Wednesday, June 30, 2010

Rhode Island Firefighters to Announce Statewide Fundraising Goal for MDA


Providence, R.I., June 30, 2009 – The Rhode Island State Association of Fire Fighters will be holding a press conference on Friday, July 30, 2010 at 11 a.m. on the Lawn of the State House in Providence to announce their fundraising goal for the Muscular Dystrophy Association (MDA).

The press conference will not only be held to announce the fire fighters fundraising goal, but also to show their commitment to the fight against neuromuscular disease. Joseph Andriole, Vice President of the Rhode Island State Association of Fire Fighters, will be running the press conference.

Fire Departments across the state, as well as the nation, raise money for MDA mainly by taking part in the fill-the-boot campaign, where fire fighters volunteer their time to collect money at local intersections. All of the proceeds raised go towards MDA’s research programs, services, Summer Camp, and support groups which benefit local Rhode Island individuals and families affected by neuromuscular disease. Last year, the state of Rhode Island rose over $221,000 for MDA.

This is the International Association of Fire Fighter’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is a national voluntary health agency working to defeat muscular dystrophy and related diseases through programs of worldwide research, comprehensive services and far-reaching professional and public health education. MDA also sponsors 220 hospital-affiliated clinics, one of which is at Rhode Island Hospital, and supports nearly 400 research projects around the world.

For more information on this event please contact Jeremy Nappi at (401) 732-1910 or jnappi@mdausa.org or contact Brooke Eder at (203) 288-3500 or at beder@mdausa.org.

ERA Castelo Real Estate Group to Hold Annual Picnic Fundraiser for MDA

SOUTH DARTMOUTH, Mass., June 30, 2010– The ERA Castelo Real Estate Group will be holding its annual Picnic Fundraiser to benefit the Muscular Dystrophy Association (MDA) on Sunday, July 18, 2010 from noon to 6 p.m.

For a $20 donation each, attendees (children are free) will enjoy a fun day filled with food, raffles, prizes, auctions, and entertainment, all while benefiting a great cause. The event will be held at Holy Ghost Grounds, located on Allens Neck Road in South Dartmouth, M.A. Guests will enjoy entertainment from a variety of performances including Bobby Justin, Luis Neves Centerfold, Arlindo Andrade, Faith, Mia, Sandro G and more!!!

Last year, the Castelo picnic raised $33,400 for the fight against neuromuscular disease. Joe Castelo also represented the ERA Castelo Group at the Telethon in Las Vegas last year as the group was recognized as being one of the highest-raising ERA Real Estate groups in the country. This year, the group hopes to raise even more money for the local community affected by neuromuscular disease.

For over 30 years, ERA Real Estate has been a proud and dedicated sponsor of MDA. ERA has raised over $30 million dollars for the fight against neuromuscular disease since its partnership with MDA began in 1977.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about the event or to purchase tickets, please call (508) 995-6291. Those interested can also contact the local MDA office at (401) 732-1910.

New Bedford Fire Department Local 841 to Fill-the-Boot for MDA During the Annual Whaling City Festival

NEW BEDFORD, Mass., June 30, 2010 – The New Bedford Fire Department Local 841 will be filling-the-boot for the Muscular Dystrophy Association (MDA) as part of the annual Whaling City Festival, which will take place at Veterans’ Memorial Buttonwood Park in New Bedford, Mass. from Friday, July 9 until Sunday, July 11, 2010 between 9 a.m. and 8 p.m.

New Bedford firefighters will be collecting donations for the fight against neuromuscular disease at various times throughout the day during the three-day festival. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. In 2009, New Bedford firefighters raised $10,800 for MDA. This year they have set a goal of $15,000.

The New Bedford Fire Department Local 841 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Jim Kummer at (508) 951-9411 or Jeremy Nappi at (401) 732-1910 or jnappi@mdausa.org.

For information concerning the City Whaling Festival, visit http://www.whalingcityfestival.com/

Local Support Sends Youth to MDA Summer Camp


NEW HAVEN, Conn., June 30, 2010- Over 30 youth from cities throughout Conn. will be attending the Muscular Dystrophy Association’s (MDA) annual summer camp for kids at Camp Hemlocks in Hebron, Conn from July 11 until July 16.

MDA's camp programs offer the unique experience for young people with neuromuscular diseases to participate in a variety of events created to develop friendships, share interests and build self confidence. The camp consists of a week long session featuring typical camp activities adapted for youths between the ages of six and 17 with one of the over 40 neuromuscular diseases. The camper fee is covered entirely by generous support from local corporations, groups and individuals who raise funds to support MDA no cost is incurred by the family.

This year, campers will enjoy a myriad of activities throughout the week including archery, swimming, fishing, a climbing wall, and arts and crafts. Highlights of the week include a Magic Show, donated by a R.I. MDA family, a Harley Bike Show, sponsored by Harley Davidson’s New London HOG chapter, a scavenger hunt, movie night, carnival games and motorcycle rides.

The annual VIP Day will take place on Wednesday, July 14. On VIP Day, parents, prospective campers, media and sponsors can visit the camp. There is also a camp-wide carnival with special activities and a number of booths run by sponsors. Michael John of Long Island Sound will host a DJ booth where campers can learn how to DJ. There will also be a photography booth, hosted by Robert Jones of Robert Jones LLC, and a Nintendo Wii booth, hosted by the Hospital for Special Care. Campers will have the opportunity to explore an antique fire truck, provided by Bob Carlson and the Wallingford Fire Department. Campers can also participate in a team Wheelchair Derby Relay Race, sponsored by Joseph Michalak of Genzyme Therapeutics and Elizabeth Vernon of Athena Diagnostics. VIP Day will conclude with a Silent Auction event where campers use their “MDA Dollars” to bid on auction items. Campers can collect “MDA Dollars” from sponsors during VIP day festivities.

“MDA summer camp is a special week of the year when children with muscular dystrophy can enjoy themselves in true peer group and can participate in full range outdoor activities adapted to their abilities,” MDA Camp Director Jennifer Dain said. “Besides being great fun, camp helps youngsters grow and develop emotionally and socially-it’s truly the highlight of the year, for both campers and volunteers.”

Camp Hemlocks has been a longtime host of the MDA summer camp. Camp Hemlocks is located on 160 acres in Hebron, Conn. (just 25 minutes from Hartford). The camp overlooks Jones Pond and borders the Salmon River Forest.
MDA is a voluntary health agency dedicated to helping more than one million Americans affected by neuromuscular disorders through programs of worldwide research, comprehensive services, and far reaching professional and public health education.

For more information about this event please contact Jennifer Dain at (203) 248-6500 or jdain@mdausa.org.



Tuesday, June 29, 2010

Bristol Fire Department Local 773 to Fill-the-Boot for MDA

Bristol, Conn., June 29, 2010 – The Bristol Fire Department Local 773 will be filling-the-boot for the Muscular Dystrophy Association (MDA) for the second time this summer on Saturday, July 24, 2010.

Bristol firefighters will be collecting donations for the fight against neuromuscular disease at five different locations from 9 a.m. until noon. The locations include Memorial Boulevard at Mellen Street, Perkins Street at James P. Casey Road, Washington Street at Camp Street, Birch Street at Redstone Hill Road and Maltby Street at Mix Street. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area.

The Bristol Fire Department Local 773 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Casey Bilodeau at (860) 633-4466 or cbilodeau@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

West Point Local F-7 To Hold First Ever Golf Tournament for MDA

West Point, N.Y., June 29, 2010 – The West Point Fire Department Local F-7 will be holding their first ever golf tournament to benefit the Muscular Dystrophy Association (MDA) on Monday, July 19, 2010.

The tournament will take place at West Point Golf Club, located on Route 9 West in West Point, N.Y. The event will tee off at 9 a.m. and run until 7 p.m. The tournament will be followed by dinner and an award ceremony.

Registration for one golfer costs $110 and registration for a foursome costs $440. Proceeds benefit numerous local families in the tri-state area who are served by MDA. The West Point Local F-7 has set a goal to raise $5,000 at this event.

The West Point Fire Department Local F-7 is part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to MDA. Since 1954 they have raised nearly $275 million for the organization. They are the largest national sponsor of MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education.

For more information on this event or to register please contact Brooke Eder at (203) 288-3500 or beder@mdausa.org or Amanda Cann at (914) 345-5062 or acann@mdausa.org.

Monday, June 28, 2010

Local East Rutherford Business Leaders Get "Locked Up" to Fight Muscular Dystrophy

Maywood, N.J., June 28, 2010 – Across the country, thousands of law abiding citizens are going “behind bars for good” to help MDA on Tuesday, June 29, 2010 from 11 a.m. until 3 p.m. at Park & Orchard Restaurant at 240 Hackensack St. in East Rutherford, N.J. Local business owners of East Rutherford, Rutherford, Lyndhurst, Moonachie, Carlstadt, and Teterboro, N.J. are once again helping out the Muscular Dystrophy Association (MDA) by participating in MDA’s annual Lock Up program.

Here and throughout the country, thousands of “jailbirds” will get locked up and try to post bail by raising money through their colleagues, friends, and family. The Lock Up program is MDA’s number one fundraising program getting local business leaders involved.

MDA’s Lock Up program directly helps local families affected by diseases such as Duchenne muscular dystrophy and ALS (Lou Gehrig’s disease). The money “jailbirds” raise helps to support MDA’s worldwide research programs, as well as MDA’s national network of 225 hospital-affiliated clinics, including the clinic at UMDNJ. “Jailbirds” bail money also helps send children with muscular dystrophy in Northern New Jersey to barrier-free MDA summer camp at Visions Vacation Camp in Spring Valley, N.Y.

Last year, the Lock Up in East Rutherford raised over $30,000, joining other cities around the country in supporting the popular annual tradition. This year, the goal has been increased to $60,000!

“Being thrown in jail for having a big heart always brings out the finest qualities in the people of East Rutherford,” said Kimberly Schleyer, MDA Maywood Executive Director, “Our local business leaders that participate in the program show they genuinely care about children and adults in our community who live with muscular dystrophy.”

MDA is a voluntary health agency working to defeat muscular dystrophy through programs of worldwide research, comprehensive services and far-reaching professional and public health education. The Association’s programs are funded almost entirely by individual private contributors.

To learn more about the East Rutherford Lock Up and other MDA programs, contact your local MDA Executive Director, Kim Schleyer at (201) 843-4452.

Wednesday, June 23, 2010

Torrington Lock-Up Raises Nearly $29,000 for MDA

Hartford, Conn., June 23, 2010 – The Hartford Chapter of the Muscular Dystrophy Association (MDA) held their annual Hartford Executive Lock-Up on Tuesday, June 22, 2010 at Cambridge House in Torrington.

Business leaders from Torrington, Winsted and New Hartford were arrested at their place of business and transported to Cambridge House, located at 84 Main Street in Torrington, to serve time at the local MDA Lock-Up. During their incarceration, “jailbirds” enjoyed complimentary “jail” food while they called friends and family to help them make “bail.” The “jailbirds” were recruited prior to the event and were encouraged to pre-raise “bail” in the weeks leading up to the Lock-Up. Individual participants raised an average bail of $473. This year the local MDA raised nearly $29,000 at the Lock Up. All of the proceeds will support MDA and the fight against neuromuscular disease.

Sven Holmgren from Viking Remodeling was the highest-collecting “jailbird,” raising $3,110 and counting! Other top “jaibirds” included Rich Ducci of Ducci Electric who raised $3, 035, Althea “Candy” Perez who raised $2,490, Reverand Jackie Hall from Winchester Center who raised $1,384, and Carol Monroe from Northwest Commmunity Bank who raised $1,087. Special thanks to Kim from the Cambridge House and our volunteers from Kohl’s, Torrington Honda, Mitchell Auto Group, and the Torrington Police Department.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. The majority of contributions to MDA come from individual donors.

For more information about this event please contact Melody Avery at (203) 288-3500 or mavery@mdausa.org or contact Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Stratford Local 998 to Fill-the-Boot for MDA

STRATFORD, Conn., June 23, 2010 – The Stratford Fire Department Local 998 will be filling-the-boot for the Muscular Dystrophy Association (MDA) this summer on Saturday, July 17, 2010.

Stratford firefighters will be collecting donations for the fight against neuromuscular disease at the Stratford Fire Station at 2750 Main Street from 10 a.m. until 3 p.m. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. They have set a goal of $ 2,500.

The Stratford Fire Department Local 998 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Amanda Cann at (914) 345-5062 or acann@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Tuesday, June 22, 2010

Montville Firefighters Host Poker Run to Benefit MDA

Montville, Conn., June 22, 2010 – The Montville Firefighters Local 3386 will hold a Poker Run on Saturday, July 17, 2010 to benefit the Muscular Dystrophy Association (MDA).

Motorcyclists can register for the event and begin the ride at Brown Derby on Route 32 in Montville, Conn. Registration will cost $25 per bike and $5 per rider. There will be food for purchase, a cash bar, live music by Thrust and raffles. For those who don’t ride, all are welcome to come for the food band and raffles. A donation of $5 per person will be collected.

The poker run will kick off with a shot gun start at Brown Derby at 11:30 a.m. The stops include Brookside Café in Preston, Conn., Sunset Ribs in Waterford, Conn., Smokey O’Gradys in East Lyme, Conn., Stash’s in New London, Conn. The poker run will end at the Brown Derby in Montville at 4 p.m.

The event is called a poker run because participants will be able to draw one playing card at each of the five stops. At the finish line, riders will receive their fifth card and can purchase an additional card for $5 each after receiving their last card, however only five cards per rider can be played. The person with the best hand after the ride will win a cash prize.

All proceeds from the event will go towards the Montville Fire Department’s Fill-the-Boot campaign, which supports the fight against neuromuscular disease.

The Montville Fire Department Local 3386 is part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. The majority of contributions to MDA come from individual donors.

For more information about this event please contact Lauren Joyce at (203) 248-6500 or ljoyce@mdausa.org or contact Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Long Beach Firefighters Local 287 to Fill-the-Boot for MDA

LONG BEACH, N.Y., June 21, 2010 – The Long Beach Fire Department Local 287 will be filling-the-boot for the Muscular Dystrophy Association (MDA) on Saturday, July 17 and Sunday, July 18, 2010.

Long Beach firefighters will be collecting donations for the local families affected with muscular dystrophy and related neuromuscular diseases from 10 a.m. until 2 p.m. at the intersection of East Park Avenue and Long Beach Boulevard in Long Beach, N.Y. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. Since 2005 Long Beach firefighters raised $31,343 through their fill-the-boot efforts. This year, they have set a goal to raise at least $10,000.

The Long Beach Fire Department Local 287 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Deanna Forrester at (516) 358-1012 or dforrester@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Monday, June 21, 2010

Woodbridge Professional Firefighters Burned the Roof Raising Funds for MDA


Woodbridge, N.J., June 21, 2010 – The Woodbridge Township Fire Department Local 290 held a Bowl-A-Thon Fundraiser at the Woodbridge Bowling Center on Saturday, June 12, 2010 to benefit local families served by the Muscular Dystrophy Association (MDA) in Central N.J.

Over 20 firefighters and their friends and family came to bowl for a great cause, raising over $5,000 for the Association. MDA N.J. Goodwill Ambassador and local Fords, N.J. resident, Sierra Acevedo, was there to show her support and cheer on the bowlers.

The Woodbridge Township Professional Firefighters Local 290 is part of the International Association of Fire Fighters (IAFF). The IAFF made it their mission to help MDA 56 year ago, and has since dedicating many hours to fundraising and volunteering, all to help raise awareness and find treatment and cures for neuromuscular diseases. Today, the IAFF is the largest national sponsor of MDA, raising over $275 million since fundraising began in 1954.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

CHANGE OF DATE! Scarsdale Fire Department Local 1394 to Hold Fill-the-Boot Drive for MDA

SCARSDALE, N.Y., June 21, 2010 – The Scarsdale Fire Department, Local 1394 will be filling-the-boot for the Muscular Dystrophy Association (MDA) for the second year in a row this summer. Please note that the date for the fill-the-boot drive has been moved to Wednesday, June 23, 2010.

Scarsdale firefighters will be collecting donations for the fight against neuromuscular disease at the Scarsdale Fire Station from 6 AM until 9:30 AM. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. This year they have set a goal of $2,500.

The Scarsdale Fire Department Local 1394 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Amanda Cann at (914) 345-5062 or acann@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Friday, June 18, 2010

Calling all artists! Unsigned and ready to shine? Here's your chance!

Contest Hosted by Clear Channel Broadcasting, Inc. and iheartradio.com


The Muscular Dystrophy Association is giving four unsigned artists/bands the opportunity to Get Discovered on national television. If chosen, you will be flown to Las Vegas in September to perform live on the 2010 MDA Labor Day Telethon.

We are looking for the next big thing in Rock, Country, Alternative and Pop. Are you it? Contest ends July 26, 2010.

To learn more about the Muscular Dystrophy Association Telethon, visit the My Community Access MDA page.

Watertown Fire Department to Hold Fill-the-Boot Drive for MDA

WATERTOWN, Conn., June 19, 2010 – The Watertown Fire Department will be filling-the-boot for the Muscular Dystrophy Association (MDA) on Friday, June 25 and Saturday, June 26, 2010.

On Friday, June 25, Watertown firefighters will be collecting donations for the fight against neuromuscular disease from 3 p.m. to 6 p.m. at the intersection of Route 262 and Buckingham Road. On Saturday, June 26, firefighters will be filling-the-boot from 9 a.m. until 1 p.m. at various locations on Main Street in Watertown and Oakville. Area Junior Goodwill Ambassador T.J. MacClean will be at the Watertown Fire Department on Saturday to greet the fire fighters as they return after the Boot Drive. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area.

The Watertown Fire Department has been supporting MDA for over two decades, raising over $125,000 for the Association. This year, the Watertown Fire Department, under the direction of Lieutenant Kevin Palmer, has set a goal to raise $10,000 with their fill-the-boot efforts.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Dan Marquis at (860) 633-4466 or dmarquis@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

MDA Hosts Cocktail Reception to Kick Off 15th Annual Phil Villapiano Field of Hope Gala

Tinton Falls, N.J., June 19, 2010 – On Wednesday, June 16, 2010, the Muscular Dystrophy Association (MDA) hosted a cocktail reception to kick off the 15th annual Phil Villapiano Field of Hope Gala at 7 p.m. at Nauvoo Grill Club in Fair Haven, N.J.

The Phil Villapiano Field of Hope Gala is an annual black tie event that aims to raise money to benefit MDA’s ALS research program while also helping to raise awareness for amyotrophic lateral sclerosis (ALS, Lou Gehrig’s Disease). Last year, the Gala raised nearly $150,000 for MDA.

Attendees at the reception included committee members, current sponsors and past honorees. The 2010 Lou Gehrig Humanitarian Award recipients, Warren Diamond and Stacey Cooper, were also in attendance.

Amyotrophic lateral sclerosis (ALS, Lou Gehrig’s Disease) is prominent among the neuromuscular diseases in MDA’s program. ALS, which affects some 30,000 Americans, progressively destroys the nerve cells controlling muscles in healthy adults, leading to paralysis, and eventually death. The exact cause of the devastating disease is unknown. MDA leads the scientific battle to find a cure for the disease, funding more ALS research than any other voluntary health agency in the United States.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. The majority of contributions to MDA come from individual donors.

For more information on this event please contact Nicole Ryba at (732) 936-9940 or nryba@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Thursday, June 17, 2010

West Haven Fire Department Local 1198 to Hold Citywide Car Wash and Fill-the-Boot to Benefit MDA

WEST HAVEN, Conn., June 17, 2010 – The West Haven Fire Department Local 1198 will hold a citywide car wash and fill-the-boot for the Muscular Dystrophy Association (MDA) on Saturday, June 26, 2010. In the event of rain, the event will be moved to Sunday, June 27, 2010.

The three fire districts of the West Haven Fire Department will be washing cars and collecting donations for the fight against neuromuscular disease at three different locations in West Haven from 9 a.m. until 2 p.m. including the Steven Heights Fire Station at 99 Meloy Road, the Dawson Avenue Fire Station at 860 Ocean Avenue and Dadds Xtreme Indoor Sports at 867 Boston Post Road. The West Haven Local 1198 is aiming to raise $5,000 at this event. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. Last year, West Haven locals raised a total of $17,300 for MDA. This year they have set a goal to raise a total of $18,000 through all of their fill-the-boot fundraising efforts.

Volunteers are more than welcome to help out at this event. To get involved, contact any of the fire stations in West Haven or stop by on the day of the event.
The West Haven Fire Department Local 1198 is part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to MDA. Since 1954 they have raised nearly $275 million for the organization. They are the largest national sponsor of MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and far-reaching professional and public health education.

For more information about this event please contact Lauren Joyce at (203) 248-6500 or ljoyce@mdausa.org or contact Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Wednesday, June 16, 2010

Englewood Local 3260 Will Fill-the-Boot for MDA from June 15-18

ENGLEWOOD, N.J., June 15, 2010 – The Englewood Fire Department Local 3260 will be filling-the-boot for the Muscular Dystrophy Association (MDA) this summer from Tuesday, June 15, 2010 to Friday, June 18, 2010.

Englewood firefighters will be collecting donations for the fight against neuromuscular disease at major intersections in Englewood, including the intersection of Dean Street and East Palisades Avenue. Fire fighters will be filling-the-boot from 9:30 a.m. until 11:30 a.m. and from 3:30 p.m. to 6:30 p.m. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. They have set a goal of $8,000 but Union President Pat Florio is confident they can hit $10,000.

The Englewood Fire Department Local 3260 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Kim Schleyer at (201) 843-4452 or kschleyer@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

UPFFA Holds Press Conference to Announce 2010 Statewide Goal and Kick Off Annual Fill-the-Boot Campaign for MDA


West Hartford, Conn., June 15, 2010- On Tuesday, June 15, 2010 the Uniformed Professional Fire Fighters Association of Conn. (UPFFA) in conjunction with the International Association of Fire Fighters (IAFF), held a Fill-the-Boot kick-off press conference at the West Hartford Local 1241 Fire Headquarters Engine Company 2 in West Hartford, Conn., to demonstrate their ongoing commitment to the Muscular Dystrophy Association (MDA) and the fight against neuromuscular disease in the state of Conn.

The press conference was conducted by the president of the UPFFA, Peter Carozza, Jr., and hosted by West Hartford Local 1241. Other locals in attendance included the New Haven Local 825, Waterbury Local 1339, New Britain Local 992, Guilford Local 4177 and Bridgeport Local 834.

Local Goodwill Ambassador, 4-year-old T.J. McClean, made an appearance at the event. T.J. had the opportunity to meet the fire fighters and receive a tour of the West Hartford Fire House.

Each year Conn. fire fighters of the IAFF raise funds for MDA in many ways, including their trademark Fill-the-Boot program. Last year, the IAFF fire fighters in Conn. raised $483,000 for MDA. This year, Conn. locals have set a goal to raise $558,000 for MDA. “We are making a special appeal to every citizen in our state to donate at least $1 and this $1 will help us reach our goal,” said Peter Carozza, president of the UPFFA, “Help us help the kids of our state.”

The IAFF is the largest national sponsor of the MDA. In 2009, fire fighters across the country collectively raised over $28,000,000 to support the fight against neuromuscular disease. 2010 marks the 56th year that the IAFF has proudly dedicated their time and efforts to MDA. Contributions to local MDA summer camps, professional and public education, and the fill-the-boot drives demonstrate the commitment and loyalty of local fire fighters to “Jerry’s kids.”

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.

For more information on this event please contact Brooke Eder at beder@mdausa.org or (203) 288-3500.

West Haven Fire Department Local 1198 Receives Check to Kick Off Annual Fill-the-Boot Program


NEW HAVEN, Conn., June 14, 2010 – On Monday, June 14, 2010, Aarons Sales and Lease Ownership in West Haven, Conn. presented the West Haven Fire Department Local 1198 witha check for $500 to kick off the West Haven Fire Department’s annual fill-the-boot drive for the Muscular Dystrophy Association (MDA).

The check presentation took place at 10:30 a.m. at Aarons Sales and Lease Ownership which is located at 480 Elm Street in West Haven, Conn. Last year, the West Haven Fire Department raised $17,300 for the fight against neuromuscular disease. This year, the West Haven Fire Department plans to raise $18,000 for MDA. All the proceeds raised from the fill-the-boot drive will go towards MDA’s services, research programs and support groups which benefit local individuals and families affected by neuromuscular disease.

The West Haven Fire Department Local 1198 is part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to MDA. Since 1954 they have raised nearly $275 million for the organization. They are the largest national sponsor of MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and far-reaching professional and public health education.

For more information about this event please contact Lauren Joyce at (203) 248-6500 or ljoyce@mdausa.org or contact Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Local Torrington Business Leaders Get "Locked Up" To Fight Muscular Dystrophy

Hartford, Conn., June 11, 2010 – Local business leaders from Torrington, Winsted, and New Hartford will be heading to “jail” on Tuesday, June 22, 2010 from 10 a.m. until 3 p.m. at Cambridge House in order to raise their “bail” for the Muscular Dystrophy Association (MDA).

Community business leaders will be arrested at their place of business and transported to Cambridge House, located at 84 Main Street in Torrington, to serve their time at the local MDA Lock-Up. At Cambridge House the “jailbirds” will be served complimentary “jail” food while they each attempt to raise their bail money for MDA. In past years, the Torrington Lock Up has raised over $45,000. This year the local MDA has set a bail goal of $2,400 for each participant. All proceeds will go towards the fight against neuromuscular disease.

MDA is a national voluntary health agency working to defeat muscular dystrophy and related diseases through programs of worldwide research, comprehensive services and far-reaching professional and public health education. MDA also supports nearly 400 research projects around the world and sponsors 220 hospital-affiliated clinics.

For more information about this event please contact Melody Avery at (860) 633-4466 or mavery@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Ridgefield Fire Department Local 1739 to Hold Fill the Boot for MDA

RIDGEFIELD, Conn., June 11, 2010 – The Ridgefield Fire Department, Local 1739 will be filling-the-boot for the Muscular Dystrophy Association (MDA) for the second year in a row this summer on Saturday, June 19, 2010.

Ridgefield firefighters will be collecting donations for the fight against neuromuscular disease from 9 a.m. until 12 p.m. at the intersection of Catoonah Street and Main Street. All of the proceeds will go towards MDA’s services, research programs, and support groups that benefit individuals and families in the local area. This year they have set a goal of $5,000.

The Ridgefield Fire Department Local 1739 is a part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of the MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA also supports nearly 330 research projects around the world and sponsors 200 hospital-affiliated clinics.

For more information about this event please contact Amanda Cann at (914) 345-5062 or acann@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

2nd Annual Bear & Bison Pow Wow to Benefit MDA

Brooklyn, Conn., June 11, 2010 – Kevin “Bear” Travers along with a group of fellow Native Americans will hold the second annual Bear & Bison Pow Wow to benefit the Muscular Dystrophy Association (MDA). The event will be held at Creamery Brook Bison Farm in Brooklyn, Conn. on Saturday, June 19, 2010 and Sunday, June 20, 2010.

The gates to the farm will open at 10 a.m., rain or shine, and close at 5 p.m. Tickets will be sold at the entrance at $5 for adults age 16 and older and $3 for seniors age 55 and older. Tickets are free for children under 16 who are accompanied by an adult. MDA will receive $3 from every ticket that is sold.

At noon on Saturday, June 19, 2010, a Grand Entry of all of the attending nations will officially begin the Pow Wow. Attendees will be able to participate in Native American dancing, singing, and craft making, as well as buy Native American crafts and traditional food. Throughout the weekend, attendees will be entertained by three Native American Drum Groups as well as New York State’s Minham Singers. The farm is a working buffalo farm so there are no pets allowed. The farm will also be selling their homemade ice cream all weekend and visitors are welcome to browse the country store.

Parking is free and primitive camping will also be allowed, for free, if the attendees choose to camp overnight at the event. Vendor space is also available for anyone who is interested.
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy, and education.

For more information about the event, please contact Tim Lone Wolf at (860) 585-9444, Bear Travers at (860) 870-5879 or Dan Marquis at (860) 633-4466 or at dmarquis@mdausa.org.

Local Business Leaders Being Sent To Jail For A Good Cause

Providence, R.I., June 9, 2010 – Over 200 local business leaders will be heading to “jail” on Wednesday, June 16, 2010 from 11 a.m. until 2 p.m. at McFadden’s Restaurant & Saloon in order to raise their “bail” for the Muscular Dystrophy Association (MDA).

Community business leaders will be arrested at their place of business and transported to McFadden’s, located at 52 Pine Street, to serve their time at the local MDA Lock-Up. At McFadden’s, the “jailbirds” will be served complimentary “jail” food while they each attempt to raise at least $2,000 in bail money.

The Rhode Island State Police, the Providence Police Department, Sentinel Limo, Angel Limo, and Professional Security Services will be kindly volunteering their time and services to transport participants to and from the event. Last year local “jailbirds” raised $55,000 in bail money, all of which went towards the fight against neuromuscular disease. This year the local MDA has set the same goal of raising $55,000 at the event.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. The majority of contributions to MDA come from individual donors.

For more information on this event please contact Steve Matos at smatos@mdausa.org or (401) 732-1910 or Brooke Eder at beder@mdausa.org or (203) 288-3500.

Visions of Hope Event Raises Over $98,000 for MDA




Tinton Falls, N.J., June 9, 2010 – The third annual Visions of Hope Event, held at the beautiful Addison Park, located in Aberdeen, N.J., was certainly a night to remember, raising over $98,000 for the Muscular Dystrophy Association (MDA).
On the evening of Monday, June 7, 2010, over 300 people attended the third annual Visions of Hope Event, an extraordinary evening of food, art and fashion to benefit MDA of Central N.J. and Staten Island services and summer camp initiatives. Guests had the opportunity to sample foods and desserts prepared by some of N.J.’s finest chefs, with more than 15 different restaurants as well as a selection of wine and spirits. Restaurant and Wine/Spirits Sponsors included Abbate Bakery, Addison Park, Anna’s Italian Kitchen, Ciccone’s Italian Deli, CJ Montana’s, CMSC Spirits, DeMarco’s Catering and Gourmet Deli, Ganga Asian Bistro, Grape Beginnings Wine School, JTE Spirits, Julia’s Restaurant, Kicky’s Restaurant, La Cashina, McDonagh’s Pub, Peter’s Fishery, Pizzuto’s Ravioli, Ocean Wine & Spirits, Scarborough Fair, and Suzi’s Sweet Shoppe. The night also included an upscale silent auction and fashion show, featuring the designs of Ivory & Co., Staten Island and Jos. A. Bank, Holmdel, with BellaDonna Salon donating their services to the models.

Committee member Carol Stillwell raised an astonishing $58,000 during the live campership auction, which will help send children to MDA Summer Camp, located at Camp Visions in Spring Valley, N.Y. Camp Visions is a completely handicap accessible camp provided free of charge to children ages 6 - 17 who are served by MDA. For one week each summer, children enjoy a myriad of activities such as swimming, fishing, sports, talent shows and more. Children are paired with a volunteer counselor who assists them and provides companionship for the entire week.

Visions of Hope Committee Chairman Carmine S. Visone, owner of Home Away From Home Academy, and Meteorologist James Gregorio of News 12 New Jersey presented two awards during the evening. This year’s Humanitarian of the Year award was presented to actor and comedian Joe Piscopo, who has devoted much of his time to non-profits in addition to starting his own foundation, “The Positive Impact Foundation,” which creates positive media for at-risk youths. The Visions of Hope Award was presented to Honorable Louis F. Locascio, J.S.C., Ret, former judge for the Superior Court of N.J. and now of counsel to Gold, Albanese & Barletti, who has been active in his local community, mentoring young lawyers, counseling high school students considering law as a career, and presiding as judge over N.J. Mock Trial competitions in Monmouth County and State Finals. In addition, he was an Award Recipient for the Maria Frangella Foundation for Colon Cancer Research for dedication and commitment to Stars and Dreams for a Cure.

A special thank you to this year’s sponsors who contributed to the success of the evening: CITGO Petroleum, Home Away From Home Academy, Saker ShopRites, Inc., Advantage Management – New Jersey, Distinctive Pools, Living In Media, Millennium Respiratory Services, Pringle Quinn Anzano, PC, and York Telecom Corporation and technology sponsor Best Buy of Holmdel.

All of the proceeds from this event will be used by the local MDA office to provide much-needed services to families served in Central N.J. and Staten Island. The MDA clinic, located at HealthSouth Rehabilitation Hospital of Tinton Falls, offers initial diagnosis, follow-up care and physical, occupational, respiratory and speech therapy evaluations to those living with any of 43 neuromuscular diseases. In addition, children and young adults ages six to 17 can attend the weeklong MDA Summer Camp free of charge.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. The majority of contributions to MDA come from individual donors.

For more information on this event please contact Jenna Schlosser at (732) 936-9940 or jschlosser@mdausa.org or Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Aarons Sales and Lease Ownership Presents West Haven Fire Department Local 1198 With Check to Kick Off Annual Fill-the-Boot Program


NEW HAVEN, Conn., June 8, 2010 – On Monday, June 14, 2010, Aarons Sales and Lease Ownership in West Haven, Conn. will present the West Haven Fire Department Local 1198 a check for $500 to kick off the West Haven Fire Department’s annual fill-the-boot drive for the Muscular Dystrophy Association (MDA).

The check will be presented at 10:30 a.m. at Aarons Sales and Lease Ownership which is located at 480 Elm Street in West Haven, Conn. Last year, the West Haven Fire Department raised $17,300 for the fight against neuromuscular disease. This year, the West Haven Fire Department plans to raise $18,000 for MDA. All the proceeds raised from the fill-the-boot drive will go towards MDA’s services, research programs and support groups which benefit local individuals and families affected by neuromuscular disease.

The West Haven Fire Department Local 1198 is part of the International Association of Fire Fighters (IAFF). This is the IAFF’s 56th year dedicating their time and efforts to MDA. Since 1954 they have raised nearly $275 million for the organization. They are the largest national sponsor of MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and far-reaching professional and public health education.

For more information about this event please contact Lauren Joyce at (203) 248-6500 or ljoyce@mdausa.org or contact Brooke Eder at (203) 288-3500 or beder@mdausa.org.

Seekonk, Attleboro, North Attleboro, and Plainville Fire Departments to Compete in Wing Off for Muscular Dystrophy

Providence, R.I., June 7, 2010 – The International Association of Fire Fighters (IAFF) is raising money for the Muscular Dystrophy Association (MDA) during a three-part Wing Off Tournament between Seekonk Fire Department Local 1931, Attleboro Fire Department Local 848, North Attleboro Fire Department Local 1992 and Plainville Fire Department Local 3415.

The Wing Off Tournament will take place at Bone Yard Barbecue which is located at 540 Central Ave. in Seekonk, Mass. on June 8, 2010, June 22, 2010 and August 10, 2020 at 7 p.m. The team who can eat the most wings (in weight) wins. There will also be an opportunity to participate in a raffle. In the past, this event has raised around $2,000. This year, the IAFF hopes to raise $8,000.

This is the IAFF’s 56th year dedicating their time and efforts to the MDA. Since 1954 they have raised nearly $275 million dollars for the organization. They are the largest national sponsor of MDA and pride themselves on their devotion to the cause.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education, medical and support services, and far-reaching professional and public health education.

For more information on this event please contact Brooke Eder at (203) 288-3500 or beder@mdausa.org or Steve Matos at (401) 732-1910 or smatos@mdausa.org

MDA Seeks Volunteers for 2010 Summer Camp




WESTCHESTER, N.Y. - The Muscular Dystrophy Association (MDA) is searching for people who are looking for a rewarding and memorable experience this summer to join their summer camp. Volunteer counselors are needed to assist young people with neuromuscular diseases and help them enjoy a fun-filled week at MDA summer camp, which will take place from Aug. 21, 2010 to Aug. 28, 2010 at Visions Camp in Spring Valley, N.Y. With less than 100 days until camp begins we need volunteers to sign up now!

Applicants must be at least 18 years old and able to lift and care for a young person between the ages of six and 17. As a volunteer counselor, one will have the opportunity to become a close companion to a camper affected by neuromuscular disease and help them with daily activities such at eating, bathing and dressing. Counselors will also assist campers with recreational activities such as arts and crafts, swimming, and adapted sports.

“MDA summer camp is a special week of the year when children with neuromuscular disease can enjoy themselves in true peer group and can participate in full range outdoor activities adapted to their abilities,” MDA Camp Director, Gloria English said. “Besides being great fun, camp helps youngsters grow and develop emotionally and socially— it’s truly the highlight of the year, for both campers and volunteers.”

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and far-reaching professional and public health education.

Volunteering as a counselor at MDA summer camp is a rewarding and life-changing experience. The friendships formed and the memories created will last forever. To obtain a volunteer application or learn about other ways to support MDA’s summer camp program, call your local MDA office at (800) 572-1717. Additional information about volunteering at MDA summer camp is available online at www.mda.org/clinics/camp. For more information, contact Gloria English at (914) 345-5062 or genglish@mdausa.org.

MDA Opens New Pediatric Clinic at Yale-New Haven Children's Hospital

New Haven, Conn., June 3, 2010 – The Muscular Dystrophy Association (MDA) is pleased to announce the opening of an outpatient pediatric clinic at One Long Wharf, New Haven, Conn. to serve people in Southern Conn. who have any of the over 40 diseases in MDA’s program.

The MDA-sponsored clinic Yale- New Haven Children’s Hospital and the Physicians of Yale Medical Group will offer diagnostic and follow-up care for muscular dystrophy, spinal muscular atrophy, Charcot-Marie-Tooth disease, amyotrophic lateral sclerosis (Leo Gehrig’s disease) and other muscle-wasting diseases.

The MDA-sponsored clinic held its grand opening on May 5, 2010 and will see patients by appointment on the first Wednesday of each month.

Services at the MDA clinic will be provided by pediatric neurologist, pediatric orthopaedic surgeon, pulmonologist, physical and occupational therapists and genetics consultant. The clinic will also offer access to such services as speech and language pathology and social services consultations, as well as to other health specialists skilled in the medical management of these diseases, including cardiology.

The new MDA-sponsored clinic will be co-directed by Board Certified Orthopeadic Surgeon Dr. Brian G. Smith, M.D.; and Professor of Pediatrics and Neurology Dr. Geoffrey Miller, M.D.; and Sumit Bhargava, M.D. Pediatric Pulmonologist and certified sleep specialist, as well as nurse coordinator Louise Lanouette, R.N.

“The MDA-sponsored pediatric clinic at Yale-New Haven Children’s Hospital will enhance MDA;s delivery of important health care services to adults and children with muscle diseases in our community,” Said Lauren Joyce, Executive Director of MDA’s Southeast Conn. Chapter, “In addition to top-rated medical services through MDA clinics, MDA’s local office also offers support groups, summer camps for youngsters, assistance with repairing durable medical equipment and much more. Anyone whose doctor suspects a disease in MDA’s program is invited to contact our office to find out how the Association can be of assistance.”

Those needing to obtain a referral or to schedule an appointment at the clinic please call the Yale-New Haven Children’s Hospital and Pediatric Specialty Centers at (203) 785-4081. The clinic will serve people throughout Southern Conn. and beyond. The MDA-sponsored clinic is one of 220 MDA outpatient clinics that the Association maintains across the country.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education, medical and support services, and far-reaching professional and public health education.

For more information on this event please contact Lauren Joyce at (203) 248-6500 or ljoyce@mdausa or Bob Mackle at (520) 529-5317 or bobmackle@mdausa.org. For more information about MDA;s programs, visit www.mda.org.

2nd Annual "A Day At The Races" To Benefit MDA

Elmont, N.Y., June 3, 2010 – Several area businesses and organizations will join together for the second annual “A Day at the Races” event at the Belmont Race Track in Elmont, N.Y. on June 18, 2010 from 3 p.m. until 7 p.m. to raise funds for the 2010 Muscular Dystrophy Association (MDA) Summer Camp program.

The event will recognize participating businesses and organizations for raising money to send children to MDA Summer Camp at a cocktail party and awards ceremony with a silent auction. MDA’s Summer Camp, located in Spring Valley, N.Y., provides children who are living with a neuromuscular disease a one-week sleepover camp where they can make memories that will last a lifetime.

It costs $800 for one child to attend the camp and sponsorships for this event range from $1,600 to $10,000. A $10,000 sponsor will have the opportunity to name a race and have their picture taken in the winner’s circle. Last year, the event raised $50,000, which helped send over 60 children to camp. This year, MDA has set a goal to raise at least $80,000. It is through fundraising events such as this, and the generous efforts of participants, that MDA is able to send children from the N.Y. metro area to Summer Camp for free.

Companies and individuals who are participating in this event include Speed Wire, Inc., Corbel Communications, Paul Monzon, Brian Campbell, FJC Security, Tariq Kahn of UFOLI, Rollin Greens Bar, Jim Juruc of 7-Eleven, Tack Room Bar, Steiner Sports, Cino Bagels, National Association of Letter Carriers Branch 2062, National Association of Letter Carriers Branch 41, ERA Top Service Realty, and ERA Caputo Realty.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. medical and support services, and far-reaching professional and public health education.

For more information on this event please contact Brooke Eder at (203) 288-3500 or beder@mdausa.org or Stacie Haut at (516) 358-1012 or shaut@mdausa.org

Artist Charles Fazzino and The Food Emporium Donate Proceeds from Special Edition Bag to MDA

New Haven, Conn., June 2, 2010 – The Food Emporium will be donating a portion of the proceeds from a special edition reusable shopping bag, featuring the work of renowned 3-D pop artist Charles Fazzino to the Muscular Dystrophy Association (MDA). The reusable, eco-friendly bag will display his painting “Fazzino’s Fabulous NY Apple” and is the first in a series of limited edition collectible bags featuring artwork from some of the world’s most talented artists and designers.

Artist Charles Fazzino is dedicated to many social causes, with a special interest in those involving children. In the last ten years alone he has raised over one million dollars with his artwork for these causes. He is a National Vice President for MDA, has acted as the official artist for the N.Y. Chapters Muscle Team Gala seven times and has visited MDA Summer Camp.

The bag retails for $7.99 and can be purchased at The Food Emporium Store at 810 Eighth Avenue (49th Street), New York, N.Y. They can also be ordered over the phone at (212) 381-0885. Fazzino will be available to sign bags at The Food Emporium Store on Wednesday, June 2, 2010 between 5 p.m. and 7 p.m.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education.

For more information on this event please visit http://www.thefoodemporium.com/pages_lifestyle_fazzino.asp or contact Brooke Eder at (203) 288-3500 or beder@mdausa.org.

A&P Supermarkets Presents Check to Muscular Dystrophy Association


Pompton Plains, N.J., June 1, 2010 – On Thursday, May 20, 2010, CEO and President of A&P Family Supermarkets Ron Marshall presented the Muscular Dystrophy Association (MDA) with a check for over $332,000 representing the proceeds from their recent “Shamrocks Against Dystrophy” Fund.

The check was presented as part of a grand reopening of the Pompton Plains A&P located at 500 Route 23 North. It has been closed since March due to flooding. In addition to raising money for MDA, funds were also raised for the Community Food Bank of N.J. and St. Jude Children’s Research Hospital.

MDA is a national voluntary health agency working to defeat muscular dystrophy and related diseases through programs of worldwide research, comprehensive services and far-reaching professional and public health education. MDA also supports nearly 400 research projects around the world and sponsors 220 hospital-affiliated clinics.

For more information about this event please contact Brooke Eder at (203) 288-3500 or beder@mdausa.org.