Friday, August 20, 2010

Behind Bars for Good to Benefit MDA

Springfield, Mass., August 20, 2010 – On Tuesday, August 24th, Pazzo Ristorante in Springfield, will be hosting the “SPRINGFIELD LOCK UP”. Area business people from the greater Springfield area will be brought to our “mock jail” at Pazzo’s.

The jailbirds will be treated to much more than bread and water, as they help raise bail money to get out of the MDA Jail at Pazzo’s. All funds received will benefit the Muscular Dystrophy Association’s comprehensive programs. Locally, the Association offers clinics at Baystate Medical Center, as well as funding for research projects and summer camp.

A very special thanks to Pazzo’s and to all the volunteers that have joined together to help make this event possible.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. The majority of contributions to MDA come from individual donors.

For more information on this event please contact Melody Avery at mavery@mdausa.org or (860) 633-4466.

Wednesday, August 18, 2010

Shop Rite to Present MDA With Check for Shamrocks Against Dystrophy Program

SPRING VALLEY, N.Y. August 18, 2010 – On Wednesday, August 25, 2010, Shop Rite Supermarkets will the Muscular Dystrophy Association (MDA) with a check for $53, 606 for their Shamrocks Against Dystrophy Program.

The check will be presented at VIP Day at MDA Summer Camp in Spring Valley, N.Y. between 10 a.m. and 2 p.m. Since 2002, Shop Rite has raised over $563,000 for MDA! All the proceeds raised from the Shamrocks Against Dystrophy Program will go towards MDA’s services, research programs and support groups which benefit local individuals and families affected by neuromuscular disease.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and far-reaching professional and public health education.

For more information about this event please contact Amanda Cann at (914) 345-5062 or acann@mdausa.org.

Sikorsky Firefighters Turn Up The Heat with their 7th Annual Clambake

New Haven, Conn., August 18, 2010- On Friday, August 20, 2010 from 7:30 to 11:30 p.m. the Sikorsky Firefighters Local I-68 will be cooking for the crowds in hopes to raise money for the fight against neuromuscular disease.

The Sikorsky firefighters will be hosting their 7th Annual Clambake to raise funds for the Muscular Dystrophy Association at Anthony’s Ocean View in New Haven, Conn. The Sikorsky Firefighters’ Annual Clambake boasts a menu of mussels, clams, steamers, hot dogs, hamburgers, pasta, breads, salads, ribs, chicken, chowder, desserts and an open bar.

The event is open to all adults who would like a night out. The Sikorsky Locals hold this event as a way to thank the community for supporting their MDA campaign. Prizes in the past have included helicopter rides, electronics, sports memorabilia, tickets to Broadway shows or special events, gift packages, weekend getaways and more.

Through the generosity and support of Sikorsky employees, outside contractors, friends and local businesses, the Sikorsky Fire Firefighters were able to raise over $100,000 for MDA over the past nine years. The generosity of friends and companies like the Sikorsky Aircraft firefighters allows MDA to continually raise more funds for research, education, vaccination, and send children to MDA Summer Camp in Hebron, Conn.

The Sikorsky Aircraft Fire Department Local I-68 is part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of MDA and pride themselves on their devotion to the cause.

MDA is a voluntary health agency dedicated to helping more than one million Americans affected by neuromuscular disorders through programs of worldwide research, comprehensive services, and far reaching professional and public health education.

Tickets are $75 a person, which includes a full clambake menu, open bar and a disc jockey for dancing. For more information or to purchase tickets please contact Amanda Cann at (914) 345-5062 or acann@mdausa.org.

Tuesday, August 17, 2010

Montgomery Volunteer Fire Department to Fill-the-Boot for MDA

MONTGOMERY, N.Y., August 17, 2010 – The Montgomery Volunteer Fire Department will be filling-the-boot for the Muscular Dystrophy Association (MDA) on Saturday, September 4, 2010.

On Saturday, September 4, Montgomery firefighters will be collecting donations for the fight against neuromuscular disease from 9 a.m. until 5 p.m. in the Shop Rite parking lot on 208 Hawkins Drive in Montgomery, N.Y. This is the third year that Montgomery firefighters will be filling-the-boot for MDA and this year they have set a goal to raise $500.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education.

For more information about this event please contact Amanda Cann at (914) 345-5062 or acann@mdausa.org.

NEW DATE: Stratford Local 998 to Fill-the-Boot for MDA

STRATFORD, Conn., August 17, 2010 – The Stratford Fire Department Local 998's fill-the-boot drive for the Muscular Dystrophy Association (MDA) has been moved to Saturday, August 28, 2010.

Stratford firefighters will be collecting donations for the fight against neuromuscular disease at the Stratford Fire Station at 2750 Main Street from 10 a.m. until 3 p.m. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. They have set a goal of $ 2,500.

The Stratford Fire Department Local 998 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Amanda Cann at (914) 345-5062 or acann@mdausa.org.

Westport Fire Department Local 1081 to Hold Second Fill-the-Boot Drive for MDA

WESTPORT, Conn., August 17, 2010– The Westport Fire Department Local 1081 will be filling-the-boot for the Muscular Dystrophy Association (MDA) for the second year in a row this summer on Saturday, August 28, 2010.

Westport firefighters will be collecting donations for the fight against neuromuscular disease from 7 a.m. – 4 p.m. at the Compo Beach on Compo Beach Drive in Westport. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. They have set a goal of $4,000.

The Westport Fire Department Local 1081 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Amanda Cann at (914) 345-5062 or acann@mdausa.org.

Local Support Sends Youth to MDA Summer Camp

SPRING VALLEY, N.Y., August 17, 2010- Over 70 youth from cities throughout N.Y., N.J., and Conn. will be attending the Muscular Dystrophy Association’s (MDA) annual summer camp for kids at Visions Center on Blindness in Spring Valley, N.Y. from August 21 until August 28, 2010.

MDA’s camp programs offer the unique experience for young people with neuromuscular diseases to participate in a variety of events created to develop friendships, share interests and build self confidence. The camp consists of a week long session featuring typical camp activities adapted for youths between the ages of six and 17 with one of the over 40 neuromuscular diseases. The $800 camper fee is covered entirely by generous support from local corporations, groups and individuals who raise funds to support MDA and so no cost is incurred by the family.

This year, campers will enjoy a myriad of activities throughout the week including swimming, fishing, adaptive sports, scavenger hunts and arts and crafts. The annual VIP Day will take place on Wednesday, August 25. On VIP Day, prospective campers, media and sponsors can visit the camp. Counselors, campers and their families will enjoy a day of food, fun and activities and will get to mingle with other volunteers and sponsors, as well as local fire fighters. Campers will enjoy a Whiffle Ball tournament, arts and crafts, balloon making, face painting, a pipe and drum band, and other fun activities.

“MDA summer camp is the best week of the year when children with neuromuscular disease can enjoy themselves in true peer groups and can participate in full range outdoor activities adapted to their abilities,” MDA Camp Director Gloria English said. “Besides being great fun, camp helps youngsters grow and develop emotionally and socially-it’s truly the highlight of the year, for both campers and volunteers.”

MDA is a voluntary health agency dedicated to helping more than one million Americans affected by neuromuscular disorders through programs of worldwide research, comprehensive services, and far reaching professional and public health education.

For more information about this event please contact Gloria English at (914) 345-5062 or at genglish@mdausa.org.

Monday, August 16, 2010

Operation "Fly Out" Begins

CRANSTON, R.I., August 16, 2010 – As many Rhode Islanders are squeezing in late summer vacations, it’s important to remember that neuromuscular diseases don’t take a vacation in stealing away muscle function from more than a million Americans. That’s why Muscular Dystrophy Association (MDA) constituents meet with U.S. Sen. Jack (D-R.I) on Tuesday, August 10, 2010 while the distinguished legislator is back home in Cranston during the brief August recess break from Washington politics.

The meeting, involving civic and business leaders with first-hand knowledge of the challenges families face because of progressive muscle diseases, is part of MDA’s annual “Fly-Out” campaign, orchestrated in communities across America since travel can be a real challenge for people with severe mobility impairments caused by muscular dystrophy, spinal muscular atrophy (SMA), amyotrophic lateral sclerosis (ALS or Lou Gehrig’s disease) and related disorders.

This year’s “Fly Out” takes on even greater urgency as Congress considers the SMA Treatment Acceleration Act and the Competitive Bidding Act. Both pieces of legislation are vitally important to people with neuromuscular disorders.

Local representatives of MDA’s extensive ‘grassroots’ organization comprising families served by MDA, volunteers, sponsors and MDA clinic directors, met with Sen. Reed at 3:30 p.m. to urge him to back both pieces of legislation. Across the nation, similar MDA “Fly Out” meetings are being orchestrated with elected officials to take advantage of the August recess by the U.S. House of Representatives.

The SMA Treatment Acceleration Act facilitates collaboration and funding to find a treatment or cure for SMA, the number one genetic killer of children aged two or younger. It would provide federal support for a national SMA Clinical Trials Network, accelerating therapeutic developments. The SMA Treatment Acceleration Act also would provide federal support to expand SMA research, among other things. August is SMA Awareness Month, so the timing of the discussion with Sen. Reed is particularly meaningful to thousands of families served by MDA.

The Competitive Bidding Act would eliminate the flawed competitive bidding program for Medicare’s durable medical equipment services such as wheelchairs, leg braces and hospital beds for at-home care. The current bidding system often forces patients to go to unfamiliar providers and inexperienced/unlicensed providers at a greater cost to Medicare while causing confusion and distress for patients.

For more information, call MDA at (401) 732-1910 or (800) 572-1717, or visit http://www.mda.org/advocacy/flyout.html. Rhode Island-area families affected by neuromuscular diseases can receive excellent medical services at the MDA Clinic at: Rhode Island Hospital in Providence, R.I.

More than a million people in America are affected by neuromuscular diseases. MDA is the nonprofit health agency dedicated to curing muscular dystrophy, SMA, ALS and related diseases by funding worldwide research. The first nonprofit to receive a Lifetime Achievement Award from the American Medical Association (“for significant and lasting contributions to the health and welfare of humanity”), MDA also provides advocacy, comprehensive health care and support services, and education. For more information, go to: http://www.mda.org/.

Monday, August 9, 2010

Cumberland Rescue Local 2757 to Hold 7th Annual Motorcycle Run to Benefit MDA

Cumberland, R.I., August 9, 2010- On Sunday, August 29, 2010 members of the Cumberland Rescue Local 2725 will be hosting their 7th annual Motorcycle Run to benefit the Greater Rhode Island Chapter of the Muscular Dystrophy Association (MDA).

Motorcyclists can register for the event from 9 a.m. until 11 a.m. at the Cumberland Public Safety Union Hall at 7 Cray Street, Cumberland, R.I. The ride will begin at 11 a.m. and riders will enjoy a scenic ride finishing back at Cumberland Public Safety Union Hall. A donation of $25 per rider will be donated to MDA. In 2009, this event raised $1,700 for MDA. This year, Cumberland Local 2725 aims to raise $2,000.

The Cumberland Rescue Local 2725 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education.

Anyone wishing to participate in the ride or make a donation should contact Jim Richard at Cumberland Rescue at (401) 334-3090 or Steve Matos in the MDA office at (401) 732-1910 or smatos@mdausa.org.

Donations should be made payable to Cumberland Rescue, Local 2725. They can be sent to:
Cumberland Rescue, Local 2725
PO Box 7311
Cumberland, RI 02864

Monday, August 2, 2010

Rhode Island Fire Department Announce Statewide Fundraising Goal for MDA

Providence, R.I., August 2, 2010 – On Friday, July 30, 2010, the Rhode Island State Association of Fire Fighters (RISAFF) announced they have set a goal to raise over $272,000 for the Muscular Dystrophy Association (MDA) this year.

Representatives from MDA, Goodwill Ambassador Abby Alsfeld, and firefighters from across the state joined RISAFF Vice President Joseph Andriole in showing their dedication to raising as much money as possible for the fight against neuromuscular disease. Fire Departments represented at the conference were Providence Local 799, Pawtucket Local 4421, Smithfield Local 2050, Johnston Local 1950, North Kingstown Local 1651, Smithfield Local 2050, Warwick Local 2748, and West Warwick Local 1104. The Fill-the-Boot drive was kicked off by Goodwill Ambassador Abby Alsfeld, who put the first dollar in a fire boot for MDA.

Fire Departments across the state, as well as the nation, raise money for MDA mainly by taking part in the fill-the-boot campaign, where fire fighters volunteer their time to collect money at local intersections. All of the proceeds raised go towards MDA’s research programs, services, Summer Camp, and support groups which benefit local Rhode Island individuals and families affected by neuromuscular disease. Last year, the state of Rhode Island rose over $220,000 for MDA.

This is the International Association of Fire Fighter’s 56th year dedicating their time and efforts to MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of MDA and pride themselves on their devotion to the cause.

MDA is a national voluntary health agency working to defeat muscular dystrophy and related diseases through programs of worldwide research, comprehensive services and far-reaching professional and public health education. MDA also sponsors 220 hospital-affiliated clinics, one of which is at Rhode Island Hospital, and supports nearly 400 research projects around the world.

For more information on this event please contact Steve Matos at smatos@mdausa.org or at (401) 732-1910 or contact Brooke Eder at (203) 288-3500 or at beder@mdausa.org.

The Minuteman of Dartmouth HOG Chapter 2522 to Hold 16th Annual Ride for Life to Benefit

DARTMOUTH, Mass., August 2, 2010 – The Minuteman of Dartmouth HOG Chapter 2522 will be holding its 16th Annual Ride for Life to benefit the Muscular Dystrophy Association (MDA) on Sunday, September 5, 2010.

Motorcyclists can register for the event from 9:30 a.m. until 11:30 a.m. at the Seekonk Speedway located at 1710 Fall River Avenue in Seekonk, Mass. Preregistration forms are available at http://www.minutemanhog.com. Registration costs $15 per person and includes a barbecue with hot dogs and hamburgers, music, vendors, and more. All bikes are welcome.

The ride will depart from Seekonk Speedway at 12 p.m. sharp, rain or shine, and end at Minuteman Harley-Davidson on 799 State Road in Dartmouth, Mass. Event t-shirts will be available for purchase at both the Seekonk Speedway and at the Minuteman Harley Davidson destination. This will be a police escorted ride and helmets are required. This year, the Minuteman Dartmouth Hog Chapter has set a goal to raise $6,000 for MDA.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education.
For more information on this event please contact Steve Matos at (401) 732-1910 or smatos@mdausa.org.

Thursday, July 29, 2010

Long Beach Local 287 to Fill-the-Boot For the Second Time This Summer

LONG BEACH, N.Y., July 29, 2010 – The Long Beach Fire Department Local 287 will be filling-the-boot for the Muscular Dystrophy Association (MDA) once again this summer on Saturday, August 21 and Sunday, August 22, 2010. Long Beach firefighters are less than $1,000 away from reaching their 2010 goal to raise $10,000 for MDA!

Long Beach firefighters will be collecting donations for the local families affected with muscular dystrophy and related neuromuscular diseases from 10 a.m. until 2 p.m. at the intersection of East Park Avenue and Long Beach Boulevard in Long Beach, N.Y. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. Since 2005 Long Beach firefighters raised $31,343 through their fill-the-boot efforts. This year, they have already raised $9,630 through fill-the-boot efforts.

The Long Beach Fire Department Local 287 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Deanna Forrester at (516) 358-1012 or dforrester@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Click Here to Donate Online to Long Beach Local 287's Fill-the-Boot program.

Wednesday, July 28, 2010

New Bedford Fire Department Surpasses 2010 Fill-the-Boot Goal

NEW BEDFORD, Mass., July 28, 2010 – Local supporters helped the New Bedford Fire Department Local 841 successfully raise $18,677 for the Muscular Dystrophy Association (MDA) through their fill-the-boot drives this summer, surpassing their 2009 fundraising efforts of $10,800.

MDA would like to give special thanks to not only the New Bedford firefighters for volunteering their time, but also to the local community who donated to this very important cause. All of the proceeds raised will go towards MDA’s services, research programs, and support groups which benefit local individuals and families affected by neuromuscular disease.

The New Bedford Fire Department Local 841 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Brooke Eder at (203) 288-3500 or Jeremy Nappi at (401) 732-1910 or jnappi@mdausa.org.

Springfield Local 648 to Fill-the-Boot for MDA

SPRINGFIELD, Mass., July 28, 2010 – The Springfield Fire Department Local 648 will be filling-the-boot for the Muscular Dystrophy Association (MDA) on Saturday, August 7 and Sunday, August 8, 2010.

Springfield firefighters will be collecting donations for the fight against neuromuscular disease at the intersection of Boston Road and Parker Street on Saturday, August 7, from 10 a.m. to 1 p.m. and Sunday, August 8, from 12:30 p.m. until 1:30 p.m. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area.

The Springfield Fire Department Local 648 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Melody Avery at (860) 633-4466 or mavery@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Tuesday, July 27, 2010

5th District Firefighters to Hold First Ever Bowl-a-Thon for MDA

NEW ROCHELLE, N.Y., July 27, 2010 – The 5th district of the New York State Professional Fire Fighters Association (NYSPFFA) will be holding their first ever Bowl-A-Thon to benefit the Muscular Dystrophy Association (MDA) on Tuesday, August 10, 2010.

The Bowl-a-Thon will take place at New Roc’n Bowl, located at 33 Lecount Place in New Rochelle, N.Y., from 7 p.m. until 9 p.m. Proceeds from the event will help send children affected by neuromuscular diseases to MDA Summer Camp, located in Spring Valley, N.Y. Each department will be split into two teams of four and will have a goal of sending one child to MDA Summer Camp. This year, members of the 5th District have set a goal to raise $15,000, which will send three cabins of children to MDA Summer Camp.

NYSPFFA is part of the International Association of Fire Fighters (IAFF), which is the largest national sponsor of MDA. This is the IAFF’s 56th year dedicating their time and efforts to MDA. In 2009, firefighters across America led by IAFF members have raised over $28 million to aid in the fight against neuromuscular disease. Members of the 5th District raised over $47,000 in 2009 to aid MDA in its fight.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education.

For more information about this event please contact Amanda Cann at (914) 345-5062 or acann@mdausa.org or contact Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Waterbury Local 1339 to Hold Fill-the-Boot Drives for MDA

WATERBURY, Conn., July 27, 2010 – The Waterbury Fire Department Local 1339 will be holding six more Fill-the-Boot drives in Waterbury, Conn. for the Muscular Dystrophy Association (MDA) this summer.

On Friday, July 30, Friday, August 6, and Friday, August 13, 2010, Waterbury firefighters will be collecting donations for the fight against neuromuscular disease between 9 a.m. and 2:30 p.m. at the Stop-N-Shops on both Chase Avenue and Wolcott Street. On Saturday, July 31, Waterbury firefighters will be filling-the-boot between 9 a.m. and 4 p.m. at the Stop-N-Shop on Reidville Drive. On Saturday, August 7, firefighters will fill-the-boot at Brass Mill Center from 10 a.m. until 4 p.m. and the Stop-N-Shop on Reidville Drive from 1 p.m. until 4 p.m. On Sunday, August 14, firefighters will fill-the-boot at Brass Mill Center from 10 a.m. until 4 p.m. and the Stop-N-Shop on Wolcott Street from 1 p.m. until 4 p.m. On Friday, August 20, firefighters will fill-the-boot at the Stop-N-Shop on Wolcott Street from 9 a.m. until 4 p.m. In 2009, Waterbury firefighters raised $6,127 for MDA. This year, they have set a goal to raise $10,000.

The Waterbury Fire Department Local 1339 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Brooke Eder at (203) 288-3500 or beder@mdausa.org.

New Haven Local 825 To Hold Fill-the-Boot Drives for MDA

NEW HAVEN, Conn., July 27, 2010 – The New Haven Fire Department Local 825 will be filling-the-boot for the Muscular Dystrophy Association (MDA) on three different occasions this summer.

New Haven Local 825 will be collecting donations for the fight against neuromuscular disease at various locations throughout New Haven between 9 a.m. and noon on Friday, July 30, Friday, August 6, and Friday, August 20, 2010. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. The New Haven Local 825 Fire Department is consistently the highest fundraising Local in the State of Conn. In 2009, New Haven firefighters raised $33,400 for MDA. This year, they have set a goal to raise $35,000.

The New Haven Fire Department Local 825 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Monday, July 26, 2010

New Haven Business Leaders "Locked Up" For Having a Good Heart

New Haven, Conn., July 26, 2010 – Over 150 local business leaders will be heading to “jail” on Thursday, August 5th from 11 a.m. until 2 p.m. at Café Goodfellas in order to raise their “bail” for the Muscular Dystrophy Association (MDA).

Community business leaders will be arrested at their place of business and transported to Café Goodfellas, located at 758 State Street in New Haven, to serve their time at the local MDA Lock-Up. At Café Goodfellas, the “jailbirds” will be served complimentary “jail” food while they each attempt to raise at least $3,200 in bail money.

Last year local “jailbirds” raised over $36,000 in bail money, all of which went towards the fight against neuromuscular disease. This year the local MDA has set a goal to raise $63,000 at the event.

This is also the first time the New Haven Lock-Up has been designated a Telethon Lock-Up Event. This is the last lock-up event before the local broadcast of the annual Jerry Lewis Labor Day Telethon live from the Mohegan Sun on Monday, September 6th. This means that any donation of $250-$499 will be awarded a Silver Star, any donation of $500 or more will be given a Gold Star. These “stars” will be featured on the live local broadcast by Fox 61.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. The majority of contributions to MDA come from individual donors.

For more information on this event please contact Kristine Cohen at kcohen@mdausa.org or (203) 248-6500 or Jen Ksiazek at jksiazek@mdausa.org or (203) 248-6500.

North Smithfield Fire Department To Hold 6th Annual Ride for Life to Benefit MDA

North Smithfield, R.I., July 26, 2010 – The North Smithfield Fire Department Local 3984 will be holding its 6th annual Ride for Life to benefit the Muscular Dystrophy Association (MDA) on Sunday, August 15, 2010.

Motorcyclists can register for the event and begin the ride at the North Smithfield Fire Station, located at 675 St. Paul Street, at 9:30 a.m. It will cost $20 per bike and $10 per passenger to participate in the ride.

Motorcyclists from all over Rhode Island and New England will then begin the 45 mile ride at 11 a.m. After the ride, participants will enjoy a Barbeque Cookout at Gators Pub, located at the corner of Main Street and Victory Highway in North Smithfield. In the past, this event has raised $2,824 for MDA. This year, the North Smithfield firefighters hope to raise $3,500.

Donations will also be accepted by mail, if requested, by the North Smithfield Fire Department at North Smithfield Professional Firefighters, P.O. Box 379, North Smithfield, RI, 02876.

The North Smithfield Fire Department Local 3984 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education.

For more information on this event please contact Firefighter Steve Provost at (401)762-1135 or Steve Matos at (401) 732-1910 or smatos@mdausa.org.

Newport Fire Fighters Local 1080 to Hold 34th Annual Charity Golf Scramble to Benefit MDA

PORTSMOUTH, R.I., July 26, 2010 – The Newport Fire Fighters Local 1080 will be holding its 34th Annual Charity Golf Scramble to benefit the Muscular Dystrophy Association (MDA) on Friday, August 13, 2010.

The tournament will take place at Green Valley Country Club, located on Union Street in Portsmouth, R.I. The event will tee off with a shotgun start at noon. Golfers should arrive no later than 11:30 a.m.

Registration for one golfer costs $125 and registration for a foursome costs $500. Golfers can register as a single, twosome, threesome, or foursome. Teams with less than four players will be filled with Newport Fire Fighters. Registration includes a cookout lunch, ribs and chicken dinner, golf, cart, beer, soda, a gift bag, MDA donations and cash prizes! Prizes will be awarded to the Top Six Finishers, Closest to the Pins, Closest to the Line, Longest Putt, and Worst Team. This event raised over $5,200 during the past two years and this year’s goal is to raise $3,000. For registration information, call Firefighter Allan Gray at (401) 846-2700 or (401) 692-1527.

The Newport Fire Fighters Local 1080 is part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to MDA. Since 1954 they have raised nearly $275 million for the organization. They are the largest national sponsor of MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education.

For more information on this event please contact Brooke Eder at (203) 288-3500 or beder@mdausa.org or Steve Matos at (401) 732-1910 or smatos@mdausa.org.

Attleboro Local 838 and North Attleboro Local 1992 Compete for Grand Prize in 3rd Annual Wing Off for MDA Finals

(Photo courtesy of Richard W. Dionne Jr. and EastBayRI.com)
SEEKONK, Mass., July 26, 2010 – Attleboro Firefighters Local 848 and the North Attleboro Firefighters Local 1992 will be competing for the grand prize in the final round of the 3rd Annual Wing Off for the Muscular Dystrophy Association (MDA) on Tuesday, August 10, 2010. The three-part Wing Off Tournament is sponsored by Bone Yard Barbecue, Attleboro Firefighters Local 848, Seekonk Firefighters Local 1931, North Attleboro Firefighters Local 1992 and Plainville Firefighters Local 3415.

The Wing Off Finals will take place at Bone Yard Barbecue, located at 540 Central Ave. in Seekonk, Mass., on August 10, 2010 at 7 p.m. The team who can eat the most wings wins the tournament. There will also be a furniture raffle and TV raffle to raise additional money. Tickets are available at all Fire Department Headquarters in Attleboro, North Attleboro, Seekonk and Plainville, Mass. Furniture raffle tickets will cost $10 each or six for $50. TV raffle tickets cost $5 each or six for $20. The money raised from the Wing-Off will go to assist 500 families in Bristol County and Rhode Island. This year, the International Association of Fire Fighters (IAFF) hopes to raise $8,000 for MDA.

This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education, medical and support services, and far-reaching professional and public health education.

For more information on this event please contact Brooke Eder at (203) 288-3500 or beder@mdausa.org or Steve Matos at (401) 732-1910 or smatos@mdausa.org

Rockland County Business Leaders Being Sent to Jail for a Good Cause

ROCKLAND COUNTY, N.Y., July 26, 2010 – Over 100 local business leaders will be heading to “jail” on Wednesday, August 4, 2010 from 11 a.m. until 3p.m. at Black Bear Nyack in order to raise their “bail” for the Muscular Dystrophy Association (MDA).

Community business leaders will be arrested at their place of business and transported to Black Bear Nyack, located at 82 Main Street, to serve their time at the local MDA Lock-Up. At Black Bear Nyack, the “jailbirds” will be served complimentary “jail” food while they each attempt to raise at least $2,400 in bail money.

Leros Point to Point, Mex Limo & Car Service, Majesty Limo & Car Service, On Time Transport Inc., and Twin’s Mobility Limo Service will be kindly volunteering their time and services to transport participants to and from the event. Last year local “jailbirds” raised $50,000 in bail money, all of which went towards the fight against neuromuscular disease. This year the local MDA has set a goal to raise $75,000 at the event.

Several repeat offenders will be returning to “jail” to serve more time this year, including last year’s top “jailbird,” Joseph Sarvis, who raised $3,000. Lifetime Offender Awards will be given to Philip Roventini, PC, who has raised close to $10,000 over the last 10 years, and Gina Pieroni, who has raised over $4,000 for MDA. We are excited to also have the Mayor of Spring Valley, Mayor Jasmine Norami support our efforts and be locked up for a good cause!

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. The majority of contributions to MDA come from individual donors.

For more information on this event please contact Amanda Cann at acann@mdausa.org or (914) 345-5062 or Brooke Eder at beder@mdausa.org or (203) 288-3500.

Friday, July 23, 2010

NALC Branch 387 to Have Third Annual Softball Tournament and Picnic to Benefit MDA

Yonkers, N.Y., July 23, 2010 – The National Association of Letter Carriers (NALC) Branch 387 will have its third annual Co-Ed Softball Tournament and Picnic to benefit the Muscular Dystrophy Association (MDA) on Sunday, August 1, 2010.

The tournament and picnic will be held at Redmond/Cook Field at 207 Cook Avenue in Yonkers, N.Y. from 9 a.m. until dusk. Participants will not only enjoy a fun day of softball, but also a day full of food, fun, and entertainment. Raffle tickets for a variety of prizes will also be sold at the tournament for some wonderful prizes. Children are encouraged to attend and enjoy the fun! The Yonkers Fire Department will be on the scene to provide attendees with entertainment and to join in on the fun as well.
The NALC has set a goal to raise $6,000 this year for the fight against neuromuscular disease. The money raised will allow the local MDA to support families in the surrounding area by providing medical services, support groups, and assistance in purchasing orthopedic equipment and repairs.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education.

For more information about this event please contact Amanda Cann at (914) 345-5062 or acann@mdausa.org or contact Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Tuesday, July 20, 2010

G.H. Berlin Oil Company to Hold 14th Annual Golf Classic to Benefit MDA

MANCHESTER, Conn., July 20, 2010 – G.H. Berlin Oil Company will be holding their 14th annual Golf Classic to benefit the Muscular Dystrophy Association (MDA) on Tuesday, July 27, 2010.

The tournament will take place at Manchester Country Club, located at 305 South Main Street in Manchester, Conn. The event will tee off at 1 p.m. and run until 5:30 p.m. The tournament consists of an 18-hole round and will be followed by dinner, a silent auction and Chinese raffle. Since its inception, the tournament has raised an excess of $250,000. G.H. Berlin has set a goal to raise over $25,000 for MDA at this year’s tournament.

This year, the tournament will be held in memory of Rick Booth, one of the co-owners of G.H. Berlin who passed away last winter. The annual tournament will be renamed the “Rick Booth Memorial Golf Classic” in his honor.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy, and education.

For more information about the event please contact Dan Marquis at (860) 633-4466 or at dmarquis@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

MDA Honors East Hartford College Student with Top Achievement Award for Connecticut


TUCSON, Ariz., July 20, 2010 – The Muscular Dystrophy Association has named Kristin Duquette of East Hartford the recipient of its 2010 Robert Ross Personal Achievement Award for Connecticut.

Duquette, 19, was selected for MDA’s highest achievement award in Connecticut for her outstanding work on behalf of others with disabilities and her determination to excel in the face of personal challenges.

Duquette has facioscapulohumeral muscular dystrophy, which causes weakness and wasting of the muscles around the eyes and mouth, shoulders, upper arms and lower legs. She is ambulatory, but also sometimes uses a wheeled walker or manual wheelchair.

An accomplished swimmer, Duquette has broken three junior national Paralympic records and is the only person in the country with her disability classification to complete the 200-meter backstroke. Her time in the 50-meter backstroke has her world-ranked. A student at Wheaton College, she hopes to qualify for the U.S. Paralympic team for the 2012 Paralympics in London.

Duquette also is an accomplished violinist and public speaker. She has made many presentations to raise awareness of disability issues in communities and schools across Connecticut.

“I’m very pleased to recognize Kristin Duquette as Connecticut’s Robert Ross MDA Personal Achievement Award recipient for 2010,” said MDA President & CEO Gerald C. Weinberg. “Her accomplishments are a tribute to the East Hartford community, and an example of the kind of leadership MDA is proud to support.”

Duquette will accept the award during the local broadcast of the 2010 Jerry Lewis MDA Telethon on September 6 on Fox61 at Mohegan Sun Casino in Uncasville, Conn.

About the award

Duquette was selected as Connecticut’s state recipient after having been selected for a local achievement award by MDA’s Northern Connecticut Chapter.

One person will be selected from among all the state honorees around the country and named MDA’s national 2011 Robert Ross Personal Achievement Award recipient. The national award recipient will be announced on the Jerry Lewis MDA Telethon, broadcast Sept. 5-6.

The award is named in memory of Robert Ross, MDA’s longtime chief executive who died in 2006. Ross created the Personal Achievement Award program in 1992 to recognize the exemplary accomplishments and community service of people who have any of the 40-plus neuromuscular diseases for which MDA seeks treatments and cures.

John Quinlan, a medical doctor from Lakeside Park, Ky., is MDA’s 2010 national award recipient. Quinlan, who has facioscapulohumeral muscular dystrophy, also is director of the MDA clinic at the University of Cincinnati.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.

In the East Hartford area, MDA maintains clinics at Bay State Medical Center in Springfield and Hospital for Special Care in New Britain.

For more information about Personal Achievement Award recipients, visit http://www.mda.org/commprog/paa/.

CHANGE OF DATE: Stratford Local 998 Postpones Fill-the-Boot for MDA until August 28, 2010

STRATFORD, Conn., July 20, 2010 – The Stratford Fire Department Local 998 has changed the date of their Fill-the-Boot drive for the Muscular Dystrophy Association (MDA) to Saturday, August 28, 2010.

Stratford firefighters will be collecting donations for the fight against neuromuscular disease at the Stratford Fire Station on Main Street and Barnum Avenue from 10 AM until 3 PM. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. They have set a goal of $2,500.

The Stratford Fire Department Local 998 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Amanda Cann at (914) 345-5062 or acann@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Monday, July 19, 2010

A&P Charity Golf Classic Raises a Record-Breaking $425,000 for MDA

Far Hills, N.J., July 19, 2010 – Almost 450 golfers participated in The A&P Family of Supermarkets’ 15th Annual Charity Golf Classic, held at Fiddler’s Elbow Country Club in Far Hills, NJ, to benefit the Muscular Dystrophy Association (MDA) on Monday, July 12, 2010.

This year’s A&P Golf Classic raised a record breaking $425,000 for the fight against neuromuscular disease. Considered the largest golf tournament in the country to benefit MDA, the A&P Charity Golf Classic has raised over $4 million in the past fifteen years. A&P also hosts a day of activities at MDA Summer Camp in Spring Valley, N.Y. A&P believes that the best way to be a good neighbor is to give back to the communities they serve. Jayson Torres, A&P Goodwill Ambassador for MDA, came to the tournament to show his support.

“The A&P Charity Golf Classic is the single largest MDA golf outing in the country and a source of pride for many, including myself,” said Tod Van Kirk, MDA Regional Director and a coordinator for the A&P Golf Classic, “This tournament is a great event, a fun day, and a chance for everyone to join in the fight against neuromuscular disease.”

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. The majority of contributions to MDA come from individual donors.

For more information about this event, please contact Tod Van Kirk at (203) 288-3500 or tvankirk@mdausa.org.

Friday, July 16, 2010

Kelly's Kone Konnection of Hamden, Conn. Names Flavors for MDA

Hamden, Conn., July 16, 2010 - Kelly Stone of Kelly's Kone Konnection, located at 2583 Whitney Avenue, Hamden, Conn., has generously named two ice cream flavors for the Muscular Dystrophy Association (MDA) to help promote the 2010 Jerry Lewis MDA Telethon. This is the third consecutive year that Kelly’s Kone Konnection has named a flavor for MDA.

Members of the local community can now enjoy the special edition flavors “S’more Hope for Jerry’s Kids” and “Jerry’s Kids Muscle Mint” during the months of July and August at Kelly’s Kone Konnection.

Kelly’s Kone Konnection’s support in helping us promote the Telethon will definitely increase our viewership in the Hamden area, which will in turn help local families and individuals affected by neuromuscular disease.

The 2010 Jerry Lewis MDA Telethon will be broadcast during Labor Day Weekend (September 5 and 6, 2010) from Mohegan Sun Casino on Fox61 WTIC. Contributions to the Telethon will help fund diagnostic and follow-up care for people with muscular dystrophy, assistance with the purchase and repair of wheelchairs and leg braces, physical, occupational and respiratory therapy consultations, assistance with the purchase of communication devices, medical and scientific conferences and much more. Other services include support groups and MDA’s Annual Summer Camp for children with neuromuscular disease.

MDA is a voluntary health agency dedicated to helping more than one million Americans affected by neuromuscular disorders through programs of worldwide research, comprehensive services, and far reaching professional and public health education.

Bristol Fire Department Local 773 to Fill-the-Boot for MDA

Bristol, Conn., July 16, 2010 – The Bristol Fire Department Local 773 will be filling-the-boot for the Muscular Dystrophy Association (MDA) for the second time this summer on Saturday, July 24, 2010.

Bristol firefighters will be collecting donations for the fight against neuromuscular disease at five different locations from 9 a.m. until noon. The locations include Memorial Boulevard at Mellen Street, Perkins Street at James P. Casey Road, Washington Street at Camp Street, Birch Street at Redstone Hill Road and Maltby Street at Mix Street. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area.

The Bristol Fire Department Local 773 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Casey Bilodeau at (860) 633-4466 or cbilodeau@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Thursday, July 15, 2010

Bridgeport Local 834 to Fill-the-Boot for MDA Four Times This Summer

Bridgeport, Conn., July 15, 2010 – The Bridgeport Fire Department Local 843 will be filling-the-boot for the Muscular Dystrophy Association (MDA) this summer for the first time since 2008. The first of Bridgeport’s four fill-the-boot drives will be held this Saturday, July 17, 2010.

Bridgeport firefighters will be collecting donations for the fight against neuromuscular disease throughout the city at intersections near each of the eight Bridgeport Fire Houses on Saturday, July 17, Saturday, July 24, Saturday, July 31, and Saturday, August 14, 2010. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. The Bridgeport Fire Department is also hosting their Annual Walter Flyntz Golf Tournament to benefit MDA on Thursday, September 9, 2010. Please call Mike Kamszik at (203) 767-3331 for more information. In 2009, Bridgeport Local 834 raised $16,180 from their 2008 Fill-the-Boot program and 2009 Golf Tournament. Since 1981, Bridgeport Local 834 has raised over $345,810. This year, Bridgeport firefighters have set at goal to raise $16,000 for MDA.

The Bridgeport Fire Department Local 834 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Amanda Cann at (914) 345-5062 or acann@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Governor M. Jodi Rell Declares Proclamation for "International Association of Fire Fighters and Muscular Dystrophy Association Summer of 2010"

Hamden, Conn., July 15, 2010 – Governor M. Jodi Rell has issued a proclamation for the State of Connecticut declaring that the Summer of 2010 be known as “International Association of Fire Fighters and Muscular Dystrophy Association Summer.” The proclamation acknowledges the hard work and dedication of Connecticut firefighters, especially considering their loyalty to raising money for the Muscular Dystrophy Association. Connecticut’s firefighters raised over $469,000 in 2009.

The International Association of Fire Fighters (IAFF) is the largest national sponsor of the Muscular Dystrophy Association. In 2009, firefighters across America led by IAFF members raised over $22,737,000 to aid in the fight against neuromuscular disease.

The Muscular Dystrophy Association has been in a partnership with the International Association of Fire Fighters for the past 56 years. The proclamation reads: “The State of Connecticut is exceptionally proud of the dedicated firefighters who practice selfless acts of bravery as they risk their own personal safety to rescue others. Their commitment to protecting our communities sets a fine example of human caring and kindness. In addition to their daily service to our communities, members of the International Association of Fire Fighters have joined the Muscular Dystrophy Association for the past 56 years in the fight against neuromuscular disease.”

MDA is a voluntary health agency dedicated to helping more than one million Americans affected by neuromuscular disorders through programs of worldwide research, comprehensive services, and far reaching professional and public health education.

For more information about this event please contact Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Tuesday, July 13, 2010

Volunteers Needed For 2010 Jerry Lewis MDA Telethon

Garden City, N.Y., July 13, 2010 – The Long Island office of the Muscular Dystrophy Association (MDA) is looking for people interested in volunteering at the local 2010 Jerry Lewis MDA Telethon Pledge Center on Sunday, September 5 and Monday, September 6, 2010. The pledge center is located at the Ruth S. Harley University Center of Adelphi University at 1 South Avenue in Garden City, N.Y.

A vital component of the Telethon is the satellite pledge center that takes the majority of the incoming calls from donors who live throughout Long Island and the Tri-borough area. Volunteers will be needed during the Telethon to help answer phone and prepare mailings beginning on Sunday evening, September 5, 2010 from 9 p.m. until 1 a.m. On Monday, September 6, 2010, volunteers are needed from noon to 4 p.m. and 4 p.m. until 8 p.m.

Since the funds raised at the local Telethon benefit families across New York, MDA will be looking for volunteers from all New York counties. This is a great opportunity for community members to not only help out those affected by neuromuscular disease, but also to be a part of the nationally known Jerry Lewis MDA Telethon.

Those interested in volunteering at the local Telethon must pre-register by calling DeAnna Forrester or Carolyn Miskulin at the Long Island MDA office at (516) 358-1012.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. The majority of contributions to MDA come from individual donors.

Thursday, July 1, 2010

A&P Family of Supermarkets to Host 15th Annual Golf Classic to Benefit MDA

FAR HILLS, N.J., July 1, 2010 – On Monday, July 12, 2010, the A&P Family of Supermarkets will be hosting the 15th Annual Charity Golf Classic to benefit the Muscular Dystrophy Association (MDA). The event will take place from 9 a.m. to 8 p.m. at the beautiful golf course of Fiddler’s Elbow Country Club in Far Hills, N.J.

Considered the largest golf tournament in the country to benefit MDA, the A&P Charity Golf Classic has raised over $4 million in the past fifteen years. Through the generosity of the many friends of A&P, the event was able to donate nearly $505,000 in 2009 for MDA’s research and services. A&P also hosts a day of activities at MDA Summer Camp in Spring Valley, N.Y. A&P believes that the best way to be a good neighbor is to give back to the communities they serve. Jayson Torres, A&P Goodwill Ambassador for MDA, will be at the tournament to show his support.

“The A&P Charity Golf Classic is the single largest MDA golf outing in the country and a source of pride for many, including myself,” said Tod Van Kirk, MDA Regional Director and a coordinator for the A&P Golf Classic, “This tournament is a great event, a fun day, and a chance for everyone to join in the fight against neuromuscular disease.”

Breakfast and registration for the tournament will be at 7 a.m. with tee off at 9 a.m. Before the tournament, golfers can participate in a putting contest at 7:30 a.m. After the tournament there will be a silent auction with cocktails and hors d’oeuvres followed by a live auction and an awards dinner.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Wednesday, June 30, 2010

Rhode Island Firefighters to Announce Statewide Fundraising Goal for MDA


Providence, R.I., June 30, 2009 – The Rhode Island State Association of Fire Fighters will be holding a press conference on Friday, July 30, 2010 at 11 a.m. on the Lawn of the State House in Providence to announce their fundraising goal for the Muscular Dystrophy Association (MDA).

The press conference will not only be held to announce the fire fighters fundraising goal, but also to show their commitment to the fight against neuromuscular disease. Joseph Andriole, Vice President of the Rhode Island State Association of Fire Fighters, will be running the press conference.

Fire Departments across the state, as well as the nation, raise money for MDA mainly by taking part in the fill-the-boot campaign, where fire fighters volunteer their time to collect money at local intersections. All of the proceeds raised go towards MDA’s research programs, services, Summer Camp, and support groups which benefit local Rhode Island individuals and families affected by neuromuscular disease. Last year, the state of Rhode Island rose over $221,000 for MDA.

This is the International Association of Fire Fighter’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is a national voluntary health agency working to defeat muscular dystrophy and related diseases through programs of worldwide research, comprehensive services and far-reaching professional and public health education. MDA also sponsors 220 hospital-affiliated clinics, one of which is at Rhode Island Hospital, and supports nearly 400 research projects around the world.

For more information on this event please contact Jeremy Nappi at (401) 732-1910 or jnappi@mdausa.org or contact Brooke Eder at (203) 288-3500 or at beder@mdausa.org.

ERA Castelo Real Estate Group to Hold Annual Picnic Fundraiser for MDA

SOUTH DARTMOUTH, Mass., June 30, 2010– The ERA Castelo Real Estate Group will be holding its annual Picnic Fundraiser to benefit the Muscular Dystrophy Association (MDA) on Sunday, July 18, 2010 from noon to 6 p.m.

For a $20 donation each, attendees (children are free) will enjoy a fun day filled with food, raffles, prizes, auctions, and entertainment, all while benefiting a great cause. The event will be held at Holy Ghost Grounds, located on Allens Neck Road in South Dartmouth, M.A. Guests will enjoy entertainment from a variety of performances including Bobby Justin, Luis Neves Centerfold, Arlindo Andrade, Faith, Mia, Sandro G and more!!!

Last year, the Castelo picnic raised $33,400 for the fight against neuromuscular disease. Joe Castelo also represented the ERA Castelo Group at the Telethon in Las Vegas last year as the group was recognized as being one of the highest-raising ERA Real Estate groups in the country. This year, the group hopes to raise even more money for the local community affected by neuromuscular disease.

For over 30 years, ERA Real Estate has been a proud and dedicated sponsor of MDA. ERA has raised over $30 million dollars for the fight against neuromuscular disease since its partnership with MDA began in 1977.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about the event or to purchase tickets, please call (508) 995-6291. Those interested can also contact the local MDA office at (401) 732-1910.

New Bedford Fire Department Local 841 to Fill-the-Boot for MDA During the Annual Whaling City Festival

NEW BEDFORD, Mass., June 30, 2010 – The New Bedford Fire Department Local 841 will be filling-the-boot for the Muscular Dystrophy Association (MDA) as part of the annual Whaling City Festival, which will take place at Veterans’ Memorial Buttonwood Park in New Bedford, Mass. from Friday, July 9 until Sunday, July 11, 2010 between 9 a.m. and 8 p.m.

New Bedford firefighters will be collecting donations for the fight against neuromuscular disease at various times throughout the day during the three-day festival. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. In 2009, New Bedford firefighters raised $10,800 for MDA. This year they have set a goal of $15,000.

The New Bedford Fire Department Local 841 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Jim Kummer at (508) 951-9411 or Jeremy Nappi at (401) 732-1910 or jnappi@mdausa.org.

For information concerning the City Whaling Festival, visit http://www.whalingcityfestival.com/

Local Support Sends Youth to MDA Summer Camp


NEW HAVEN, Conn., June 30, 2010- Over 30 youth from cities throughout Conn. will be attending the Muscular Dystrophy Association’s (MDA) annual summer camp for kids at Camp Hemlocks in Hebron, Conn from July 11 until July 16.

MDA's camp programs offer the unique experience for young people with neuromuscular diseases to participate in a variety of events created to develop friendships, share interests and build self confidence. The camp consists of a week long session featuring typical camp activities adapted for youths between the ages of six and 17 with one of the over 40 neuromuscular diseases. The camper fee is covered entirely by generous support from local corporations, groups and individuals who raise funds to support MDA no cost is incurred by the family.

This year, campers will enjoy a myriad of activities throughout the week including archery, swimming, fishing, a climbing wall, and arts and crafts. Highlights of the week include a Magic Show, donated by a R.I. MDA family, a Harley Bike Show, sponsored by Harley Davidson’s New London HOG chapter, a scavenger hunt, movie night, carnival games and motorcycle rides.

The annual VIP Day will take place on Wednesday, July 14. On VIP Day, parents, prospective campers, media and sponsors can visit the camp. There is also a camp-wide carnival with special activities and a number of booths run by sponsors. Michael John of Long Island Sound will host a DJ booth where campers can learn how to DJ. There will also be a photography booth, hosted by Robert Jones of Robert Jones LLC, and a Nintendo Wii booth, hosted by the Hospital for Special Care. Campers will have the opportunity to explore an antique fire truck, provided by Bob Carlson and the Wallingford Fire Department. Campers can also participate in a team Wheelchair Derby Relay Race, sponsored by Joseph Michalak of Genzyme Therapeutics and Elizabeth Vernon of Athena Diagnostics. VIP Day will conclude with a Silent Auction event where campers use their “MDA Dollars” to bid on auction items. Campers can collect “MDA Dollars” from sponsors during VIP day festivities.

“MDA summer camp is a special week of the year when children with muscular dystrophy can enjoy themselves in true peer group and can participate in full range outdoor activities adapted to their abilities,” MDA Camp Director Jennifer Dain said. “Besides being great fun, camp helps youngsters grow and develop emotionally and socially-it’s truly the highlight of the year, for both campers and volunteers.”

Camp Hemlocks has been a longtime host of the MDA summer camp. Camp Hemlocks is located on 160 acres in Hebron, Conn. (just 25 minutes from Hartford). The camp overlooks Jones Pond and borders the Salmon River Forest.
MDA is a voluntary health agency dedicated to helping more than one million Americans affected by neuromuscular disorders through programs of worldwide research, comprehensive services, and far reaching professional and public health education.

For more information about this event please contact Jennifer Dain at (203) 248-6500 or jdain@mdausa.org.



Tuesday, June 29, 2010

Bristol Fire Department Local 773 to Fill-the-Boot for MDA

Bristol, Conn., June 29, 2010 – The Bristol Fire Department Local 773 will be filling-the-boot for the Muscular Dystrophy Association (MDA) for the second time this summer on Saturday, July 24, 2010.

Bristol firefighters will be collecting donations for the fight against neuromuscular disease at five different locations from 9 a.m. until noon. The locations include Memorial Boulevard at Mellen Street, Perkins Street at James P. Casey Road, Washington Street at Camp Street, Birch Street at Redstone Hill Road and Maltby Street at Mix Street. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area.

The Bristol Fire Department Local 773 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Casey Bilodeau at (860) 633-4466 or cbilodeau@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

West Point Local F-7 To Hold First Ever Golf Tournament for MDA

West Point, N.Y., June 29, 2010 – The West Point Fire Department Local F-7 will be holding their first ever golf tournament to benefit the Muscular Dystrophy Association (MDA) on Monday, July 19, 2010.

The tournament will take place at West Point Golf Club, located on Route 9 West in West Point, N.Y. The event will tee off at 9 a.m. and run until 7 p.m. The tournament will be followed by dinner and an award ceremony.

Registration for one golfer costs $110 and registration for a foursome costs $440. Proceeds benefit numerous local families in the tri-state area who are served by MDA. The West Point Local F-7 has set a goal to raise $5,000 at this event.

The West Point Fire Department Local F-7 is part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to MDA. Since 1954 they have raised nearly $275 million for the organization. They are the largest national sponsor of MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education.

For more information on this event or to register please contact Brooke Eder at (203) 288-3500 or beder@mdausa.org or Amanda Cann at (914) 345-5062 or acann@mdausa.org.

Monday, June 28, 2010

Local East Rutherford Business Leaders Get "Locked Up" to Fight Muscular Dystrophy

Maywood, N.J., June 28, 2010 – Across the country, thousands of law abiding citizens are going “behind bars for good” to help MDA on Tuesday, June 29, 2010 from 11 a.m. until 3 p.m. at Park & Orchard Restaurant at 240 Hackensack St. in East Rutherford, N.J. Local business owners of East Rutherford, Rutherford, Lyndhurst, Moonachie, Carlstadt, and Teterboro, N.J. are once again helping out the Muscular Dystrophy Association (MDA) by participating in MDA’s annual Lock Up program.

Here and throughout the country, thousands of “jailbirds” will get locked up and try to post bail by raising money through their colleagues, friends, and family. The Lock Up program is MDA’s number one fundraising program getting local business leaders involved.

MDA’s Lock Up program directly helps local families affected by diseases such as Duchenne muscular dystrophy and ALS (Lou Gehrig’s disease). The money “jailbirds” raise helps to support MDA’s worldwide research programs, as well as MDA’s national network of 225 hospital-affiliated clinics, including the clinic at UMDNJ. “Jailbirds” bail money also helps send children with muscular dystrophy in Northern New Jersey to barrier-free MDA summer camp at Visions Vacation Camp in Spring Valley, N.Y.

Last year, the Lock Up in East Rutherford raised over $30,000, joining other cities around the country in supporting the popular annual tradition. This year, the goal has been increased to $60,000!

“Being thrown in jail for having a big heart always brings out the finest qualities in the people of East Rutherford,” said Kimberly Schleyer, MDA Maywood Executive Director, “Our local business leaders that participate in the program show they genuinely care about children and adults in our community who live with muscular dystrophy.”

MDA is a voluntary health agency working to defeat muscular dystrophy through programs of worldwide research, comprehensive services and far-reaching professional and public health education. The Association’s programs are funded almost entirely by individual private contributors.

To learn more about the East Rutherford Lock Up and other MDA programs, contact your local MDA Executive Director, Kim Schleyer at (201) 843-4452.

Wednesday, June 23, 2010

Torrington Lock-Up Raises Nearly $29,000 for MDA

Hartford, Conn., June 23, 2010 – The Hartford Chapter of the Muscular Dystrophy Association (MDA) held their annual Hartford Executive Lock-Up on Tuesday, June 22, 2010 at Cambridge House in Torrington.

Business leaders from Torrington, Winsted and New Hartford were arrested at their place of business and transported to Cambridge House, located at 84 Main Street in Torrington, to serve time at the local MDA Lock-Up. During their incarceration, “jailbirds” enjoyed complimentary “jail” food while they called friends and family to help them make “bail.” The “jailbirds” were recruited prior to the event and were encouraged to pre-raise “bail” in the weeks leading up to the Lock-Up. Individual participants raised an average bail of $473. This year the local MDA raised nearly $29,000 at the Lock Up. All of the proceeds will support MDA and the fight against neuromuscular disease.

Sven Holmgren from Viking Remodeling was the highest-collecting “jailbird,” raising $3,110 and counting! Other top “jaibirds” included Rich Ducci of Ducci Electric who raised $3, 035, Althea “Candy” Perez who raised $2,490, Reverand Jackie Hall from Winchester Center who raised $1,384, and Carol Monroe from Northwest Commmunity Bank who raised $1,087. Special thanks to Kim from the Cambridge House and our volunteers from Kohl’s, Torrington Honda, Mitchell Auto Group, and the Torrington Police Department.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. The majority of contributions to MDA come from individual donors.

For more information about this event please contact Melody Avery at (203) 288-3500 or mavery@mdausa.org or contact Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Stratford Local 998 to Fill-the-Boot for MDA

STRATFORD, Conn., June 23, 2010 – The Stratford Fire Department Local 998 will be filling-the-boot for the Muscular Dystrophy Association (MDA) this summer on Saturday, July 17, 2010.

Stratford firefighters will be collecting donations for the fight against neuromuscular disease at the Stratford Fire Station at 2750 Main Street from 10 a.m. until 3 p.m. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. They have set a goal of $ 2,500.

The Stratford Fire Department Local 998 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Amanda Cann at (914) 345-5062 or acann@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Tuesday, June 22, 2010

Montville Firefighters Host Poker Run to Benefit MDA

Montville, Conn., June 22, 2010 – The Montville Firefighters Local 3386 will hold a Poker Run on Saturday, July 17, 2010 to benefit the Muscular Dystrophy Association (MDA).

Motorcyclists can register for the event and begin the ride at Brown Derby on Route 32 in Montville, Conn. Registration will cost $25 per bike and $5 per rider. There will be food for purchase, a cash bar, live music by Thrust and raffles. For those who don’t ride, all are welcome to come for the food band and raffles. A donation of $5 per person will be collected.

The poker run will kick off with a shot gun start at Brown Derby at 11:30 a.m. The stops include Brookside Café in Preston, Conn., Sunset Ribs in Waterford, Conn., Smokey O’Gradys in East Lyme, Conn., Stash’s in New London, Conn. The poker run will end at the Brown Derby in Montville at 4 p.m.

The event is called a poker run because participants will be able to draw one playing card at each of the five stops. At the finish line, riders will receive their fifth card and can purchase an additional card for $5 each after receiving their last card, however only five cards per rider can be played. The person with the best hand after the ride will win a cash prize.

All proceeds from the event will go towards the Montville Fire Department’s Fill-the-Boot campaign, which supports the fight against neuromuscular disease.

The Montville Fire Department Local 3386 is part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. The majority of contributions to MDA come from individual donors.

For more information about this event please contact Lauren Joyce at (203) 248-6500 or ljoyce@mdausa.org or contact Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Long Beach Firefighters Local 287 to Fill-the-Boot for MDA

LONG BEACH, N.Y., June 21, 2010 – The Long Beach Fire Department Local 287 will be filling-the-boot for the Muscular Dystrophy Association (MDA) on Saturday, July 17 and Sunday, July 18, 2010.

Long Beach firefighters will be collecting donations for the local families affected with muscular dystrophy and related neuromuscular diseases from 10 a.m. until 2 p.m. at the intersection of East Park Avenue and Long Beach Boulevard in Long Beach, N.Y. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. Since 2005 Long Beach firefighters raised $31,343 through their fill-the-boot efforts. This year, they have set a goal to raise at least $10,000.

The Long Beach Fire Department Local 287 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Deanna Forrester at (516) 358-1012 or dforrester@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Monday, June 21, 2010

Woodbridge Professional Firefighters Burned the Roof Raising Funds for MDA


Woodbridge, N.J., June 21, 2010 – The Woodbridge Township Fire Department Local 290 held a Bowl-A-Thon Fundraiser at the Woodbridge Bowling Center on Saturday, June 12, 2010 to benefit local families served by the Muscular Dystrophy Association (MDA) in Central N.J.

Over 20 firefighters and their friends and family came to bowl for a great cause, raising over $5,000 for the Association. MDA N.J. Goodwill Ambassador and local Fords, N.J. resident, Sierra Acevedo, was there to show her support and cheer on the bowlers.

The Woodbridge Township Professional Firefighters Local 290 is part of the International Association of Fire Fighters (IAFF). The IAFF made it their mission to help MDA 56 year ago, and has since dedicating many hours to fundraising and volunteering, all to help raise awareness and find treatment and cures for neuromuscular diseases. Today, the IAFF is the largest national sponsor of MDA, raising over $275 million since fundraising began in 1954.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

CHANGE OF DATE! Scarsdale Fire Department Local 1394 to Hold Fill-the-Boot Drive for MDA

SCARSDALE, N.Y., June 21, 2010 – The Scarsdale Fire Department, Local 1394 will be filling-the-boot for the Muscular Dystrophy Association (MDA) for the second year in a row this summer. Please note that the date for the fill-the-boot drive has been moved to Wednesday, June 23, 2010.

Scarsdale firefighters will be collecting donations for the fight against neuromuscular disease at the Scarsdale Fire Station from 6 AM until 9:30 AM. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. This year they have set a goal of $2,500.

The Scarsdale Fire Department Local 1394 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Amanda Cann at (914) 345-5062 or acann@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Friday, June 18, 2010

Calling all artists! Unsigned and ready to shine? Here's your chance!

Contest Hosted by Clear Channel Broadcasting, Inc. and iheartradio.com


The Muscular Dystrophy Association is giving four unsigned artists/bands the opportunity to Get Discovered on national television. If chosen, you will be flown to Las Vegas in September to perform live on the 2010 MDA Labor Day Telethon.

We are looking for the next big thing in Rock, Country, Alternative and Pop. Are you it? Contest ends July 26, 2010.

To learn more about the Muscular Dystrophy Association Telethon, visit the My Community Access MDA page.

Watertown Fire Department to Hold Fill-the-Boot Drive for MDA

WATERTOWN, Conn., June 19, 2010 – The Watertown Fire Department will be filling-the-boot for the Muscular Dystrophy Association (MDA) on Friday, June 25 and Saturday, June 26, 2010.

On Friday, June 25, Watertown firefighters will be collecting donations for the fight against neuromuscular disease from 3 p.m. to 6 p.m. at the intersection of Route 262 and Buckingham Road. On Saturday, June 26, firefighters will be filling-the-boot from 9 a.m. until 1 p.m. at various locations on Main Street in Watertown and Oakville. Area Junior Goodwill Ambassador T.J. MacClean will be at the Watertown Fire Department on Saturday to greet the fire fighters as they return after the Boot Drive. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area.

The Watertown Fire Department has been supporting MDA for over two decades, raising over $125,000 for the Association. This year, the Watertown Fire Department, under the direction of Lieutenant Kevin Palmer, has set a goal to raise $10,000 with their fill-the-boot efforts.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Dan Marquis at (860) 633-4466 or dmarquis@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

MDA Hosts Cocktail Reception to Kick Off 15th Annual Phil Villapiano Field of Hope Gala

Tinton Falls, N.J., June 19, 2010 – On Wednesday, June 16, 2010, the Muscular Dystrophy Association (MDA) hosted a cocktail reception to kick off the 15th annual Phil Villapiano Field of Hope Gala at 7 p.m. at Nauvoo Grill Club in Fair Haven, N.J.

The Phil Villapiano Field of Hope Gala is an annual black tie event that aims to raise money to benefit MDA’s ALS research program while also helping to raise awareness for amyotrophic lateral sclerosis (ALS, Lou Gehrig’s Disease). Last year, the Gala raised nearly $150,000 for MDA.

Attendees at the reception included committee members, current sponsors and past honorees. The 2010 Lou Gehrig Humanitarian Award recipients, Warren Diamond and Stacey Cooper, were also in attendance.

Amyotrophic lateral sclerosis (ALS, Lou Gehrig’s Disease) is prominent among the neuromuscular diseases in MDA’s program. ALS, which affects some 30,000 Americans, progressively destroys the nerve cells controlling muscles in healthy adults, leading to paralysis, and eventually death. The exact cause of the devastating disease is unknown. MDA leads the scientific battle to find a cure for the disease, funding more ALS research than any other voluntary health agency in the United States.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. The majority of contributions to MDA come from individual donors.

For more information on this event please contact Nicole Ryba at (732) 936-9940 or nryba@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Thursday, June 17, 2010

West Haven Fire Department Local 1198 to Hold Citywide Car Wash and Fill-the-Boot to Benefit MDA

WEST HAVEN, Conn., June 17, 2010 – The West Haven Fire Department Local 1198 will hold a citywide car wash and fill-the-boot for the Muscular Dystrophy Association (MDA) on Saturday, June 26, 2010. In the event of rain, the event will be moved to Sunday, June 27, 2010.

The three fire districts of the West Haven Fire Department will be washing cars and collecting donations for the fight against neuromuscular disease at three different locations in West Haven from 9 a.m. until 2 p.m. including the Steven Heights Fire Station at 99 Meloy Road, the Dawson Avenue Fire Station at 860 Ocean Avenue and Dadds Xtreme Indoor Sports at 867 Boston Post Road. The West Haven Local 1198 is aiming to raise $5,000 at this event. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. Last year, West Haven locals raised a total of $17,300 for MDA. This year they have set a goal to raise a total of $18,000 through all of their fill-the-boot fundraising efforts.

Volunteers are more than welcome to help out at this event. To get involved, contact any of the fire stations in West Haven or stop by on the day of the event.
The West Haven Fire Department Local 1198 is part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to MDA. Since 1954 they have raised nearly $275 million for the organization. They are the largest national sponsor of MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and far-reaching professional and public health education.

For more information about this event please contact Lauren Joyce at (203) 248-6500 or ljoyce@mdausa.org or contact Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Wednesday, June 16, 2010

Englewood Local 3260 Will Fill-the-Boot for MDA from June 15-18

ENGLEWOOD, N.J., June 15, 2010 – The Englewood Fire Department Local 3260 will be filling-the-boot for the Muscular Dystrophy Association (MDA) this summer from Tuesday, June 15, 2010 to Friday, June 18, 2010.

Englewood firefighters will be collecting donations for the fight against neuromuscular disease at major intersections in Englewood, including the intersection of Dean Street and East Palisades Avenue. Fire fighters will be filling-the-boot from 9:30 a.m. until 11:30 a.m. and from 3:30 p.m. to 6:30 p.m. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. They have set a goal of $8,000 but Union President Pat Florio is confident they can hit $10,000.

The Englewood Fire Department Local 3260 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Kim Schleyer at (201) 843-4452 or kschleyer@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.