17. A volunteer counselor will have the opportunity to become a close companion to a camper and help them with daily activities such at eating, bathing and dressing. Counselors will also assist campers with recreational activities such as adapted sports, fishing, swimming and arts and crafts.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and far-reaching professional and public health education.
To obtain a volunteer application or learn about other ways to support MDA’s summer camp program, call your local MDA office at (914) 345-5062. Additional information about volunteering at MDA summer camp is available online at www.mda.org/clinics/camp. For more information, contact Gloria English at (914) 345-5062 or genglish@mdausa.org.
Volunteers must be interested in helping children enjoy a fun-filled, carefree week at MDA Summer Camp. Locally, MDA Summer Camp takes place August 20-26, 2011 at Vision Center on Blindness.
“MDA summer camp is a special week of the year when children with muscle diseases can enjoy themselves in a true peer group where they are able to participate in a full range outdoor activities adapted to their abilities,” MDA Camp Director, Gloria English said. “Besides being great fun, camp helps youngsters grow and develop emotionally and socially— it’s truly the highlight of the year, for both campers and volunteers.” Volunteering at MDA Summer Camp is a rewarding and life-changing experience. The friendships formed and the memories created will last forever.
English explains, “Every camper is matched with their own volunteer counselor for the week. Fortunately, some men from the area have signed up, but we still need 25 more to complete our camp roster. With over 50 boys with muscle disease expected to attend MDA Summer Camp this August, there is a great need for more male volunteers to be their camp counselors for this very special week.”
Applicants must be at least 18 years old, US Citizens and able to lift and care for a young person between the ages of six and 17. A volunteer counselor will have the opportunity to become a close companion to a camper and help them with daily activities such at eating, bathing and dressing. Counselors will also assist campers with recreational activities such as adapted sports, fishing, swimming and arts and crafts.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and far-reaching professional and public health education.
To obtain a volunteer application or learn about other ways to support MDA’s summer camp program, call your local MDA office at (914) 345-5062. Additional information about volunteering at MDA summer camp is available online at www.mda.org/clinics/camp. For more information, contact Gloria English at (914) 345-5062 or genglish@mdausa.org.
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